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Shellly

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Reply with quote  #31 
I'm not on Facebook.
But the verses you have posted are so good, and so true . It's good if you can turn all this sickness around and bully the problem.
When I wake up in the middle of the night I know it's going to start , but if I wake up in the morning I know hopefully I'll be ok until the next night.
Take care

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Smokeater42

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Reply with quote  #32 
We all have our ways at beating this illness from Hell , mine is music and making fun of CVS, to me if I can make fun of this GOD AWEFULL ILLNESS, it makes me feel as if I've beaten it abit, I also use music, it calms me down.
That's what we all need to do is just TRY to find a way that each of us can in our own way can find a way to make fun of it, bully it lie it bullies us, Then we all feel like we've beaten it, Even when I hear a way that someone else has found to beat it, I feel as if I've also beaten it again because I learned of a different way, I am on Facebook because I had a lot of other intress that I like Expecally Motorcycle riding, THATS MY BIGGEST WAY TO BEAT THE MONSTER, if I can I go for a ride on my Harley, I have even learned to puke on it and make it look like I am just checking my oil.  So just fid your way to beat it  And BEAT THE HELL OUT OF IT !!!
Remember We are The Few, The Proud, The Pukers, So Puke with PRIDE !
Heave hooooooo folks
Smoke 15380772_1259610397395127_7321475105232457745_n.jpg 


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Shellly

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Reply with quote  #33 
My goodness Smoke , you do so well , with going out for a ride on your Harley , I can't even get out of bed when I feeling sick , I wish I had your strength, but the nauseous is so strong I can't seam to do anything, I even find it hard to talk within a few minutes of me being ill .
You do very well I must say .
Take care

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Smokeater42

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Reply with quote  #34 
We all find out which way is best, my nausea is GOD AWEFULL too, THERE IS NOTHING WORSE IN THIS WORLD THAN NAUSEA !!!!! My vomiting is VERY Violent , its normal for me to pull or tear muscles during an attack and I have torn my throat soooo many times that food and fluid won't go down unless I bring it back up and swallow it 8 or 9 times before I get ti down, my CVS Specialist wants to wait till nothing goes down because its a one time deal widening the throat, and I don't know how long I have left and don't want a feeding tube so i'll wait  BUT the nausea is WORSE you can't get away from it, so I force myself too go ride and when I am on my bike riding, the wind the smell, the feel  NOTHING LIKE IT IN THE WORLD so I just go off into my own little world and if I have to puke if I get a warning I pull over if not sorry folks behind me  BUT ohhh well, and TRUST me I have wicked projectial vomiting, in FACT I fired EXPERT !! I can hit a Nurses shoes at 25 feet !! they hate getting there shoes messed up  BIG GRINS, I just smile and say still don't believe in CVS ??  hehe  We all need to find a way to live with this monster and this is just my way BUT IF WE DON'T the monster wins and I just can't let that happen, I didn't die when I was wounded in Vietnam when they thought I would and I didn't die in that fire I was fighting and went through the floor and they thought I would, so I just CAN'T LET CVS WIN !!! that be a salp in my face and every other CVSers face that are doing it, I have had this Illness from Hell for almost 30 yrs now, you'll find a way
Heavo hooooooo folks
Smoke 

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Shellly

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Reply with quote  #35 
My hat goes off to you Smoke, your such a strong person and someone to look up too . I've had this horrible monster for 33 years but only diagnosed with it last June , my local hospital don't seam to know anything about this , it was only by luck a lady consultant was in the hospital last June and she said I know what she has . It it wasn't for her I'd still be no wiser what I had .
I've been in and out of hospital for 33 years and I haven't seen the same consultant twice , I get moved to different wards all the time , I was in hospital a week ago for 6 days and I got moved 4 times and each time I see a different consultant, how bad is that . But never mind I'm still here and still strong.
Take care

