Cyclic Vomiting Syndrome Message Board
Register Calendar Latest Topics
 
 
 


Reply
  Author   Comment  
Chelle

Registered:
Posts: 115
Reply with quote  #1 

Our Peds Neruo office wants me to put my son on this supplment to see if it helps, they also suggested  Magnesium but didn't tell me how much to take of that one.  So we are going to add this and see if it helps.

Has anyone tried this?


Butterbur
 is an herb. People use the leaf, root, and bulb to make medicine. Some butterbur preparations contain chemicals called pyrrolizidine alkaloids (PAs), which can damage the liver and cause other serious harm. Only butterbur products that are certified and labeled “PA-free” should be used.

Butterbur is used for pain, upset stomach, stomach ulcers, migraine and otherheadaches, ongoing cough, chills, anxiety, plague, fever, trouble sleeping (insomnia),whooping coughasthma, hay fever (allergic rhinitis), and for irritable bladder and urinary tract spasms. Butterbur is also used to stimulate the appetite.

Some people apply butterbur to the skin to improve wound healing.

How does it work?

Butterbur contains chemicals that might relieve spasms and decrease swelling (inflammation).


__________________
Chelle
"Just want to stop his pain"
0
Doc

Registered:
Posts: 444
Reply with quote  #2 
Do you know a consistent, reliable source to obtain the certified PA-free version?
__________________
Doc

34 year old veterinarian. Adult onset at 25. Some recent flare ups but working through it! Breathe, stretch, relax.
0
Chelle

Registered:
Posts: 115
Reply with quote  #3 
The Dr office gave me a paper that show it is available online at Swanson Vitamin .com
it is an older paper but the price as $3.39 **mg 60 caps.  When I called the local health food store they said they had it for $23.00 for 60 caps at **mg.  I will have to call the Dr office back and ask what dose they want my son to take.

I am feeling hopeful this might help reduce his abdominal pains.

__________________
Chelle
"Just want to stop his pain"
0
Chelle

Registered:
Posts: 115
Reply with quote  #4 
So I got some butterbur here in town but he says they are to big to swallow so I am opening them and trying to mix it in with food or drink. As long as he doesn,t know I did it.
__________________
Chelle
"Just want to stop his pain"
0
Chelle

Registered:
Posts: 115
Reply with quote  #5 
Sure thing.
I just have to get him to take it more regulary.

__________________
Chelle
"Just want to stop his pain"
0
Doc

Registered:
Posts: 444
Reply with quote  #6 
Chelle,

I just did some searching online and found this product below. From what I can tell the company is reputable and gets great reviews. They are USDA Organic certified and have certified GMPs. The product got good reviews as well, but there weren't many, and they are on the company website, so I take them with a grain of salt. Amazon reviews are good. The company seems to have been started by people who have had migraines, so that's always good news to me. I just ordered it through Amazon Smile and am excited to try it. I didn't find very many others that state they are PA free.... The reason I like this one is because it also has the riboflavin and magnesium, which I also am adding to my supplement regimen. I'm still learning about the feverfew but I don't think it is anything that would hurt, even if it doesn't help, so it's a freebie lol. I did read that you should not expect results until you have used it for 3 months.

Preventa Migraine- with PA Free Butterbur Root (Petasites), Magnesium, Riboflavin, and Feverfew- 60 capsules
Sold by: Family Tree Remedies for $38.09

__________________
Doc

34 year old veterinarian. Adult onset at 25. Some recent flare ups but working through it! Breathe, stretch, relax.
0
Chelle

Registered:
Posts: 115
Reply with quote  #7 
Doc,
 The ones I found here in town are Now brand. ButterBur and Feverfew in it and is Vegetarian not that, that was important it was $25.99 for 60 caps with GMP Quality Assured and PA free.

They are just to big for him to swallow so he goes into an anxiety attack, they are 3/4 inch when you get yours can you measure them and let me know the size?

thanks so very much, I might take these since I have headaches as well.

Michelle

__________________
Chelle
"Just want to stop his pain"
0
Doc

Registered:
Posts: 444
Reply with quote  #8 
I will and I'll let you know.
__________________
Doc

34 year old veterinarian. Adult onset at 25. Some recent flare ups but working through it! Breathe, stretch, relax.
0
Lioralourie

Registered:
Posts: 11
Reply with quote  #9 
just archiving the two older studies I found about Butterbur and prevention of migraine

1) http://www.ncbi.nlm.nih.gov/pubmed/14752215
Eur Neurol. 2004;51(2):89-97. Epub 2004 Jan 28.

The first placebo-controlled trial of a special butterbur root extract for the prevention of migraine: reanalysis of efficacy criteria.

 

Abstract

This is an independent reanalysis of a randomised, placebo-controlled parallel-group study on the efficacy and tolerability of a special butterbur root extract (Petadolex) for the prophylaxis of migraine. The original protocol and analysis had a number of major shortcomings. In order to follow regulatory requirements, an independent reanalysis of the original data was performed. Following a 4-week baseline phase, 33 patients were randomized to treatment with two capsules ** mg butterbur twice a day and 27 to placebo. The mean attack frequency per month decreased from 3.4 at baseline to 1.8 after 3 months (p = 0.0024) in the verum group and from 2.9 to 2.6 in the placebo group (n.s.). The responder rate (improvement of migraine frequency > or =50%) was 45% in the verum group and 15% in the placebo group. Butterbur was well tolerated. This small trial indicates that butterbur may be effective in the prophylaxis of migraine.


and 2) 
 http://www.ncbi.nlm.nih.gov/pubmed/15623680
Neurology. 2004 Dec 28;63(12):2240-4.

