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JeniT

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Reply with quote  #16 

After following this thread from the beginning, I was discussing it with my daughter-in-law the other day (who has fybromialgia and Addison's and maybe cvs too) she was explaining to me how pot could cause someone to develop cvs. She said that when you smoke pot it depletes the DHEA levels in your system.  DHEA is the opposite of the stress hormone (I forget what it's called) that the body releases when under stress, DHEA is released after, and helps balance out the system after the stressful situation has eased. If you don't have enough DHEA to balance you out then your always under that stress mode and it weakens your defense system and are then more susceptible to other problems, like cvs.

 

I don't personally buy the idea that it triggers cvs, but I can now understand how if you are already predisposed to those types of problems that it could create the environment for cvs to kick in. And I completely agree with those who feel it helps them get through the episode.

 

I do feel it's wrong for the feds to decide the state laws aren't legal where medical pot has been passed by the voters.

 


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Jeni
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BDavis

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Reply with quote  #17 
In no way do I discount the positive effects of medicinal marijuana. In all actuality I support medicinal marijuana, and I think it's ridiculous that our government is making it so difficult for people to get it through their Doctors.  Our Doctors will endorse the use of narcotics for pain, but not marijuana for nausea? And for now, the research on medicinal marijuana in the US will come to a halt.  It's all very frustrating to me.

My belief is that excessive marijuana use can trigger CVS. Their are many other diseases that can be brought on by environmental triggers. I think the research has some validity, but is misguided.  I also think their is not enough research to prove either way.

Anyway, I just thought I should clarify my ideas.

Britt




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SashaMC3

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Reply with quote  #18 
i plead the fifth
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Jay

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Reply with quote  #19 
Good to finally see some positive research being conducted and published about medical marijuana.  Check out this site below.  I found it to be extremely validating.  I am an adult sufferer who has an exemption from the government of Health Canada for it's use, and I find the medicine incredibly useful for my CVS, it's management and prevention of symptoms...  For sleep, nausea, and to increase my appetite and ability to eat.  Basically I believe I have a better quality to life dimension as a result of this precious herb.  My goal is to keep my stomach running as long as possible, and this helps greatly.

Anyway, just thought I would share this article with those who are interested!  Copy and paste into the browser as needed.

Regards to all,
Jay

http://www.theglobeandmail.com/servlet/story/RTGAM.20051014.wxcanna1014/BNStory/specialScienceandHealth/

I may have accidently erased someone's response to me, if this is the case my apologies...  Please write back!  Thanks,jj

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jodie
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Reply with quote  #20 

Jay...

 

Excellent article.  But the link you posted led to a page for paid subscriptions only.  Here's a link to a Google search link for the article.  Click it and then choose the first entry.  It'll take you to the article.

 

http://www.google.com/search?hl=en&q=marijuana+globe+mail&btnG=Google+Search

 

Have you ever tried Domperidone (motilium)?   It helps the stomach empty more quickly, reduces acid reflex and eases nausea. It's not available in the US, but I've read good things about it.

 

Lisa

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Reply with quote  #21 
I find for myself that the use of pot is extremely helpful for me, I wake up every morning feeling sick to my stomach, some days worse then others, but i find relief when i smoke, when i am really in the throws of being sick it helps to relax me, calms me down somewhat, you know what works for one person doesn't always work for someone else, its like that with meds. to. Just my personal opinion. Thanks for listening.
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Reply with quote  #22 
Those studies were likely done ass-backwards, that is, manipulated to prove a "theory" the researcher(s) had. Certainly the CVS babies and children could not have been included in the study.
Fact is, marijuana is an enormous relief to most CVS sufferers. It makes an "I-wish-I-were-dead" day into an "I feel-much-better" situation, where I can actually live normally, eat, maybe work, shop, etc. When the CVS episode is already in prodrome, then marijuana--even a lot of it--doesn't always help, and may even increase vomiting because of coughing. By that time, only ER treatment will stop the episode (IV zofran, ativan, whatever). You all know the drill -- put the patient at complete physical rest (sleep), provide fluids and meds, and it will pass.
In the meantime, on a day-to-day basis, marijuana is a God-sent, earth-grown miracle! It should be legalized, like liquor, or readily available to those who need it. Like in civilized countires like The Netherlands,
(P.S. marinol is not so good, very weird--like having marijuana without the benefit of feeling better; you just feel kind of "off.")
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Reply with quote  #23 
I agree, Alyce.  My favorite was the study that linked cannabis use, chronic bathing and CVS.  Using that "scientific method" a person might also conclude that cough drops cause coughing and taking aspirin leads to headaches.