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Smokeater42

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Reply with quote  #36 
Ohhh  I know I am lucky I have the BEST CVS SPECIALIST IN THE WORLD !!! and I OWE IT ALL TO OUR GINNY, she got me intouch with her, I got this illness fighting a fire, I was in charge of a Ladder Company and we had to search above the fire at a hotel, we had gotten 5 or 6 folks out when we were searching a room it let go and dropped us into the fire, one firefighter was killed in the fall the rest by the time they had found where we were we had been out of good air for over 45 mins, we all spent time in Boston General Hosp for smoke and other injuries, it took 10 yrs to find out what it and that was by accident, I saw cyclic vomiting on a search I was doing, after so many yrs of this crap you just kind of key into words like vomiting, so I clicked the link at first I thought the GI Doc was trying to get famous by putting what he couldn't figure out, he wanted to remove 3/4's of my stomache, I found that the site CVSA was a lot of people doing the same thing  GINNY ANSWERED MY CALL FOR HELP  our own CVSA Angel and got me to the person who could help, It took about 6 years of trying different meds BUT none really worked, they helped but didn't stop it and my 2010 I was up to 5 days a week for 12 to 19 or more hrs of VERY VIOLENT vomiting, The ER is used to me now, I have ER Orders and Admitt orders because she is so far so my ER now has my meds ready, was always like that I was in the ER every week for many years, then with her help and the help of 5 other Doctors they got me on cannabis, I take the oil for the CVS and I use the wax and caps for pain, now I am sow to just once a week a walk in the park from before, it hasn't all been as easy as now, just ask Ginny what I have been through, I was my Specialist BAD BOY for many years and still am she has one that's 2 a monthand many more that very,  BUT keep FIGHTING YOU CAN'T LET THE MONSTER WIN !!!!!!!!!
, for every CVS monster we screw over a CVSer get there wings
Heave  hooooooooooo folks
Smoke

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ginny

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Reply with quote  #37 

Smoke, you are too kind as always.  Memories of how sick Smoke has been yet remained able to believe, lifted up others, and kept working hard with testing and doctors and his very own stubbornness 😉 to find his answers.

Smoke is my barometer in the challenges of life.  

He never fails to help someone in an especially difficult time.  Smoke is not often on the message board which is good as often those who are not active are actually doing better.

Thanks Smoke for jumping in.  So happy to see "I am CVS" bumped back up on the MB.  I worry it will get buried in the archives.

There was a Christmas poem and song too-- should try to dig that up and keep it going.


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ginny CVSA Moderator
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Smokeater42

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Reply with quote  #38 
Hi ya Ginny  my own CVS Angel,  yea I need to find the Christmas song and poem  EVERYONE did AWESOME making those up, We're all family here and if family can't help who can ??? We have to help each other or many times there is no help, I know with what I went throught trying to find answers wasn't fun at all and more dead ends than ones to follow and if I can help someone not make the same mistakes I've made along the way then its all worth it,  AFTER WE'RE ALL FAMILY HERE
Remember We are The Few The Proud The Pukers so Puke with PRIDE
Smoke out

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wynnak

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Reply with quote  #39 
And here I thought the Mallory-Weiss tear was bad.

Rest up. Still fresh owwie!

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Blynda
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Smokeater42

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Reply with quote  #40 
10371475_859941787361992_2909727839695171577_n.jpg  10574432_10204528624643893_8427179887154174044_n.jpg  10882370_10205975768696414_2922619981111124229_n.jpg  10999631_10206182962876139_2433789560230119898_n.jpg  11054349_10206318991196762_1132139030521194303_n.jpg  11050658_1048859395143040_7739835272960679276_n.jpg 

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ginny

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Reply with quote  #41 
Powerful poems from Angie.  Miss her on the MB.
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ginny CVSA Moderator
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Smokeater42

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Reply with quote  #42 
Ginny I think you are think of Angie Angie Higgins Moore  The Angie above lives in England,  our Angie who used to be on here, I still talk too all the time and GINNY SHE IS DOING AWESOME, she and her Hubby just moved to Org or Washington always get those 2 mixed up for some reason, guess because those 2 are 2 of the place I never been stationed hehe and her CVS is undercontrol so much she hardly notices it,, its AWESOME
Heave hoooooooooo
Smoke

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Smokeater42

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Reply with quote  #43 
Thanks Shellly I didn't get your reply wonder why ?, Good job with the puke name, I am The King of Puke  hehe
Remember  WE are The Few,, The Proud,, The Pukers So Puke with PRIDE
Heave hooooooooo
Smoke

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wynnak

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Reply with quote  #44 
Ginny, those are all off the CVSN page, or the page that they added for posters. Angie Crooks.
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Blynda
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Shellly

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Reply with quote  #45 
Yes I like my puke name Smoke,
Hope your ok ,
Take care

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