Cyclic Vomiting Syndrome Message Board
Register Calendar Latest Topics
 
 
 


Reply
  Author   Comment   Page 4 of 19      Prev   1   2   3   4   5   6   7   Next   »
Shellly

Registered:
Posts: 173
Reply with quote  #46 
Being pregnant was the worst days of my life , I was in hospital for 8 months with my daughter 32 years ago ,
I weighed 4 stone at 8 months pregnant, at 6 months they wanted to abort my little girl as they said I'd never pull through it , the consultants were saying to my mum , that I would reject my baby when she was born because of all the sickness I was going through, I even had to see a mental health person to say how I was feeling, they also wanted me to go into a home for people with anorexia just in case I was trying to loose weight, loose weight when I was pregnant what a laugh, I just wanted a normal pregnancy.
My daughter was born at 6lb 6oz , which was a good weight, but I was so slim , I can remember I was being fed through a tube going in my nose straight to my belly , but I kept being sick and the tube kept coming out , so in the end , I had the tube going in my chest into my stomach and was being fed that way , I had to have a black cover over the food bag so it didn't go off and to keep it fresh , but I was still being sick . This was 33 years ago and everyone thought I was going mad as the jph haven't ever seen a person so Ill with being pregnant, so much went on in my life being pregnant, I had a big belly but nothing on me , the hospital said my baby would be ok because all the goodness going into me went to the baby first,
10 years later I had a baby boy but yet again I was in jph for about 7 months, but I wasn't as bad with carrying boys as I was with girls.
What a nightmare my pregnancy were .
This is when my CVS started with me being pregnant, I can remember being sick when I was a child and it always went on longer if I got sick more than anyone else .
But when I was pregnant this is when all my sickness really started.
my poor daughter has two boys and she was in hospital with her two boys because of sickness too .
When she gets ill she is sick for awhile and only a few times she has been admitted to jph .
Take care
It's bed time
Speak soon
Take care
X

__________________
🌞 Shelly 😍
0
wynnak

Avatar / Picture

Moderators
Registered:
Posts: 820
Reply with quote  #47 
I am so glad you guys have been able to connect and support each other. I would encourage you to share your experience on here in other Facebook groups or things like that to promote the support you find here. The archives, the support, it really is wonderful!

Great that you found us!

__________________
Blynda
Message Board Moderator
Monthly Support Call Moderator
0
Shellly

Registered:
Posts: 173
Reply with quote  #48 
It's great to have someone living so close to me . I'm so pleased we can all share stories.
I'm not on Facebook, I've learnt so much on here in the last few day .
It's back to work for me today .

__________________
🌞 Shelly 😍
0
Layla

Registered:
Posts: 136
Reply with quote  #49 
The differance it's made knowing someone so close and only a drive away has the condition and being able to share things. I don't feel so alone being on here and all the people help ..
0
Layla

Registered:
Posts: 136
Reply with quote  #50 
Hi shelly sorry had morning school rush and that this morning so hope work going ok. Keep smiling ☺ ...... being pregnant was awful like you was only I think 6 stone and to like you that wanted me to get rid of my little girl and said my body couldn't cope and I was being fed through a tube..but I did it and got a beautiful girl a month and bit early but 5 12 and she was perfect. But I was told really not to advices having any more and to be honest I didn't think I could go through that all again. I counted my self lucky carrying the one. I was always a sickly child my mum and dad said I was always getting everything and took longer to get over it . But I was really ill with glandular fever and hospitalized and lost so much weight. That's when mine all started really..they said I had caught hepatitis while there (not the serious one) and ever since them 2 weeks in hospital my life had never been the same!! Hope you had a good day and work wasn't to hard on you. Xx
0
Shellly

Registered:
Posts: 173
Reply with quote  #51 
Afternoon Layla, it's good to get back into my routine, I've just finished work but I start again at 5 .
Work was ok , it was lovely to see all the people who I work with again .
I had to have a come back to work meeting, it went well as I had all my certificates etc from JPH, but then I was told I got to have a formal meeting with the managers , I asked why and I was told because I've had too much time off , I was really upset and crying I'm told I'd get a letter in the post to say when it is , I then said do you want me to come to work with a drip in my arm and a doctor behind me giving me injections, she said no don't be silly, I said I'm not meant to get stressed out , and this is making me stressed.
It's not like I have time off work for nothing, every time I've had time off work is because of CVS .
Now I'm going to worry until I've had this meeting,
I told my work do they think I'd rather be in hospital being really sick , or at work , I said I don't want to be sick but I can't stop it .
I'm so glad I've got you to talk to , it helps a lot and like you say Layla nobody understands, unless they have CVS .
My CVS didn't start until I was 22ish , but the older I'm getting the more I'm getting sick . I wish it would all stop as quickly as it came . How lovely that would be .
Take care
XX

