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sheryl65

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Reply with quote  #1 

  Just about every single morning,, I wake up and pretty soon I am not feeling well, and I get the shivers going. Then off to the bath tub I go,,while I am in there I am fine. When I get out, sometimes  it's cured,, and sometimes it's not!!   I usually puke a few times,, then BOOM,, unless I am in a cyclic attack , I am fine all day, till the next morning!!    ANYONE  ELSE??             


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sheryl longley
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Reply with quote  #2 

I used to get sick every morning too, and off to the bathtub I go....this was a ritual for me, but

then I started MJ and it ceased.  You are not alone!  I hope you will find some relief.

 

Dana

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Reply with quote  #3 
you described me exactly. you are not alone. sometimes mine stops. sometimes it doesn't. when it doesn't i use Stadol Nasal Spray. good luck.
Dylan
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Reply with quote  #4 
morning bath is a ritual for me, i use it to buy time for the meds to kick in & help abort an episode, i come out & leave the water in for 20 mins in case i have to go back in. Has anyone else ever recorded the temp needed for the bath. I find that if the bath water is below 38c or so it doesnt have the same effect, anyone else noticied this ?.
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klconner

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Reply with quote  #5 

I like the water to be as hot as I can possibly take it.  Once it starts cooling off I have been known to drain the tub part way and add as much heat to it as my water heater will allow.


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Reply with quote  #6 

Baths are a ritual for me too, and I too need the water to be HOT or else it is ineffective.

 

Dana

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Antsmom

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Reply with quote  #7 

While at conference in June about CVS, it was mentioned again and again by most Dr.s, the common thread of hot baths/showers by most CVSers.  None offered a concrete explanation why so many find relief with the hot water, but some talked about the possible relief of the abdominal pain from taking away some of the pressure by floating.  Anthony has no classic abdominal migraine, so that didn't fit for us.  My personal theory for Anthony is that the water is so HOT and blood pressure, pulse and respirations go up... maybe gastric emptying speeds up as well, which seems to be the biggest indication of an impending cycle for him.  Just my own thoughts, nothing professional or clinical.  I have mentioned it to a couple CVS Dr's and they nod that it could be possible.  Porta-potties have been invented, so why not porta-tubbies???  Any engineers out there who can develop this product??  I know... I'm one sick puppy....  Anne


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KnDSmith

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Reply with quote  #8 

I am a shower guy, As soon as it hits, I'll puke, then I'll flop around on the bed like a fish outta water, But, if I get in the shower, within 10 minutes of that HOT water raining on me (I have a chair I bring in) I am much calmer, my breathing slows and I am able to sleep, sometimes when I get out it's right back to puking, so I have been known to spend ALL day in the shower. I'll usually take some Phenergan to help the time pass !

I don't know what it is about the shower that makes me feel better, but I do know that for as long as I have had CVS, the shower has been the only thing that has been consistant with helping me feel better.

When I am in the hospital, all's I want is a shower and ice chips. which I usually don't get, (oh yeah, and to GO HOME!)

 

 

Kevin

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Reply with quote  #9 

I actually don't take baths, I actually lay in the tub and let the water run right on my stomach.  If I take a hot shower, the steam will make me very weak, and if I lie in a tub of hot water, I will faint from the heat.  I actually like the sound of the running water as it relaxes me.

I actually wrote a poem during college about being in the water. I wish to share it with you all:

 

Cyclic Vomiting Syndrome by Dana Simmons

 

Knife-piercing pains in my stomach,

Nausea,

Retcing,

Lethargy.

 

This is a life worth escaping.

 

In the tub, as the water showers my body,

I close my eyes and imagine myself

Somewhere else--far away,

Far away from my reality.

 

I'm floating like a stray leaf down a river

Where the sunlight glistens on the surface

Near trees on the shore,

And where the trees dance to the rhythms of the wind.

Salmon sweep up shore

To lay her eggs in the spawning ground

And a father gives his son his first fishing lesson.

 

The running water

Sounds like a river to me now.

I can even hear when the water

Hits against those stubborn rocks.

 

Swish, swish, the water sings to me.

Swish, swish, what a relaxing melody,

Swish, swish, someone please save me.

 

 

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Smokeater42

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Reply with quote  #10 

I used to cycle everyday for 10 yrs til i got on the Voodoo pills (CoQ10 and L-Carnitine after my 3rd month of taking them i droped to 2 cycles per week and last month i've been down to 1 cycle per week

WAHOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO

Heave hoooooo

Smoke

 

oh yea been afew triggers here and there but still much better


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When you have CVS life is one puke after another
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dowdd

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Reply with quote  #11 

Hi Dana, I loved your poem. It says alot about what goes on in a person's mind and body while in a cycle. If every person with CVS would just be "understood" by others how much simpler their life would be. Thank you for sharing.

 

Sincerely, Deborah

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shny31

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Reply with quote  #12 

Glad to hear you are doing better.

Sharon


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This is one of the reasons we suffer-to be prepared to bring encouragement and comfort to others who come across our path enduring a similar situation Remember that!'For Those Who Hurt'
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Reply with quote  #13 

Hello all,

I am a deffinant shower guy. Hot as I can stand it. I tried baths, but they did not seem half as effective. My only problem is I have a very small hot water heater.They have those constant flow hot water heaters but they are so darn ex$pen$ive. (I can not afford living on disability.)

 

Mark

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Reply with quote  #14 
Running water is water works for me. I sit in the tub and just watch the water fall. As soon as the bath tub is filled, the bath does me no good. I guess the sound kind of hypnotises me and I forget my miserey for a while. Loved the poem!
-Alyssa

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sheryl65

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Reply with quote  #15 

I have been taking 3 ativan,, 2-3 hours before waking up.. (my beloved hubby) gives to me in bed. SO  far So GREAT!!!!   Not getting up sick every morning for the last week!!!   Anyone else might try something like this!!!    Working for me---Sher


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sheryl longley
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