Cyclic Vomiting Syndrome Message Board
Register Calendar Latest Topics
 
 
 


Reply
  Author   Comment   Page 1 of 2      1   2   Next
gspfld6

Registered:
Posts: 12
Reply with quote  #1 
Any recommended Dr's in Massachusetts?
__________________
gary smith
0
ginny

Moderator
Registered:
Posts: 4,373
Reply with quote  #2 

Hi Gary, We are in MA and have Dr. Sonia Friedman at the Brigham in Boston for a CVS GI.  

I don't know if she is accepting new patients but her staff should know of other doctors who work with CVS patients.


__________________
ginny CVSA Moderator
0
gspfld6

Registered:
Posts: 12
Reply with quote  #3 
Hi Ginny Thanks for the recommendation! 
__________________
gary smith
0
ginny

Moderator
Registered:
Posts: 4,373
Reply with quote  #4 
It has been many years since my daughter has had to see her but she is fantastic.  I hope she has openings.  Good luck.  And if you cannot see Dr. Friedman, please email the CVSA office.  They have a list of doctors state by state. MA should have someone in your general area.
__________________
ginny CVSA Moderator
0
gspfld6

Registered:
Posts: 12
Reply with quote  #5 
Ginny  Could you tell me a little about her experience and interest in CVS?  
__________________
gary smith
0
gspfld6

Registered:
Posts: 12
Reply with quote  #6 
do you know of anyone in Western MA?  Its very hard for m to get to boston especially if I am sick
__________________
gary smith
0
ginny

Moderator
Registered:
Posts: 4,373
Reply with quote  #7 

I think I would try calling the Gastro Departments at the various Boston teaching hospitals and ask if they have knowledge of doctors in your area of MA who work with CVS patients.

My daughter was in Western upstate NY and the GI we contacted had not worked with any CVS patients but I let the staff know who in Boston referred to him and he was willing to work with her.  By the time she left the area, the doctor had several patients with CVS and the local medical center was treating CVS patients in the ER.

If you can start with a CVS MD in Boston --or better get to see Dr. V in Wisconsin-- then the doctor can consult with a local doctor on a treatment plan.  Dr. V will also consult with other doctors on treating CVS.

Finally the Boston hospitals, and I assume most teaching hospitals, can do virtual consults-- review the medical records, consult and work out a plan.

Mass Gen has info on this online, and probably the other hospitals also offer online information on virtual consults.


__________________
ginny CVSA Moderator
0
Moon

Registered:
Posts: 2
Reply with quote  #8 
When you do find a CVS doctor in the Boston area, make sure that you are tested for leaky gut syndrome.
Could be allergies to foods.
We went to Boston, Ohio, Pittsburgh to find answers.
It turns out that my boyfriend was allergic to just about everything but lobster.
The government doesn't use anything to preserve the meat in lobsters. We are vegetarians now and grow our own veggies.
Because of CVS he lost his job, he was in the ER 4 to 5 times a week besides weeks and weeks of hospital stays.
Took over 4 years and tons of tests, to find out that he was slowly becoming allergic to all foods.
I hope you find your answers.
0
wynnak

Avatar / Picture

Registered:
Posts: 532
Reply with quote  #9 
Allergy testing is usually part of the rule out process before they diagnose CVS. Celiac testing.. those are usually done before. I'm sorry that wasn't done for you guys. "Leaky Gut" usually happens when your GI tract has been through a few stomach infections and is unable to absorb the nutrients anymore. It deteriorates to a point that things "Leak" into your gut. Has he had stomach infection testing?
__________________
Blynda
Message Board Moderator
Monthly Support Call Moderator
0
Smokeater42

Registered:
Posts: 1,563
Reply with quote  #10 
Ginny  Doc F hasn't taken on new Pt's for some years,  BUT the other Doc at BWH do and she will concolt with them so its the sAME THING
Smoke

__________________
When you have CVS life is one puke after another
0
ginny

Moderator
Registered:
Posts: 4,373
Reply with quote  #11 
Good to hear from you Smoke!  Thank you and I hoe you are doing well.
__________________
ginny CVSA Moderator
0
Smokeater42

Registered:
Posts: 1,563
Reply with quote  #12 
Wasn't sure if you saw my FB page, i had a heart attack a week ago last Sunday and Jo had total rotator cuff surgery last Tuesday so we're both bumbed up for awhile
__________________
When you have CVS life is one puke after another
0
wynnak

Avatar / Picture

Registered:
Posts: 532
Reply with quote  #13 
Smoke,

Sorry to hear things are rough. I've done the rotator cuff thing.. so I'm sorry that your wife.. and you are struggling. I hope you are both feeling better soon. I know both are hard to bounce back from.

__________________
Blynda
Message Board Moderator
Monthly Support Call Moderator
0
ginny

Moderator
Registered:
Posts: 4,373
Reply with quote  #14 

Smoke, I did respond to your FaceBook message. I am so so sorry about the heart attack.  I hope you are soon feeling better.  I am happy the Cannabis is helping you as well.

Tell Jo I am keeping you both in my prayers.  


__________________
ginny CVSA Moderator
0
Smokeater42

Registered:
Posts: 1,563
Reply with quote  #15 
Sorry Ginny i know alot of times FB doesn't post things on mine and my Sister and afew friends asked why i didn't post
Smoke

__________________
When you have CVS life is one puke after another
0
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.