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coprhed1165

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Reply with quote  #16 
yes yes yes.....very strange ...the guzzle/puke episodes.....usually i get cottan mouth and get nothing up except clear foam, thick and chokes...do anything to get it up....i would have drank the toilet water like others mention. i also 4got to mention, i get hypersensitive taste, smell and touch rivaled only in pregnancy ...
coprhed

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tanya
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cableguy

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Reply with quote  #17 
When I married my current wife she or I knew I had CVS. She had never seen the vomiting episodes yet. I had been doing well. Seemed like remission. Then we married and moved my CVS came back with a fury. My wife took me to the ER and she seen my using my fingers to puke and needless to say she was horrified. As doctors do the same. Nice to see I am not alone in doing this.
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scooky1

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Reply with quote  #18 
Hi Guys

This isn't funny you know! LOL I got caught sticking my finger down my throut at the ER and guess what- get out faker! I just ran across this  thread and just had to laugh, I had not heard of anybody else doing that, thought I was special ! some way we have to find some fun or at least laugh about what we have (only on the good days maybe !)
Stay as well as you can friends, Steve
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scooky1

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Reply with quote  #19 
RE: jenny's reply
This is not uncommon for the adults. Please read the Empiric Guidelines on the CVSA web site, the study on adults, and other research or study information.  Adults can present differently than children.  Adults also seem to have more difficulty with delayed gastric emptying. __________________ ginny CVSA Moderator
0 I found the only reason for doing this(gaging yourself) is when you get to the part when the wretching and gaging comes to where you can't breath, move,etc it feels better and the pain stops for that short time/moment and it's worth it just for that short moment of no pain and by that time your empty  anyway unless you do the water thing! ever notice they take our water away at the ER, wonder if we crave water for a reason and it would be better to keep drinking ?
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TiffanyJ

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Reply with quote  #20 
I've never replied on here to anything. I usually just read and read and read. This whole CVSA website has been such a savior to me. I've suffered with this for over 7 years, but wSnt diagnosed until last summer. I had never heard of CVS before, so I quickly began my research which brought me here. But this subject, I felt compelled to comment. B/c my husband has wondered about me sticking my finger down my throat too. But like so many others have said, this is THE ONLY relief I get during an episode and it only lasts a few minutes. I have terrible anxiety when my episode begins. And the nausea is so intense and the stomach pains. All of this is relentless until the episode ends. So I am so desperate during an episode(mine tend to last 5-7 days generally). and I'm a small person, so when I drop about 10 pounds or more in just a few days, it's a big deal. I too use to think I was the only one who gagged myself for relief. You just get to the point that you can't take it, and you've got to do something for a little relief. I guzzle Gatorade so I have something to come up. It's all sounds crazy to people who have never been through this, but you just do what you gotta do, b/c it's the most misery you've ever experienced!!(it is for me, anyway) I pray for everyone, b/c this disease has disrupted my life and my family's life so severely, it's terrible!!! I'm currently working with a new dr and am hopeful to find the right treatment for me! This can be so discouraging sometimes!! I've always been a very strong and positive person, and this has wore me down! I'm ready to feel like ME again!! And we can't give up hope!!! I'm so sorry for anyone who has to go through this, and for your families. My heart breaks for my family!! I'd much rather be taking care of them, instead of them taking care of me! BUT we just can't let giving up become an option. As frustrating as all of this can be sometimes. Love to all!!!!
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TiffanyJ

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Reply with quote  #21 
Also, reading back over some of these messages, I realized I forgot to mention that I also have very sensitive senses during an episode. Just like someone mentioned above, I've only experienced this with my pregnancies. Mostly smell and touch, I'd say. I also have bad Hiccups throughout my episode, and I tend to run a fever also. IT ALL JUST SUCKS!!!! Period!!!
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ginny

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Reply with quote  #22 
Tiffany, thank you for posting.  It is hard to know how helpful the message board is if no one posts a message. Its good to know that some are continuing to read the message board even if they are not yet posting messages.
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ginny CVSA Moderator
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TiffanyJ

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Reply with quote  #23 
Ginny, I can imagine. For me, it was just really hard to post, but I'm certainly going to try and get better. I understand the importance of it. B/c for me, your message boards have been extremely helpful!!! Not just as a place to get good information, but also from the very first time I read, it instantly made me feel not crazy and most importantly, not alone! ! To see there are other people who go through the exact same thing I do. I felt like I was reading something I had written myself in so many of these messages. I have never read message boards before of any sort. But these people KNOW and GET what I am going through. And that's a big deal!! So, I can understand how frustrating it must be for people like me to just read and not post messages. I will most definitely work on this[smile]. B/c like I said before, this whole website has been a savior to me, and a big part of that is credited to the message boards. THANK YOU for all you guys do!!!! I can't say it enough!
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ginny

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Reply with quote  #24 

Thank you Tiffany.  CVSA is having an in-person board meeting this week and also a big fund raiser race-- "Run for the Bucket".  We have some ideas to float and Blynda, the other moderator, is off to the meeting and race and looking forward to discussing more support ideas.

There are lots of great almost classic topics in our archives, searches go back several years and if you read meaningful threads, just hit reply and the bottom and type in something as simple as "bump" so that thread becomes live again and does not age out. The threads are kept for a certain number of years and then the site seems to boot them out.

Some classics to take a look at are Smoke Eaters poem "I am CVS"; what is the best food to repeat on-- wish I could recall the actual name but I think KLConner started that thread; dental care. There are lots more that are not coming to mind.



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ginny CVSA Moderator
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wynnak

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Reply with quote  #25 
I used to read a ton on here too before I began to post. Helped me understand we weren't alone in the struggle and others understood. The archives are wonderful! Literally search a word and it brings up topics. It's great! If you haven't already, give it a shot. This isn't the first post about the need to gag for relief. I'm glad your finding a niche here that you can't find other places. We feel the same way.
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Blynda
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Angela1982

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Reply with quote  #26 
I have to do this too. Forcing my stomach muscles to vomit very temporarily takes away the terrible nauseating feeling. The nausea is so bad that it is severe pain for me.
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matts

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Reply with quote  #27 
During my last episode I found myself doing this a lot from the terrible nausea feeling in my stomach. I would occasionally cause myself to throw up to empty what felt like something foreign in my body.
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wynnak

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Reply with quote  #28 
I wonder:

A) If people are not finding the right Anti-emetic for them.
B) They aren't getting an anti-emetic at all.
C) what other ways people have had success in the relief of the abdominal pain. (ie hot baths, heating pads, migraine management, etc)

Seems there is a lot to share here.. Am I the only one thinking this?


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Blynda
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