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Smokeater42

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Reply with quote  #16 
Thank ya, That my puke buddy always there for in an attack
Heave hoooooo
Smoke

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bdlogan

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Reply with quote  #17 
Smoke, you're my puke buddy at times! Love talking with you brother.
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Smokeater42

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Reply with quote  #18 
How ya doing ???  I've been puking everyday  since Dec, I THANK GOD I HAVE HIM  or I'd never make it though this tough time  ^5's bd
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marsha2123

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Reply with quote  #19 
Hi Smoke,

My daughter is 26 yrs. old and started vomiting really at age 21.  She was also diagnosed with POTS. Her daily symptom is nausea.  She has found that a RX med for nausea does not really help.  She has found that vaporizing pot is the only thing that has helped her.  But as her mother, I am concerned for her lungs for he future.  And a few docs feel that this is really making her symptoms worse.  She has had 3 bad vomiting episodes this year that lasted for 12 or so hours.  I was told that you may be the person who takes marijuana oil sublingually and that has helped you with nausea and vomiting.  We live in Florida where it is not legal.  Do you live in a state that it is legal?  And how has the oil helped you? She is very petite...5'3" and weighs 110 lbs. How much of the oil should she take and how do we get it? Any ideas?  Thank you so much for your help.

Marsha

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Marsha Wright
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Smokeater42

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Reply with quote  #20 
Hi ya,  yes I am on MMJ oil, before the oil, I was having a CVS attack 3 to 5 times a week lasting 14 to 19 hrs straight, I did this for 30 years,now I only have an attack about once a week, a walk in the park  my CVS Specialist Doc F wanted me on it for that whole time, it just because legal this last Jan. I have been on it since June, its been a blessing from God, I take a half an eye dropper full 3 times a day, You need to do your research, everyone is different,  many states who require dispensaries have a doctor on site that can help you , the last research I saw on lungs was that there was no damage to the lung by either smoking or vape
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marsha2123

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Reply with quote  #21 

Hi Smoke,

 

Please forgive me...but what does "MMJ" stand for?  Also what state are you in?  We are in FL and it is not legal here.  Is there a way to get this when it is not legal in the state?  So now that you are on the oil, how often do you get a CVS episode?  My daughter has had 3 this year so not as much as you. But the duration is almost the same and it wipes her out and hard to keep weight on her.  Plus she gets horrendous upper abdominal pain and THAT is almost unbearable for her.  So would love to see about trying the oil especially since no side effects, right? Makes sense no bad effects to the lungs...but are there any other side effects that you have read or discovered for yourself?  I thank you so much for answering my questions!

 

Marsha


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Marsha Wright
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Smokeater42

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Reply with quote  #22 
Medical Marijuana  (MMJ), as I said I was having 3 to 5 CVS attacks a week and now just using the oil I am down to just once a week CVS attack,  its still illegal by the Federal Government so unless you live in a state where its legal, you can't get it legally and even in a legal state if you take it out of state or onto federal land and the cops find it you can be arrested, I also use the MMJ pain caps for the pain, I was on such high dose of Oxy, Fentynal patch, morphine and diloted, , I had 6 Doctors say I needed to be on it, or I'd die, I haven't found any side affects and no one has ever died from an OD on it, unlike pain meds and I got off 22 CVS meds
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ginny

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Reply with quote  #23 
Welcome back Smoke! We have missed you.  Such good news that you are doing better.
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ginny CVSA Moderator
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marsha2123

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Reply with quote  #24 
Hi Smoke,

I too am glad you are feeling better and want to thank you for communicating with me about my daughter.  Since we are in Florida where it is illegal we will have to keep searching for things that will help her.  Thanks for all of your help!! Marsha

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Marsha Wright
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Smokeater42

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Reply with quote  #25 
Marsha  I heard Fla is looking good for passing the medical MJ  don't give up hope yet,  fight for it, that's what I had to do in NH
Good luck 
Heave hooooo
Smoke

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Smokeater42

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Reply with quote  #26 
Thanks Ginny,  its been an AWESOME year, I went from having CVS attacks 5 days a week and ince being on MMJ oil I am back down to once a week, a walk in the park after the last 2 years, sorry I haven't been around  but I have been out doing things I haven't done in 25 plus years
WAHOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO
Heave hooooooooooo
Remember folks  We are the Few,,The Proud,, The Pukers, so puke with pride
Smoke

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marsha2123

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Reply with quote  #27 
Hey Smoke,

I will let my daughter know.  I just voted absentee ballot to get my ballot in!  I will pray for it!  Thanks again for all of your help and I hope you keep on getting better!! Kind regards, Marsha

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Marsha Wright
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MannionUSMC

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Reply with quote  #28 

Hey Buddy,

Glad the MMJ is helping so much brother. Still a struggle and crazy expensive out here for the state legal stuff (also right near the Casinos which never crossed my mind until a nice lady mentioned how her son had to drive her because of a gambling problem, horrible).  I also almost crashed a bunch because it's on the most dangerous road in the state for 2 hours to get there, but hey maybe that is their plan to get rid of some of us.

I have dropped off the site and been too sick too.  Just saw you typed something so letting you know I'm still breathing.  Waiting for the day they cure mito illnesses (gotta be in the next decade, I can do another decade not sure if the body can). 

Bunch of docs today.  Be well. Good to hear from you.

Mannion

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bdlogan

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Reply with quote  #29 
Smoooke! I had a good run also... well now I'm at 2 to 3 attacks a week now. I'm in prodrome right now. Out of meds and funds to get meds. Haha. Glad you're doing better. I'm going to give the ol heave how right now and try and smoke to see if it helps. I'm desperate these last few days.
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Smokeater42

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Reply with quote  #30 
Hi ya  THATS AWESOME NEWS  BRAVOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO
KEEP IT UP, I was at 5 days a week for 2 years, then in June Thanks to Doc F my CVS Doc in Boston and a few other Doc there and my PCP and Pain Clinc Doc and 3 others 8 in all I got on the State MMJ medication program, THANK YOU GOD, I have gone down to 1 day a week and I have even gone 4 or 5 times  2 weeks without an attack, I take 1 eyedropper full 3 times a day, in 27 years of having This illness from hell I have NEVER gone more than 3 days without one, I am going out and doing things I have done since I got Dxed with CVS, I take the oil and the pain caps and nope I don't get high  Major smiles and it WORKS GREAT, my reg. meds i'd always puke back up so they did no good
CVS isn't a MAJOR problem for me anymore  THANK YOU GOD & THE STATE OF NH  now we just need President Trump to make it legal in all 50 and from what he has said he's going to do it,because he said he has seen what it can do for folks
KEEP UP THE GOOD WORK, this is just a minor set back no biggie, your doing AWESOME
NO PUKING !!!!!!!!!!!!!!
Remember   We are The Few ,,The Proud ,, The Pukers, so Puke with PRIDE
Heave hoooooooooo folks
Smoke

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When you have CVS life is one puke after another
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