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dandan

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Reply with quote  #1 
Has anyone ever tried glutathione for CVS? 

I've posted here before.  My son's vomiting is triggered mostly by foods (high histamine foods/migraine triggers, dairy, fructose>glucose, etc.) and, I think cold (cold fronts, cold swimming pools).  Sometimes he's more sensitive, sometimes less.  He also has periods of blinking and anxiety.  We've been able to get things reasonably under control by focusing on histamines, avoiding high histamine foods, dairy and certain fruit and having him take Epsom salt baths and sometimes NasalCrom (mast cell stabilizer).

We recently decided to try a glutathione cream (and NADH, to recycle glutathione), on the theory that if the Epsom salts were so helpful and they help your body detox through sulfation, maybe this was all a broader detox problem.  It has helped tremendously!  To the point where the past few weeks he was eating and drinking everything and feeling totally fine. But he had also started a new multivitamin a few weeks before that, so we weren't sure whether it was the new multi that was helping him or the glutathione/NADH.  Then he got a rash and thought it was because of the glutathione cream, so we stopped it (and the NADH).  He was fine for a few days, then the blinking started up again and then the anxiety.  No vomiting, fortunately.  So we started up the glutathione cream and NADH again, and he seems to slowly be getting better again.

Has anyone else ever tried glutathione and found that it does or doesn't help with their vomiting?
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ginny

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Reply with quote  #2 
I don't know about this but I am forwarding this treatment plan to the CVSA office.  Maybe the research committee has some background to respond to this treatment and what it might mean for CVS.

Thank you for letting us know what your theory is and how your child is responding.

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ginny CVSA Moderator
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wynnak

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Reply with quote  #3 
Thanks, Ginny.

I've seen people do well with the histamine diet and the epsom salt baths, and some not respond at all to either. That is my kid. He's just like me. I didn't have a good response to glutathione when I tried something my FIL was hawking as an anti aging cream which is what the glutathione is supportive of. We lose it as we age. So I probably would not try it on my son due to my reaction. Have you tried quinine? For the blinking? My son did have "muscle twitches" that the quinine helped with while he was growing. But if he is spaced out blinking.. that could be a neurological event and he should be evaluated by a doctor for it.. especially if you notice they last longer or are happening more frequently.

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Blynda
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abigaillinda

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Reply with quote  #4 
My daughter uses a compounding pharmacy that makes a vial of glutathione, and she inhales it with a nebulizer.  She says it does help her feel better, but it has not stopped the vomiting episodes.

The functional doc believes that the glutathione is pulling toxins from the cells into the blood, and now my daughter needs something to pull the toxins from the blood and out of the liver (her LFTs are always mildly elevated).  To pull toxins from the blood and out of the liver, she has tried activated charcoal, EDTA (which she did not like), and alpha lipoic acid.  Again, she still has vomiting episodes.

As of March 30, my daughter stopped all supplements, only used amitriptylene and norethindrone (progestin BC)... and still had an episode.

So in summary :-) she does feel better between episodes when she uses the inhaled glutathione but still has vomiting episodes.
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ginny

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Reply with quote  #5 

For the hormone approach, when we were doing a lot with hormones the majority did not handle most forms of progesterones.  

I don't know about the functional doctor and those theories. 


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ginny CVSA Moderator
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wynnak

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Reply with quote  #6 
I can appreciate the "we will try anything" approach to getting the CVS to ease or stop. We have gone "off menu" for lots of things. We use pressure points, pressure bands, essential oils.. But, I am with Ginny. Those ideas sound a bit far fetched for me.. and I have tried some pretty unique approaches to my own health issues.  We keep a very open mind about things. Or we wouldn't be talking about Progesterones versus other types of Birth control..  it is about learning.. at one time we Learned, the hard way, that they were just throwing medications at it and making my son sicker.. but it took a different doctor to figure that out. SO, we have to be wary at the same time. It's good to keep an eye on everything. But not focus on any one until you have given them all a good review... do you know what I mean? Anything that I put on my.. I'm questioning this as a trigger list.. stayed there until it didn't trigger him for 3-4 different episodes. It was the same for adding them.. It took multiple times of seeing them for me to add them to his list of possible triggers. I hope you are letting her treating physicians know of things that the functional doctor is trying.. so there is not interaction. Sometimes just an increase in a vitamin can cause a reaction with certain types of medication. 
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Blynda
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ginny

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Reply with quote  #7 
I am ok with the functional doctor, I just don't know anything about this arm of medicine.  In fact I have a cousin who is descended from a long line of "healers"-- she does not practice but I think her mother did and all the way back into time.  She uses natural remedies for most everything but also knows when she must have traditional approaches.  She seems the picture of health and stamina and is over 70.
I don't have any background in chelation or that approach to health.  

I do recall the females who did not do well on progesterone.  I was told that there are different forms of progesterone.  Maybe some work and some don't.  I can recall a few females doing well on the depo shot and more who did not do well.  I guess CVS is just so different for each person that it is hard to know what works and what makes things worse or if the treatment that works just happened to be started at the same time CVS was taking a break.  


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ginny CVSA Moderator
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