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Jpbooth1

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Reply with quote  #31 
I tried acupuncture for about 6 months. 3x's a week. Expensive and not covered by my insurance at the time. The experience was a good one.

For me, Acupuncture was great relaxation. Better than a massage. Quiet room, pleasant smells, after they applied the needles, they left me to rest for about 30 minutes. Felt better and more at peace, but it did not have any impact on the CVS. I would try it if you can. If nothing else, it may help overcome some anxiety and stress for a short time. It certainly validated acupuncture for me.

If it was covered, I would probably do it post-episode to relieve the muscle soreness and help the recovery. As an older guy, it takes longer for the muscle aches to go away.

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John
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jdaviekess

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Reply with quote  #32 
Hi everyone,

I'm a 33-year-old woman and began to notice symptoms of CVS about 3 years ago, in conjunction with the appearance of Crohn's Disease.

I've been able to keep my CVS in check until now -- I'm about 7 weeks pregnant and have been having far more bouts of nausea/vomiting. I think run-of-the-mill morning sickness sets them off. 

This is a scary time for me, but I'm thankful for finding this community.

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Jesse Davie-Kessler 
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ginny

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Reply with quote  #33 
Welcome Jesse.  If you have not been officially diagnosed with CVS, please be sure that your doctor investigates other possible causes of your symptoms.  As you know, CVS is a diagnosis of elimination.  

I am sorry that such a joyous time is marred by CVS attacks. That plus morning sickness must be miserable.  Other members have had similar experience, try searching the archives.  I hope you soon feel much better and the CVS episodes lessen.

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ginny CVSA Moderator
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TheLorax

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Reply with quote  #34 
Welcome to the group, Jesse, I'm glad you found us. [smile]  There are a lot of ideas here in the forums.  I hope you are able to get to the bottom of yours. 

Just as an update on my son, he actually had a pretty good day yesterday and went on a bike ride without it triggering his retching. He and I both are hopeful that this 2+ month bout may finally be ending.  Fingers crossed. 

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UNLESS someone like you cares a whole awful lot, nothing is going to get better. It's not!
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matts

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Reply with quote  #35 
Hello,

I'm a 23 year old male who has suffered with symptoms of CVS since I was 3 years old. I've been misdiagnosed with so many other things until I recently discovered CVS on my own while doing research on my symptoms (I kept coming across GERD).

I'm generally an anxious person, and I have a family history of anxiety. I am the only one with CVS though.

I recently had a really bad episode that started over a month ago and is just now starting to calm down. I am taking Prozac now to try and combat the anxiety for recovery, but have been fighting some side-effects of the Prozac, too. I hope that Prozac is the right choice long term, because these side effects are miserable now.
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wynnak

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Reply with quote  #36 
Side effects are sometimes just as bad or worse than why you are taking them. If you can make it through the adjustment period.. Let us know how it works on the CVS side of things for you.
Anti-anxiety treatment can be helpful for sufferers. 
Have you taken the CVS info to your doctor to get a diagnosis? Adult guideline are in the works. That should prove to be very helpful for our adult sufferers and bring more attention to CVS. Keep an eye out for them. Or get on the email newsletter list. I suggest actually joining as a member for the more comprehensive information.. there is a discount, on membership fees, going on right now.
We're glad you found us for support.

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Blynda
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matts

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Reply with quote  #37 
I brought the info to my doctor and the doctor had heard of CVS and agreed that it was most likely what I was suffering from.
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Nomad63

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Reply with quote  #38 
Hello everyone im Robin until this tuesday i had never heard of C.V.S .On Saterday i finished cleaning the entertainment complex that i clean with my partner nick ,it was around 9am i was a bit sweaty as hoovering hits about 3000 cal a hour and had done the last 4 hoovering.opened the fire doors breeze came through sunny morning took a swig of water....
And then that single drop from that swig that u know it teleported me to that place that u all know,that place until tuesday i thought i was alone in,that place for 20 years i thought somehow i had through madness some how inflicated on my self.
Then it was Tuesday & still inside
that grip stomach torn howling for sleep just sleep rest sleep rest please sleep rest.And then i heard Nick call ive found it ,what you got everything is the same as yours .My Anchor went down im sure them words help pull me back you know that place when it ends its like pulling up in the quietest Rolls Royce the calm of normal life coming back.And now it is thursday ,on purpose i have not yet read any thing about C.V.S , but id say hello and say how sorry for everyone who have multiples per annum i only have one or 2 per year i send you my strengh every full moon
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Nomad63

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Reply with quote  #39 
Any how the first time i did not end up in A&E was This Tuesday & to me that means in real terms the realization that im not wrong there is something & that u r all there tears ,the realization that to hear of you all helped pull me out means we can help each other ,i dont know i think when im in there if i could hear people or read msg could that help pull me out i m only saying this its the first time i aint been up A&E it must meen something colectiveley we must learn
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TheLorax

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Reply with quote  #40 
Welcome to the group, Robin.  I'm glad you found us. Hopefully you can find information that can help you here.  

