Cyclic Vomiting Syndrome Message Board
Register Calendar Latest Topics
 
 
 


Reply
  Author   Comment   Page 1 of 2      1   2   Next
thcguy12

Registered:
Posts: 10
Reply with quote  #1 
I know this is kind of gross.

During my wife's CVS episodes she eventually runs out of anything to puke but is still very nausious.  Her abdominal pain is so severe and the only way to make it stop is puking.

It scares me that she is gagging herself with her fingers to get herself to puke up a little more.

I tell her to stop but she says it's the only way to make the pain stop for a moment.

__________________
KB
0
ginny

Moderator
Registered:
Posts: 4,290
Reply with quote  #2 
This is not uncommon for the adults. Please read the Empiric Guidelines on the CVSA web site, the study on adults, and other research or study information.  Adults can present differently than children.  Adults also seem to have more difficulty with delayed gastric emptying.
__________________
ginny CVSA Moderator
0
thcguy12

Registered:
Posts: 10
Reply with quote  #3 
Okay because I want to scream at her to stop it.  Only puke if it comes on it's own.  

I feel like if a doctor saw this they would think she is faking the whole thing.


__________________
KB
0
ginny

Moderator
Registered:
Posts: 4,290
Reply with quote  #4 
Many doctors do not understand about the fingers to gag themselves.  The vomiting relieves some of the discomfort. 
__________________
ginny CVSA Moderator
0
kyunschooler

Registered:
Posts: 39
Reply with quote  #5 
The faking is exactly what we thought with my 28 year old  son's episodes, since he seemed to be trying to retch on purpose, although he didn't use his fingers (we do know about that though, my husband has to do that occasionally due to esophageal dysfunction).  Now we understand it differently.  I still am not clear on whether his fits better with abdominal migraine since the vomiting seemed to be secondary, he rarely required IV fluids, and his blood sugar went high, not low, during episodes.  He too was trying to relieve the severe abdominal pains.
__________________
kyunschooler
0
Cvsintoronto

Registered:
Posts: 3
Reply with quote  #6 
I'm a 42 year old female and I do the same thing. Once I've thrown up everything, I then have to drink water continuously while sticking my fingers down my throat and making myself throw up. I had one episode occur while staying overnight with friends that I hadn't seen in years, and who were unaware of and unfamiliar with CVS. As with most others who suffer, along with forcing myself to vomit, I also get some relief from hot baths. As with most people who have witnessed their first episode they didn't know what to do. Initially they were empathetic but that quickly moved to anger and the thinking that I had mental issues!?! They even threatened to call the police or the mental health association to come get me!?!? All because they assumed that I was doing this to myself since I was forcing the vomiting. What makes it even more difficult is when you're in the middle of an episode (at least for me anyways) it's almost impossible to speak -- you simply don't have the strength - so trying to explain what you're going through to someone else is impossible. I would not wish this on my worst enemy!
0
jmeveringham

Registered:
Posts: 32
Reply with quote  #7 
The gagging is called Inducing. Bulemics do it, so CVS gets misdiagnosed as that. You are correct, doctors see the gagging and think the whole thing is fake.They get very angry.Being able to describe what is going on does not  help one bit. 

Under Research,Fleishers papers, and the Guidelines clearly describe 'guzzle and vomit 'behavior, and the'unquenchable thirst' that follows.Read up!

She is not creating the whole thing with her fingers in her throat.Drink what she wants. I find it better to induce on a fluid filled stomach with carbonation.Dilutes acid, brings it up, reduces pain. I lose the ability to burp in an attack, and my belly bloats. Be good to her.

Do you have a doctor?On the second page of the guidelines is an oral rescue recipe, including a narcotic.Believe her,the pain is bad.If you are not into hot showers, try laying her breastbone ( sternum) on a hot water bottle.

Hospital personnel go pretty batshit over inducing. I ended up in and out of a psych ward for five years,labeled psychotic, for inducing.Good luck!

0
kier5437

Registered:
Posts: 90
Reply with quote  #8 
My mom used to get very concerned when she would see me gag myself as well. Once I brought it to my Drs attention he assured my mom that it was ok. However, I never let an ER dr see my gag myself.
__________________
Kiersten Wood
0
MsMira

