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amyb

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Reply with quote  #1 
My daughter is 21 months old, and we have been dealing with recurring vomiting since she was 13 months old. The vomiting has always happened at night - between 7pm and 11pm, and usually lasts roughly 2-3 hours. She pukes 3-10 times, and then sleeps and is fine in the morning. The vomits are typically undigested food, and there is usually a lot in the first puke, a decent amount in the next, and after that it is usually not much. She started out puking once/month, then we had a couple of months with nothing, and then 2 episodes within 2 weeks, then another month and a half of nothing, and now it's happened 3 times in the past month and a half.

The pediatrician suspects CVS and has referred us to a GI specialist at Children's Hospital of WI (we are in Milwaukee). I am extremely distraught over this diagnosis, as from reading message boards it seems like most people deal with days of vomiting and hospitalizations, etc. Can I expect this to get worse as she gets older? Is that the common theme?

She was a colicky baby and had painful spit-ups until I removed dairy from my diet. After that, she still spit-up, but the pain seemed to stop. This all started about a month after i weaned her from breastfeeding and started her on dairy. Do you think this could be the culprit?
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wynnak

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Reply with quote  #2 
Hi AmyB,

Don't be discouraged. People come here to talk about things that others don't understand. As CVS does not have a lot of research, it is hard to know where your child will be in 5-10 years. For some, it turns into migraines and they are fine. Or will have periods of what I refer to as remission. What you see on here are people struggling. Mainly because this is a place that others can understand the struggle or what they are going through. We don't get a lot of people that check in when they are well. Or if they have out grown CVS or have been able to manage their episodes better. They move on with their lives.. which is great.

Let's focus on now.. Can I say that it is FANTASTIC that you can get to CHW (Children's Hospital of Wisconsin) This is the epicenter of CVS care and research. You and your daughter will be in good hands. They are the most knowledgeable and experienced when it comes to CVS diagnosis, treatment and care. You may have seen Our Facebook post with Katja Kovacic one of the Doctors from CHW. If not, check that out. Hopefully she will put you at ease about going there.

It's good that you are reading and researching.. please don't assume that when you see some bad things on here that that will be your daughters path. Let the doctors at CHW make sure that CVS is what she is experiencing, and treat her accordingly.

I am jealous that you get to go there. [smile] We did not. But my son is doing just fine. So hopefully that helps you a little bit. Most of what you are seeing on here is adults. The adult CVS situation is being complicated with CHS or Cannabinoid Hyperemesis Syndrome and the medical field confusing or mixing up the two. You will not see that during your Child's diagnosis and treatment. She is not of an age that, that would be suspected.

I will also tell you that the more Moms I talk to, the more there is mention of the CVS baby being very colicky. If you look on here for triggers, Dairy can be one of them. One of the things that people can try to cut out to see if it makes a difference. There are several posts about triggers. All really good information. 

Let us know how your visit goes.. or if you have other questions. I know I had hundreds.. this is where I found support and answers.


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ginny

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Reply with quote  #3 

I would go with a dairy issue to start.  The GI might test or might have you remove this from her diet.  Two of my grandchildren have milk protein allergies and this manifested as colic in infancy.  I suspect now that their mother also had a milk protein allergy.  This is not my CVS daughter. 

I agree with Wynnak that you are being referred to a wonderful medical center.  Try keeping a journal, foods, activities, weather, sleep patterns and changes, play dates, any exciting stress or upsetting stress.

I think while waiting for the GI appointment I might also try her off dairy.  Your pedi will help you to get insurance coverage for a predigested formula such as allium.  You will need to be vigilant with her finger foods as well.  

Not all cases of CVS are severe and require hospital stays.  Stay hopeful and confident that proper testing will be done and possibly an easily treatable problem such a milk protein or lactose intolerance might be the problem.

Good luck and let us know how your little one is doing.


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ginny CVSA Moderator
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amyb

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Reply with quote  #4 
Thank you both so much for your responses. I really appreciate the kind words, and I am trying my best to remain positive. I think I just need to breath and take things one day at a time for now. I am keeping a journal with all of this information and have removed dairy and eggs from her diet. I'm crossing my fingers and praying this is our answer.
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ginny

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Reply with quote  #5 
Watch for hidden dairy as well-- whey and other products that are likely in processed foods.

If you did not get to join in on the monthly call last night, please try and put it on your calendar for next month.  Wynnak has a lot of experience and a variety of people call in.  Each family dealing with CVS has a different experience so the more hints and suggestions and thoughts, the better.

Good luck.

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ginny CVSA Moderator
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