__________________
🌞 Shelly 😍
0
Layla

Registered:
Posts: 136
Reply with quote  #52 
Oh please try not to worry to much. It's so hard as people just don't understand. What we would give never to have to have another episode. .can't see how they can do anything because of your health. This is where I've struggled with life and getting anyone to give you a chance when your so unreliable.. and not that we have any choice just so unfair. Stress and worrie isn't a good thing no. I've learnt that but is easier said than done I know. Will be always here to talk to it helps alot. Your not alone. Xx
0
Shellly

Registered:
Posts: 173
Reply with quote  #53 
Sorry I didn't get back to you last night Layla , I didn't finish work till 10.30 , but I've got today off work yippie.
Thank you for your support, I can see where my work is coming from , but it's so not fair , my husband said don't worry about it , their are plenty of other jobs out their , but who would want to give me a job when I'm so unreliable. The meeting I've got to have is a formal meeting and it's to see how I can improve my attendance lol, I've already said to the company once a start a cycle , I can't move or do anything.
Anyway enough of me moaning, how are you today , fit and well I hope , im having a lazy day today , think my daughter might come round .
Take care and have a lovely day 😊

__________________
🌞 Shelly 😍
0
Layla

Registered:
Posts: 136
Reply with quote  #54 
Was just hoping you were ok and well. I had a eppisode and then within 2 day of being out it started again. But was hoping I just got home and did to much to quick. That's late..but good you have today to rest and go steady . You can't worrie about it but I see where you coming from. It's so hard. Sometime you wish they could just exspierence it for a day then can say.. that's what we go through but for sometimes 5 days...people will never understand unless there your loved ones who have to watch you go through it everytime. we all have to moan it help : ). Hope you and your daughter have a lovely day to xx
0
Shellly

Registered:
Posts: 173
Reply with quote  #55 
Thank you for your quick reply Layla , I know your on the school run .
Yes that was what I was like last May - June, I only had 2 weeks in between a episode, but only having 2 days is scary, my heart goes out to you .
Yes if people could just experience this horrible monster for a day then they would be more considerate and think to their selfs how ever do they do get through this .
It must be so heartbreaking for all our families to watch us again and again going through this . My husband never goes to work when I'm in the first stages as I'm confined to bed and can't do anything for myself, when the monster strikes within half hour or less I'm useless and can't do a thing, but his work are so good and think of their families .
My night time job are very understanding as well , they know what I'm like when I get sick , I've been their for 32 years and they let me have as much time off as I want .
Have a good day .
Xx

__________________
🌞 Shelly 😍
0
Layla

Registered:
Posts: 136
Reply with quote  #56 
Think our family's prob just take it all in their strid now it's a part of our lifes. know what you mean you just can't move. My other half got good at emptying my sick bin when I'm haven a episode ..is so hard to describe how out of it and how not with your you feel when haven episode. Glad they are and they understand wish everyone could. Think I got a cold and chest infection : ( this is when I know I got to go stready or will go down hill fast. Hope you and daughter had nice relaxing day xx
0
Shellly

Registered:
Posts: 173
Reply with quote  #57 
Yes , that's true , about our families taking it all in their stride . O no Layla be careful, hope you don't get a episode, when I get ill 9 times out of 10 , it always goes to my belly and then I end up in JPH. Yes I had a lovely day with my daughter, we went out to get the last of my grandsons birthday bits , ( it's his birthday tomorrow) . We might be going to Norwich on Friday to go to the Levis shop as the jeans I got her for Christmas have come unstitched,
I still keep thinking of this meeting ive got to have . Wish it was tomorrow to get it out of the way. Since I've been in hospital my ribs on the right hand side are really sore , it even hurts when I touch it ,
I've always got something wrong lol .
Take care
Xx

__________________
🌞 Shelly 😍
0
Layla

Registered:
Posts: 136
Reply with quote  #58 
Yep same here any cold and I normally can't get over it. It's scear me because once I'm sick in normally don't stop.. I had a easy day my mum and friend did the school runs for me. So I could just take tablets and relax but I have luckly got doctor in hand with injections Justin case. Oh bless him happy birthday for tomorrow. Nice when you can get out and about i always appreitate things more when first get out and can make a cuppa when I want and Sony taste like the plastic cups : )my ribs sometime sore after if I been really bad with all the teaching. Hope nothing to serious. Xx
0
Shellly

Registered:
Posts: 173
Reply with quote  #59 
That's lovely Layla , glad your having a rest , and hope you get better very soon , take it easy we don't want it to turn into the monster, try having a relaxing bath , it might help you .
Yes it's lovely to get out and about,I'm glad I could get him some Birthday presents.
Its hard to believe I've only just been out of hospital just over a week , it's amazing how quickly you have to get back into routine, I like my routine it makes me feel safe .
I've been told by Alan I mustn't stress over this meeting I've got to have , but like you say , easier said than done .
Hope your ok and take it easy , thinking of you
Take care
Xx

__________________
🌞 Shelly 😍
0
Shellly

Registered:
Posts: 173
Reply with quote  #60 
Morning Layla, just a quick message before I go to work.
Hope your ok
X

__________________
🌞 Shelly 😍
0
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.