Registered: 1535639499 Posts: 2
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I've recently been diagnosed with CVS after having digestion issues my whole life. My pattern has kind of morphed throughout my adulthood, starting with brief night-time vomiting episodes in college and it had kind of settled into a pattern over the last two years of a few hours of vomiting followed by nausea, dry heaving, stomach cramps, and shivers for the rest of the day and then low grade constant queasiness for 3-4 days. Once I was diagnosed my doctor started me on a regimen of Co-Q10 and L-Carnine. I had been having an attack every couple of months or so, and hadn't had one in a while, so was starting to feel good about this preventive method. Then I had an attack this week that started well into the morning (usually starts very early right around when I wake up) once I was already at work, I went almost immediately into dry heaves and severe stomach cramping and shakes. This has lasted for four days with very little nausea, but intense physical reaction in the mornings lightening up in the mid-afternoon (after naps). I was wondering if anyone else trying these supplements saw a similar reduction in nausea but extension of muscular response during their episodes. I have also recently done a lot of international travel and have been jetlagged if anyone has noticed circadian rhythm effects on their episodes. I think I'd rather go back to the nausea, that was easier to work through than the cramping and shakes.
Registered: 1350591217 Posts: 820
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The “mito cocktail” so it is referred to in CVS circles has helped a lot of people. Have you had labs to see if you are at therapeutic levels? That may be something to check if it has helped but needs a boost. Also check the supplement info on the CVSA website as I believe that b vitamins have also been added to the mix. Check with your Doctor before including in your medications. But have your levels tested to see if you need to adjust them.
Do you use any anti- nausea or anti-emetics. __________________ Blynda Message Board Moderator Monthly Support Call Moderator
Registered: 1535639499 Posts: 2
Reply with quote #3
No blood work, just an endoscopy and biopsy to check for celiac and h pylori, which I don't have. I have tried to use Zofran in the past but once I started vomiting it didn't seem to work and I usually woke up already sick so I couldn't head it off. A different doctor prescribed me sumatriptan nasal spray when this current episode started but today was the first day I had a chance to use it, and I went to sleep after I took it, so I'm not sure if it worked or not, especially since I still feel pretty gross many hours later. I'll look into B vitamins and see what my GI doctor says.
Registered: 1111176341 Posts: 4,553
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Definitely circadian rhythm changes could be a factor for you. Please read the archives and check to the pinned topic on the Supplements for dosages and hints. When stressed, some do change their supplements to support the exhaustion.
The B vitamins, esp B2, can be very helpful when added after CoQ10 has been established. If you might have a migraine aspect, magnesium could help as well. If the cramping has to do with gastric emptying, magnesium can help move things along. Some doctors prefer Magensium citrate, others prefer chelated magnesium. I has been suggested that those who do well on the supplements might benefit from not fasting overnight. A whole grain cracker with some cheese or other protein before bed can help as might a middle of the night light snack. This is just to try to break the lack of energy being depleted due to fasting. Before adjusting your supplements please speak with your doctor. Also you can call the 800 number on your supplement bottles. CoQ10 should be all natural and preferably keneka CoQ10 (found in many quality products). Carnitine should be "L", maybe "A" and never "D". You can get a prescription for Carnitor, pharmaceutical quality. COQ10 SUPPLEMENt should be clinically proven, guaranteed money back, gel caps, all natural and hopefully pharmaceutical quality. If you call Epic4Health or Healthy Origins, tell them you have CVS, you should be able to get a substantial discount on their CoQ10 and L Carnitine. __________________ ginny CVSA Moderator