Lisa
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ginny

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Reply with quote  #24 
I know some who have CVS who are helped by marijuana. 

The research that I have heard presented was solid.  The research was on a group who first used marijuana and then presented with symptoms similar to CVS. It would be very unfair to those who living with CVS who find relief from its use to be lumped into the category of people who used marijuana for recreational pleasure and later had symptoms of CVS. 

We need to look at the use of marijuana from the correct perspective. 

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ginny CVSA Moderator
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Smokeater42

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Reply with quote  #25 
I agree with alyceconrad  100%
Heave hooo
Smoke

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When you have CVS life is one puke after another
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klconner

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Reply with quote  #26 
I'm bumping this up.
kate

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CLEANTEETH

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Reply with quote  #27 
I just have a few questions, how do people in their 20's or whatever age i suppose it doesn't  matter about age, but how  are people with CVS suppose to go to school  and work? My daughter Chelsea is 20 almost 21 and hasn't been able to work or go to school because she has episodes every month for 5-10days and is vomiting every few hours until she can get to sleep.
I am just worried about the future how do we keep her on our insurance? does anybody else have this problem? she can't go to school because we never know when its coming.  so its a catch 22 what do we do? we are trying to get disability, but thats a long process and have already been turned down once. any ideas?

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WENDY JENSEN
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mmarguglio

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Reply with quote  #28 
WENDY,
I am going through the same insurance problems with my 20 Y/O son. The best we've been able to do is enroll him and pay for full semesters and then have him drop out AFTER the roster has been submitted to our Insurance Co. along with course selection showing Paid In Full. I don't know how many more times we can "get away with this" and have been fortunate enough to have financial support through freinds who hosted a benefit to raise the fund to pay for two semesters of community college. Our next "attempt" is to enroll through Rutger's U. home school instruction. I think that we will be applying for disability for our son as well, and OBVIOUSLY the multiple enrollment/dropout will prevent him from EVER getting into the programs he REALLY wants to take in the future. IT IS AMAZING that our insurance companies are so quick to try and drop our "SICK CHILDREN'. Then again, who wants to pay for 10-15 days hospital stays every two or three months. What's worse is the toll this takes on the psyche of a 20 Y/O kid, who's friends are now completing their 4 year degrees while he lays in the hospital for weeks at a time??? My son is lucky enough to still be with his HS girlfriend who is USUALLY accomodating and supportive, though I KNOW this has been difficult on her and a strain on their relationship as well.
ANYYYWAY, there you have a short term solution for college/insurance. So far as I know this is not insurance fraud as he does enroll and pay for school. Then ATTEMPT a semester, but even with straight A's, absence causes him to "fail".

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Michael

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Posts: 5
Reply with quote  #29 
I never used cannabis before i got my desise.

I find it helping me alot to deal with the musclepain, apetite, neusea, and chronic fatique
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trice

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Posts: 139
Reply with quote  #30 
mmarguglio,
I totally undestand where you are coming from with the insurance stuff. I am in your son's shoes though. I am 24 and did graduate with 4 year degree after 5 years in college. Luckily I went to a very small private college that the professors worked with me a lot one on one to help me get through my classes. Without all of that one on one help I wouldn't have made it through. Luckily the company my mom worked for covered my insurance while I was in school (I was able to make it through college) but 6 months after I graduated I didn't have insurance and no one wanted to cover me because I have a pre-existing condition! I did get a job at a local preschool where I worked full time for about 6 months before I got too sick to do that but they have been very good to allow me only to work part time but have still allowed me to keep my insurance through them. Your son is lucky that his girlfriend has stuck around beacuse I haven't had that luck. I only have a couple of good friends that have stuck around and no boyfirends, it was too much for them to deal with.
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