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MumOfCVSdaughter

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Reply with quote  #1 
My 7 year old daughter has been having vomiting episodes for a few years but in the last year it escalated to the point of having episodes twice a month, once she starts throwing up she doesn't stop for days, usually until she's so dehydrated that we end up in the ER.  She always has an attack when she catches a cold and sometimes for unknown reasons. I only just got told she most likely has CVS, they ran a series of blood work and did a CT scan which all came back normal. The doctor now has me stocked with Zofran thank goodness because those little miracle pills seem to stop the throwing up in it's tracks.  I'm happy to have found this website and see I'm not alone. It's so stressful watching my little one suffer.  All tips and suggestions are welcomed! 
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keely hawkes
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Shellly

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Reply with quote  #2 
My heart goes out to you , it must be horrible to see your poor daughter go through this .
I've had CVS for 33 years , and my family do suffer because of this .
Let's hope your daughter grows out of this , she's only young , fingers crossed that she does.
Rest as much as she can , keep her fluids up ,
Thinking of you and your family.

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wynnak

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Reply with quote  #3 
Welcome Keely.

Have they tried any other type of preventatives for her? Not just the zofran either. Or the mito cocktail? You can find info on the main website for that. But if her episodes are increasing, maybe they need to consider that. I would also reach out to the UK CVSA group for info and family day that can be helpful as well. http://www.cvsa.org.uk is their website. We all have different draws, but they may have doctor info for your area. There are several people on the message board and we have had some participate in the Support calls too. Making sure you have all the tools 😉 

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Blynda
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MumOfCVSdaughter

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Reply with quote  #4 
Thank you so much for your responses I haven't heard of the mito cocktail so I will do some research and thx for the fluids tip.  Her pediatrician tried Loratadine daily to see if allergies could be a trigger but she had an episode on that. Then hydroxyzine still had an episode, then Cyproheptadine all I think antihistamines.  We're waiting to get approved to see a GI so I'm hoping they'll may know more about it. I will look up that UK website thank you.  I was born in the UK but have been living in the USA for 20 years. Really appreciate your support :-)
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keely hawkes
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wynnak

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Reply with quote  #5 
My mistake on your location. Although, I am on the CVSA UK site as well 😉 The more you know right?

CVS Patients can have histmine issues. Our doctors have pushed the Low Fodmaps diet for this reason. We don't follow it 😉 

My son does struggle more during high allergen months. Like right now when the trees are starting to bloom here. The pear trees. They are awful. He has regular allergies and those are hard for him. So it is just like getting a cold or virus and can set him off. Sometime he has to miss a whole week of school when those trees are their strongest. The smell is just awful and the strong scent gives him migraines and can set CVS in motion. He takes the allergy meds then. 

Is your daughter growing right now? In a growth spurt? I know that was when my son's episodes would increase. It seemed harder on his body.

Search stuff like those in the archives here and see what you find. So much information here.



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