Petasites hybridus root (butterbur) is an effective preventive treatment for migraine.

Abstract

OBJECTIVE: 

To evaluate the clinical efficacy of a standardized special root extract from the plant Petasites hybridus as a preventive therapy for migraine.

METHODS: 

This is a three-arm, parallel-group, randomized trial comparing Petasites extract **mg bid, Petasites extract **mg bid, or placebo bid in 245 patients with migraine. Eligible patients met International Headache Society criteria for migraine, were ages 18 to 65, and had at least two to six attacks per month over the preceding 3 months. The main outcome measure was the decrease in migraine attack frequency per month calculated as percentage change from baseline over a 4-month treatment period.

RESULTS: 

Over 4 months of treatment, in the per-protocol analysis, migraine attack frequency was reduced by 48% for Petasites extract ** mg bid (p = 0.0012 vs placebo), 36% for Petasites extract ** mg bid (p = 0.127 vs placebo), and 26% for the placebo group. The proportion of patients with a > or =50% reduction in attack frequency after 4 months was 68% for patients in the Petasites extract **-mg arm and 49% for the placebo arm (p < 0.05). Results were also significant in favor of Petasites **mg at 1, 2, and 3 months based on this endpoint. The most frequently reported adverse reactions considered possibly related to treatment were mild gastrointestinal events, predominantly burping.

CONCLUSIONS: 

Petasites extract **mg bid is more effective than placebo and is well tolerated as a preventive therapy for migraine. Petasites **mg PO bid was not significantly more effective than placebo on the primary study endpoints.

 

ooh if you put Butterbur Petasites migraine into pubmed a whole ton of stuff comes up (more recent) too.

__________________
Adult Onset, new diagnosis.  Mom of 3:  kid #1, age 10, formerly with PDD-NOS on the autism spectrum (RECOVERED 5 years ago), a Neurotypical boy age 8 and a lovely 5yo girl with Down syndrome (who we are treating with vitamins and supplements). 
0
Lioralourie

Registered:
Posts: 11
Reply with quote  #10 
to answer the OP, these two soft gel products which though having animal product in the capsule (gelatin) also allows you to pierce the capsule, and if it doesn't taste too bad, add to smoothies or give straight even (let me know if the taste allows this option!) This also would allow you to dose younger children variably and play with the dosage.  

http://www.iherb.com/Planetary-Herbals-Urovex-Butterbur-Extract-20-Softgels/1531
9.51 for 20 capsules

and
http://www.iherb.com/Source-Naturals-Urovex-Butterbur-Extract-60-Softgels/964 
28 dollars for 60 capsules

p.s. the code for first time buyers at Iherb.com is uri094 - ten dollars off.  (I think they have free shipping in the U.S.  I order from them all the time, I am a U.S. citizen living in China)

__________________
Adult Onset, new diagnosis.  Mom of 3:  kid #1, age 10, formerly with PDD-NOS on the autism spectrum (RECOVERED 5 years ago), a Neurotypical boy age 8 and a lovely 5yo girl with Down syndrome (who we are treating with vitamins and supplements). 
0
Chelle

Registered:
Posts: 115
Reply with quote  #11 
This is great information.  The only place I found softgels were like $60.00 for 60 and I hate to say it but I can't afford that.
I know his Dr. said to use higher than mg than these but if he takes two a day that should work. Plus she said to make sure they are PA free and these are..... I am sure my son will be willing to try these.

This sounds like the answer we have been looking for.   Shipping is free if orders over $20.00 so I am going to look around at the site to see what else I can find.

Thanks again, I love everyone's support on the MB.



__________________
Chelle
"Just want to stop his pain"
0
Chelle

Registered:
Posts: 115
Reply with quote  #12 
Just ordered some softgel Butterbur and a multiV for my son from iHerb.com.  

Looking forward to him starting on them as soon as we get them.



__________________
Chelle
"Just want to stop his pain"
0
Chelle

Registered:
Posts: 115
Reply with quote  #13 
Butterbur came today and Andrew said they are small enough he will take them. I was very happy to hear that.
__________________
Chelle
"Just want to stop his pain"
0
Doc

Registered:
Posts: 444
Reply with quote  #14 
Chelle,

I'm so sorry I forgot to follow up to this post. Turns out my pills are pretty large. At least 3/4 in or an inch. But they are working very well! I'm definitely going to continue to take the indefinitely. I'm glad you found a size that your son can take. Just in case you ever need to change, here is the link to the ones I have been ordering. I like them because they are a family owned company, no hidden ingredients, and founded by people with migraines [smile]. I like supporting them. $32.99 for 60 capsules.

http://smile.amazon.com/Migraine--Butterbur-Petasites-Magnesium-Riboflavin/dp/B00G7VX9S6/ref=sr_1_1?ie=UTF8&qid=1427990879&sr=8-1&keywords=preventa+migraine

__________________
Doc

34 year old veterinarian. Adult onset at 25. Some recent flare ups but working through it! Breathe, stretch, relax.
0
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.