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scooky1

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Finding a doc is hard enough, but should you have to relocate what do you do? 12 years ago I relocated to the pacific northwest from central california, had a good Dr in Cali and was afraid to get a new Doc so I drove back and forth 800 miles, it took years and I found my current Doc in Bend OR. he understands and is non-judgemental and gives me the meds that seem to help or at least the drugs are the same as the ER uses almost. now it seems things have come full circle and it has reversed. I got to old and cold up north so I came back down south where it's warm, but afraid to change Doc's etc.
I used to be a world trecker but now I am afraid to get on a plane just incase it should happen mid flight.
But I know I can't keep going 800 miles just to see a Dr. the last time I did it for about 5 years, it's just so hard to find the Doc and then it is so hard to change/find another! I have done it before and it looks like I have to do it again, "scarry" but must be done!I went to the Dr I had down here (Cali) and asked if he would be willing to see me agian and said yes. so I guess the point is we have to know how to  try and set up our lives and Doc's and keep our place, meaning to keep it straight wright it down and perhaps keep a notebook,(sorry starting to ramble) point is I have to change docs and it's not like normal people, "it's scarry" but can be done. I am going to post this and ad to it later, just wondering does/do any of you go through this or are any of you going through this and do you have any advice on how to stay calm, make it smoother? Thanks Guys
PS just reread this and it sounds so dumb, but I figured you guys would understand and who knows, maybe all of you guys have the answer and all I had to do was ask the board
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wynnak

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Reply with quote  #2 
Steve,

We changed doctors several times. Usually because they do not know much about CVS, and /or unwilling to learn what we need to survive. 

I know anticipation about changing doctors.  My son will be transitioning to adult care over the next year.. and the journey that we had to find our current doctor was not a smooth one. But, I try to tell myself that we found a great doctor once.. we can do it again. Not to let the doubt and stress creep in. To just start the fight all over again. We can do it again. 

We have all of my son's medical records, and tests and hospitalizations to share with the new doctors.. I used to call and interview the doctors. That helped weed out a lot of them.

Hope this helps. I'm pretty sure that I know the doctor you are talking about in Bend. Have you asked him if he knows of a colleague closer to you? We did a lot of that too. Sometimes they have meet others through conferences and meetings and may know of someone. 

I too am in California.. I don't know how far you are from Stanford.. but there are doctors there that are familiar. We go to UCSF. It's a trek.. but we go for the care. 

You mentioned that traveling is a struggle for you... it is for a lot of CVSers. There was an article in the last newsletter for travel tips. Hopefully you are a member and got the news letter.. if not there are tips on here as well. 

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jojo2059

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Reply with quote  #3 
Hi Blynda, 

I too live in California and are looking for CVS drs.  Do you have the names of the Drs. at Stanford?
Thanks so much,

Jolynn Bommarito
650-422-8747
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jojo2059

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Reply with quote  #4 
Hi Steve

We are also thinking of changing our dr.  Not because we are moving but because they don't want to treat his aspiration pneumonia right away any more.  So afraid of c dipp.  I had to ask for a consult in Pulmonary to see my son.  He too agreed he needed some antibiotics to get rid of the aspiration could be pneumonia.  He was not getting better either.  All his vitals were elevated but wbc this time??  Anyway good luck with the new dr. I am sure you will be successful.  That is way too many miles to travel.  Be praying for you.

Jolynn Bommarito
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wynnak

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Reply with quote  #5 
Jojo, 

Their are several that I have seen mentioned. It always surprised me because I had contacted Stanford at one time trying to get my son help. We go to UCSF. My son is still in Peds. Stanford was for adults, but I have heard of a couple people going to Lucille Packard for the kids. Some people won't share who their Doctors are so they keep getting the focus from the doctor and the doctor does not get over run with other CVS patients.. I do, but don't understand this. If your getting good care, that is one thing that people need to hear about or experience. There is not a populace of CVS people enough in anyone area to over run a doctor. If I can come across those posts again I will let you know. How old is your son?

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