Registered:
Posts: 5
Reply with quote  #9 
Wow, I often have to gag myself as well in order to relieve the pain and the nauseating feeling temporarily. It usually allows me a few minutes to rest or take a quick cat nap which is the only time I don't feel the pain. But as soon as I awake, I'm nauseated again ready to throw up again and majority of the time my stomach has already been emptied due to non stop puking. I am usually extremely thirsty so I keep a cold drink near by to sip on between pukes. lol   The drinks also stops the super hard hiccups I get during an episode. When all else fails I bathe, bathe, bathe, hot baths, hot showers, and as soon as I can afford it Ill have a jetted hot tub installed in my home. It is the most therapeutic thing I've found other than having my feet rubbed very aggressively. ( I know it sounds weird)   People who don't understand CVS and it sufferers won't agree with what we have to do to get through an episode, so just try to be understanding instead of angry is what I have to tell people when I have sporadic attacks during the worst times imaginable. My family thought I was faking for years. I'm very paranoid. I feel like I ruin everything. I just hope someone finds a cure. We have to stick together. This is truly a demon we are all fighting & together we can conquer it! Also   whatsup with all the angry doctors and nurses these days. what ever happened to patience? no one even cares to step out the room and google cvs nowadays let alone reading the empiric guidelines that are usually tossed back on the counter in the ER room.  smh
0
jmeveringham

Registered:
Posts: 32
Reply with quote  #10 
Ms. Mira-
Please read all of Dr. Fleisher's  articles, under the Research tab on the website, especially 41 Adults.He  describes Adult CVSers and our peculiar habits and why we do them, very well. When I read it, I knew I had found my tribe.

Consider using hot showers earlier, not as a last resort. They reduce nausea for many people, and slow vomiting so meds stay inside.Our biggest organ is the skin.Give it whatever it wants.Some people wrap up in hot towels, with ice on their head,I have never wanted a hot bath, only showers, and sometimes I alternate with ice cold on the top of my skull.Find your comfort.A student,on a long flight, got her seatmate to rub her feet, all the way home.Follow your instincts.Make it up.You are the expert on this part.

The  biggest help is complete sedation.The empiric guidelines looks lethal to many ER docs, they won't do it, and just won't tell you.They don't know you, and unless you have your own doctor in the room, legally,the ER doc chooses the treatment he wants.

It's his license, his career. They are not stupid, or unable to read the Guidelines.They lay it aside after reading the first page because they aren't going to do it.

Do you have any patient records that indicate you have recieved the IV treatment in the Guidelines and survived? You have a better chance of getting it again,if there is precedent in your records.

Keep your anger here, or vent with friends. Tell us anything, but try not to get mad in the ER.The worst things happened to me when I got mad.
0
Tara_12

Registered:
Posts: 4
Reply with quote  #11 
Quote:
Originally Posted by thcguy12
I know this is kind of gross.

During my wife's CVS episodes she eventually runs out of anything to puke but is still very nausious.  Her abdominal pain is so severe and the only way to make it stop is puking.

It scares me that she is gagging herself with her fingers to get herself to puke up a little more.

I tell her to stop but she says it's the only way to make the pain stop for a moment.

__________________
Tara Destribats
0
Tara_12

Registered:
Posts: 4
Reply with quote  #12 
My husband has CVS and he is relieved from pain by drinking ice water and then puking. The best relief for him is hot showers.  Dehydration and stress are his biggest trigger for episodes.   
__________________
Tara Destribats
0
Lithe

Registered:
Posts: 3
Reply with quote  #13 
I'm 44 years old,and I've been dealing with this for 8 years myself ,I don't gag myself but I can't hold water do intentionally drink loads of water just to flush the bile out ,because getting rid of the bile seems to relieve the pain somewhat.Ice chips ,wet washcloth ,cool environment,a darkroom,& Supportive friends and family that know you're not faking who would ever want to afflict this horrendous thing onto themselves? God BLESS! Lithe
__________________
Lithe Gaudreau
0
Chrisdewhirst1

Registered:
Posts: 3
Reply with quote  #14 
Quote:
Originally Posted by Cvsintoronto
I'm a 42 year old female and I do the same thing. Once I've thrown up everything, I then have to drink water continuously while sticking my fingers down my throat and making myself throw up. I had one episode occur while staying overnight with friends that I hadn't seen in years, and who were unaware of and unfamiliar with CVS. As with most others who suffer, along with forcing myself to vomit, I also get some relief from hot baths. As with most people who have witnessed their first episode they didn't know what to do. Initially they were empathetic but that quickly moved to anger and the thinking that I had mental issues!?! They even threatened to call the police or the mental health association to come get me!?!? All because they assumed that I was doing this to myself since I was forcing the vomiting. What makes it even more difficult is when you're in the middle of an episode (at least for me anyways) it's almost impossible to speak -- you simply don't have the strength - so trying to explain what you're going through to someone else is impossible. I would not wish this on my worst enemy!
0
Chrisdewhirst1

Registered:
Posts: 3
Reply with quote  #15 
I have to gag sometimes just to finish off the episode or abort it after meds such as dilauted have been given. After the last heave the meds immediately hit me and I am ready to be checked out of ER after 10 minutes. Before they treated me for pain I would gag often to relieve it but then the doctors all thought this was in my head and I was inducing my nausea
0
Previous Topic | Next Topic
Print
Reply

Quick Navigation: