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Reply with quote  #31 

 I AM A NEW MEMBER OF THE CVSA COMMUNITY.  I HAD FUNDOPLICATION SURGERY FOR BARRET'S ESOPHAGUS OVER A YEAR AGO. UP TO THAT TIME THERE WAS A GREAT DEAL OF VOMITING. SINCE THE SURGERY I NO LONGER VOMIT, BUT HAVE HORRENDOUS RETCHING. THIS ONLY OCCURS OF A MORNING. MOST TIMES BEFORE I HAVE BEEN UP VERY LONG. IT COMES ON SO QUICKLY THAT THERE IS NO TIME TO RESPOND TO ANYTHING. I HAVE NOW BEEN ON ZOLOFT FOR ALMOST A YEAR. THE EPISODES THAT WOULD COME & LAST FOR DAYS HAVE NOW CALMED DOWN TO ANYWHERE FROM DAYS TO SOMETIMES A MONTH. IT TOOK ZOLOFT ABOUT 3 MONTHS TO BEGIN TAKING EFFECT. WHEN I HAVE AN EPISODE NOW I TAKE A XANAX & GO TO BED. THIS IS THE ONLY THING THAT HELPS. IT I DIDN'T HAVE THE XANAX, I WOULD END UP IN THE EMERGENCY ROOM. THESE EPISODES LEAVE COMPLETELY WIPED OUT. SOMETIMES FOR TWO DAYS. BUT, THEY ARE BETTER THAN THEY WERE. BUT FROM THE SOUNDS OF MY DR. THIS IS PROBABLY  AS GOOD AS IT IS GOING TO GET. I AM NOT WILLING TO EXPERIMENT WITH ANY OTHER MEDICATION FOR FEAR OF GOING BACK TO WHERE I WAS IN THE BEGINNING. A HOT BATH OR SHOWER WOULDN'T DO IT FOR ME. I HAVE TO SLEEP. I WILL SLEEP FOR SEVERAL HOURS THE DAY OF THE EPISODE & USUALLY AT LEAST 12 HRS. THAT NIGHT. I STILL HAVE BOUTS OF THE SHAKES, RAPID & IRREGULAR HEART BEAT, NAUSEA. DOES ANYONE HAVE ANY OF THESE SYMPTOMS WHERE JUST MEDICATION & SLEEP ARE THE ANSWER?     JUST59

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BDavis

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Reply with quote  #32 

Welcome to the board!

 

Sleep is the only thing that will abort a cycle for me.  Hot baths do not work for me, but cool cloths help make me more comfortable until I can eventually fall asleep.  I think that is the way it works for quite a few CVS patients...we find ways to make ourselves comfortable (as comfortable as we possibly can be while in a cycle!) until we finally get some useful deep sleep.

 

-Britt


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klconner

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Reply with quote  #33 

Welcome Just 59,

 

Sleep is the answer for me.  I have medications to try at home.  If I catch things  in time they will be enough to let me sleep off an attack.  Once the vomiting starts I am pretty much looking at a trip to the hospital where they use IV medication to get me to deep sleep.  Otherwise, I take some meds to prevent or lessen the frequency of attacks daily and find comfort wherever I can during an attack.

kate


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Horanimals

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Reply with quote  #34 

Just59~
Welcome to the board.  For Riley too, sleep would be a dream, often he'll just keep going until he finally gets that good long sleep along with medication.

While I'm happy that the vomiting has subsided, I'm sorry to hear you still have the nausea and wretching since your surgery.  There are a few members here who have had that surgery as well...but I'm at a loss to what the details were for them.  Maybe you can do a search here, and read through what the others have said.

Glad you found us.  Ask questions, vent, share...we're all here for each other!!!


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Kaye

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Reply with quote  #35 

My experience is much like Kate's. I have lorazapan and phennigan (spelling?). If I take them quick enough and fall asleep, I can abort the episode. Once the vomiting starts it requires a trip to the hospital. When I go to the hospital it's for IV fluids/medication and because my blood pressure skyrockets. Sometimes I loose heart function. The doctors said my cardiac enzymes show that I've had a heart attack, but when I took the stress test everything was OK and the same doctor said I didn't have a heart attack. I've had several heart catherizations which show no damage or blockages. The CVS information says that adrenaline gets released. This might be what is happening to us.

 

Kaye

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Reply with quote  #36 

Ms.Kate has summed it up for me. Just reread her last post and pretend I said it too. Plagiarism!

=-)

Mark

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Reply with quote  #37 
Quote:
Originally Posted by BDavis

 I would take an ice bath if I could!  Does anyone else get warm while cycling??

One thing I find interesting is that when I am cycling I run a low temp. (at most 96.5), and it seems that sometimes the people who like the heat while cycling run a mild fever.  I think there is probably an explanation for that, it is just a pain in the butt to find the answer.

 

-Britt

 

if i get too hot, i automatically start cycling.

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Reply with quote  #38 

Bitt, That's very interesting. I never run a fever when I cycle, unless I have some sort of infection causing the cycle. I also like to be slightly cold, definitely not hot, when I cycle. Heat will just make me feel worse and light-headed. We should take a poll.

-Alyssa

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MiamiLargo

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Reply with quote  #39 
Hi Sher,
I'm responding very late (12+ years late!) but I'm wondering if you are still taking the 3 ativan every day and whether this works for you still?  Any issues with building up tolerance?
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wynnak

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Reply with quote  #40 
Ativan is still used for cases of CVS. I would wonder what the dosage of her 3 ativan were. That isn't even used on Cancer patients that are in hospice. That seems very high even if it was only *mg. She may have been taking it for some time to develop a tolerance to it. 

Ativan helps with the stress and anxiety. Or in my son's case, we used it to knock him out for 20 plus hours to try for brain resetting, under observation in the hospital.

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