I'm also Robin. [smile]  My son has CVS and while I don't understand the suffering first hand, I do totally understand the relief in finding out you're not alone. My son has had an ongoing bout since early April.  Thankfully it seems to be getting better at this point and kind of fading away. 

Anyway, there are good people here willing to listen. [smile]  Take care of yourself.

Also Robin aka TheLorax

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UNLESS someone like you cares a whole awful lot, nothing is going to get better. It's not!
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Nomad63

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Reply with quote  #41 
Thanx , On a lighter note my Nick has been able to phone her mother & say Mum do you remember at your wedding to Peter ,Robin was found under table looking scary howling "it wasnt Robins fault he has C.V.S.'
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Helpme2011

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Reply with quote  #42 
I am new and certainly hope I'm in the right area. Anyway my name is Bill and I have pretty good health the only problems I have are migraines, occasional kidney stone, IBS and then this which I must say is crippling.
For me it started when I was 43 I made a bad choice and went to a wedding of a woman I loved very much, well that caused me stress I guess cause 2 days later I was on the midnight shift at work and I must have vomited up to 6 times in that 8 hour time frame, I even remember while walking a mile home, cause I don't drive vomiting on my wat home, that was very humiliating, I went to the hospital and they found nothing and gave me nothing.

In 2013 I had a worse episode it lasted a entire day and I must of vomited up to 20 times, I was sometimes sitting on the bathroom floor scared to move I was by myself that day since my mother who lives with me was in the hospital. Since we live in a co op area the walls tend to be thin I was so ashamed the neighbors headed me dry heaving and vomiting all day.
I had two more episodes about a month a part only my mother saw what this condition does to me I went to the hospital both times and again nothing.

Most of the friends I've had for years won't believe that I get sick like this, they think its in my head. The doctors I've talked to want me to see a psychiatrist.

And the only good thing about this condition is because of my health regarding IBS and kidney stones I have become somewhat housebound which causes me less stress which I believe is a trigger for this condition I have only had 3 episodes in 2014, 2015, and 2016. I am just tired of all these problems the kidney stone will cause me to get sick to just pacing the floor holding my sides. IBS and migraines cause me to act frantic rocking back and forth, not sitting still, and actually making people around me nervous like am I going to be alright, some even thought I was dying. And now I have this. To those who are worse off than me my heart goes out to you, this is something I stumbled on by mistake but it explains a lot about what I called my vomiting bouts, at least I can put a name on it.

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WB
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wynnak

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Reply with quote  #43 
Welcome, WB. 

I will quickly ask a couple questions, but maybe answer them in a different thread since this one gets clogged up so quickly. 

I have had kidney stones and those can make you vomit a lot as well. Do your vomiting bout coincide with those? I have also seen a lot of doctors try to say that CVS is IBS. Have you tried another doctor? When we weren't accepting of the diagnosis, or felt it was not what we were dealing with we changed doctors to one we felt knew more. Are you seeing a primary doctor that is seeing your history?

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Blynda
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Helpme2011

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Reply with quote  #44 
Since 1993 I have had over 50 kidney stones only maybe 25% of them made me vomit, perhaps I am so used to the pain that I find ways to ease it before it gets out of control. As regards the IBS my grandparents both had this and since 1981 I have had close to 20 accidents, in 2010 I was diagnosed with IBS by a ER doctor when I had insurance. In 2012 when this started I had no insurance and the doctor/clinic I'm going to now is taking everything from the brain bleed I had, migraines, kidney stones (which in one month I had at least 15 in a little bottle) he wouldn't even open the bottle, and now since I told him about IBS he blames me for that. I'm afraid to say anything about this but from what I've read this certainly is me. Just need to do more research, thanks

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WB
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flyinhigh

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Reply with quote  #45 
Hey all!

I'm new here, and also newly diagnosed with CVS. My story started over a year ago, when I moved to a new city with my husband. It started out I would vomit only after dinner, no matter what I ate. My symptoms then progressed to vomiting for hours and hours after both lunch and dinner every day (I don't normally eat breakfast). I had maybe a week break of my symptoms in between, then started right back up again.
A little side note-I am a nurse, so naturally I don't like to go to the doctor or ER unless I am gravely ill. So I stayed home, managed as best I could while I was still not working and getting used to my new city.
Anyway, I get a new job at a doctors office. My manager at that time made me see one of the doctors there on my first day as I literally had to keep cups or a bucket by me after lunch. Long story short, I had KUB, CT abdomen, an endoscopy, a HIDA scans, 2 gastric emptying studies (they had to cancel the first scan midway because I threw up the food after about the 2nd bite-lovely, I know), a battery of labs, referral to an allergist and food allergies tested. I did actually come back positive for some high sensitivities to about 10 foods.
Come beginning of this year, my cycles changed and had a more consistent pattern. They started 2-3 days before my menstrual cycle, and continues the whole 7 days. So all in all, my CVS cycles last about 9-10 days. I still have them, I treat it as needed with zofran as needed (which doesn't really help), Reglan as needed , topiramate daily-(which I just started) and imitrex as needed.
I've also found chocolate, excessive amounts of sugar, caffeine and overeating are triggers as well. Fingers crossed it helps keep things at bay!
Glad to be part of this group!
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