Registered: 1364251815 Posts: 5
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I have posted about cannabis in another thread here in the past. This is an update with a little back story since I haven't been around in a while. My wife has been suffering from CVS for almost 20 years. In 2008, nothing the local doctors could do would stop the convulsive siezures and she was down to about 80 lbs and turning gray.......like people do before they die. The ER here would not treat her because they thought she was drug seeking. As a last resort, we contacted a guy who grew cannabis for patients and a strain that he gave us stopped the siezures immediately. Within 30 days she had put on 20 lbs. Unfortunately, that individual moved out of town soon after and other strains of cannabis that were available to us here were "sativa dominant" and produced anxiety which was counterproductive. Long story short, I eventually finally found a strain of cannabis that worked. It stopped her vomiting immediately and still does. Before this, we had been trying to find another strain that was effective with mixed results. Some worked better than others but sativa dominant strains were the ones that were consistently counterproductive. Indica dominant strains were consistently helpful but some more than others. Eventually we found a medical grower who had bred a strain that worked consistently..and I'm talking about stopping the convulsive retching dead in it's tracks. I was able to acquire seeds of this and started growing it for her. She had been CVS free for a almost a year in 2010. When the prodrome would start, she could use a bit of the oil in a capsule or rub it into her skin as a topical using DMSO as a solvent to aid absorbtion but if it was one of those episodes that just start with no warning, smoking would stop the vomiting. She had been without problems for so long that we got careless and ran out of the strain that worked. We couldn't find the caregiver who had it and what I was growing wasn't finished yet. She had an episode that was incredibly severe and so I took her to the ER at Mercy Regional Medical Center in Durango, CO. They said she was there "drug seeking" so they left her on a gurney for three hours, writhing in pain and vomiting uncontrollably. She got so dehydrated while they left her there to die that when they finally did grasp what was happening, they desperately tried to run an IV but the IV blew, she got a thrombosis and ended up in the ICU for a few days. During this time, she could hear the staff making snide comments about the "drug addict' and making all sorts of other demeaning references to her condition when they thought she was sedated and couldn't hear what was going on. You have to wonder how commonplace this kind of unprofessional behavior is. Well anyway, due to their reluctance to treat her, she now has vasculitis from being left in the ER to dehydrate and then having her collapsed veins butchered from years of ER visits before we found the cannabis strain that worked. Fortunately it also relieves the vasculitis when her hands start to swell. I have been consistently growing this for her since then and we will not run out of it again. The cannabis strain we have been growing for her here is so effective for nausea that she hadn't been back to the ER in 5 years until last week. Unfortunately, she had been having a CVS episode and the cannabis had been keeping it under control so there was no vomiting and she was able to take liquids and stay hydrated. Every time the dry heaving would start, a single "toke" would stop it and she would sleep but during this time she also came down with a flu bug and was having some respiratory issues so she couldn't inhale the smoke to stop the vomiting. She is a registered cannabis patient with a doctor's recommendation and her doctor, who recommends her cannabis, has also written her an ER directive in case the cannabis isn't sufficient and she needs additional treatment but the ER said they are under no obligation to follow it. At the ER, they ran a blood test and detected cannabis. They told her that because of her cannabis use, what they could do for her was limited. They did start an IV and rehydrate her but would not administer any anti-nausea medication or pain medication. It may be a "policy" in other cities/states where medical cannabis is "legal" so I wanted to give everyone who finds relief with cannabis a heads up about this. This is happening at both Mercy Regional Medical Center and the ER at Animas Surgical Center (ASH) in Durango.
Registered: 1111176341 Posts: 4,375
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No response yet but I am sure those who have a lot more knowledge than I will respond. One of our members cannot recall the form of Cannabis oil he used that stopped his cycles. He was visiting out of state where Cannabis is legal.
We are in the process of getting adult guidelines researched and published. It will take a lot of funding and time but once this is accomplished hopefully the ERs will no longer automatically discount those adults who are legally using medical cannabis as 'drug seeking" The front of the new Code V newsletter ran a great piece covering the process of getting to the guidelines. Please see the pedi work NASPGHAN on the CVSA web page. __________________ ginny CVSA Moderator
Registered: 1318595593 Posts: 277
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Sorry for the abusive treatment 1crash, most of us that use cannabis have been there also.
What strain are you using? The moment you mention cannabis or they find it in your blood, you have CHS if you present with unspecified vomiting. sad but true.
Registered: 1364251815 Posts: 5
Reply with quote #4
Thank you for the information Ginny. I will follow up. Demoncleaner. The strain is a hybrid. The male was a strain that originated in Paonia Colorado called Sugarfruit. The female was a Pine Tar Kush. This strain was provided to me in seed and I have grown it out and pollinated a female (f2's) so we will not be without it. There are other strains that are effective as well. The Southeast Asian and some Mexican sativas can create quite a bit of anxiety. When those are crossed to the faster flowering indica varieties, you have a chance of producing a phenotype that has the psychoactive characteristics of the sativa parent, even though it may look like an indica strain. There is a lot of this going on for the recreational market because growing sativas is difficult and costs a fortune if you are growing it under lights because the plants can take 12-16 weeks to ripen. Dispensaries lose money on them so they cross them with the quicker finishing indicas. People who aren't medical users want that psychoactive roller coaster ride. That's why buying cannabis off the shelf in a dispensary is a terrible idea. They can name it anything they want and have no clue how it may affect someone with medical issues. It took years to identify what works and what doesn't and then breed it so that the strain is stable, consistent and predictable when the episodes start to present. Some strains work to stop the event during the prodrome. Others can stop the retching if the CVS gets rolling suddenly...like in the middle of the night when the prodrome is missed because the person was sleeping. None of them are available in any dispensary.
Registered: 1318595593 Posts: 277
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thanks for the very detailed description on heritage, just what I was looking for. What other strains have you guys found effective, especially any that are not "local" and are able to be easily sourced from seedbanks? The best strain I found last year was Aurora Indica from Nirvana, Afgani and Nothern lights cross. Dabbing concentrate of AI was amazing for shutting down nausea. I would imagine AI has some decent CBD levels in it as well with the parents. I will be able to sample a good true Herijuana here in a bout a week, have good hopes for that strain for meds, also KO Kush which is the Heri crossed with a pre 98 Bubba. ya, some sativas such as Thai's and African landraces such as Malawi are more psychedelic than medicinal. Both can elicit fear and extreme anxiety, even in high tolerance smokers. African sativas have decent levels of both Myrcene and THCV, which both significantly potentiate the effects of THC in the body. Sativas that are not speedy can certainly be effective medicinally for things like depression, fibromyalgia, pain that does not require sedation, etc. situations where you don't want a couchlock. for us, couchlock is good! lol Bedlock is better! breeding sativas with indicas to improve yield and lower flowering time is certainly nothing new to the dispensaries, we have been doing that aggresivly for some 40 years now, ever since the first Skunk was bred in Holland, and in turn, Skunk wound up in everything. There are very few pure breeds left as far as Sativa or Indica as you know, even most of the landraces are being wiped out due to the locals growing hybrids that cross pollinate the native stocks. not really a dispensary phenomenon, more of a worldwide trend over the last 3 or 4 decades. Hoping I can score a cultivation license when they start issuing them in AK next year, so that I can attempt some legit breeding for meds, otherwise our plant counts are too low to do any selections for traits. I would like to be able to do similar to what you have ultimately. And that is what is truly amazing about Cannabis, it can be tailored for sooo many different profiles. I know for certain, that Cannabis has the genetics to properly manage a CVS episode, it is just a matter of finding the right ones and honing in on specific traits. thanks for the details, they are usually sorely lacking in any of the cannabis posts, as far as strain specifics.