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demoncleaner

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Reply with quote  #76 
hmmm, just got a pretty interesting email from an investor wanting to see about placing his upcoming products on my webbys.

google Puramed Bioscience, filter news and look thru the press releases. pretty interesting stuff. they have a sublingual migraine treatment made of ginger and feverfew (had never heard of that herb), as well as developing Cannabiniod based meds for epilepsy / migraine. sounds pretty legit, where they are setting up trials, etc.  the sublingual thing allways interests me as it avoids first pass metabolism and is ideal for rapid onset conditions like CVS attacks. sounds like they are working in an interesting direction as in terms of how it may correlate with our particular sets of issues.  will keep the board updated the more I learn.  the press release info sounds pretty compelling.  I like the concept of an antiepileptic combined with an antimigraine in rapid acting sublingual form and non pharma base.  

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demoncleaner

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Reply with quote  #77 
amazing video posted over at huff post. if you google "huffington post parents choose marijuana" first query will lead to the video.

interview with 3 families using cannabis oil to treat their children and a former skeptic doctor who relays a story of one family that applied high CBD cannabis oil to their childs pacifier and within a couple months, completely dissolved the childs brain tumor without any other conventional therapy. also a parent dealing with draevet's type seizure disorder whose poor 6 year old has been rx'd over 25,000 doses of antipsychotics in his lifetime!!!!!!! TWENTYFIVE THOUSAND!!!!!!. Now he treats with CBD and has a functioning child again.  

That is how these drugs are misused in patients with disorders such as intractable epilepsy or OURS , where doctors do not know what to do to solve the problems. so the answer is to tinker with dopamine and serotonin receptors, in ALL of our cases and its BULLSHIZZLE! it does not work and only harms. Reglan, Domperinwhatever, Elavil, Valium, Lorazepam, Zofran, the list goes on..... that's what all of these drugs do, mess with your dopamine and serotonin levels.  THEY CAUSE BRAIN DAMAGE!!  and parents and doctors give these drugs to children that have no choice in the matter, and god forbid, if someone gives Cannabis to a child, they are risking incarceration. it is insane.

much discussion of the failed pharma all these kids are on in this video, some in the same class of drugs as the failed pharma that we take in our community. 

This plant has been demonized in portions of our community in the same way that these parents talk about in their own experiences.  We need to take note of stories like these, and of our own patients such as smokeater, and push for more research and understanding when it comes to Cannabis oils as legitimate medical treatments for a variety of ailments.  

Finally able to start my own oil therapy this month. will keep updated.
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demoncleaner

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Reply with quote  #78 
Charlotte's Web now shipping to all 50 states! you have to get on Realm of Carings waiting list.
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demoncleaner

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Reply with quote  #79 
just saw above post...CW is on hold again! lol. only CBD only states right now, more in the spring.

soo, wanted to report:

having first flare in awhile and first with good supply of strong cannabis oil onboard.  this has been quite interesting. I am essentially having the migraine without the vomiting for the first time in my entire life.

the flare started with typical trigger, mom drama. woke up the next day with a beast of a head migraine. I only get those maybe 2 or 3 times a decade, really rare.  from there the next few days it seemed to follow the typical pattern of manifesting in my guts, setting off the ibs and my trigger spot at my eusophagus where it is probably damaged, ultimately resulting in the all familiar pain train ride to hell.

buuuuut.

no vomiting, and I should have been by now.  and since I am not barfing, I am not BURNING the hell out of my poor eusoph, so waay less pain in that respect.  I have been able to get waaaaaaaay more control over my episode by taking single hits of good Cannabis oil, and I have to say, after seeing it in effect over the last week, I am pretty amazed at how effective it has been contrasted with smoking herb. and I am talking about 2 or 3 single doses a DAY, nothing remotely eccessive.  

What I am noticing profoundly, is it is helping me regain control of my breathing again. all of us that have this know the feeling once you get going, your diaphragm collaspes and you cannot breath properly anymore, which helps breed the cramping.  I am taking my normal hot shower, into cold water shocks until I get control enough to where I don't feel I am going to vomit for a second, then I go grab da pipe!

now, what I am using is a "dab rig". fellow smokers, its a bong with a "nail" made from glass, quartz, titanium, etc.  you take a torch, heat up the glass, and then dab a small drop of oil onto it with a tool.  since you are heating very pure oil on a hot surface and not burning it persay with flames, the smoke is very pure and not at all noxious like herb smoke can be sometimes if you are nauseas.  I can take one single hit, that you can hold for a long time due to the cleanlieness of it, get back in the shower, and I have noticed fantastic results this last week.  Helps me regain my diaphragm, calms me, and I have actually been able, repeatedly, to go from shower to bed and SLEEP! usually, it is shower to bed, writhe in pain for 5 mins, and back to shower, for days on end, sleep never entering the picture for more than 5 or 10 mins.  this is seeming to totally disrupt the cycle, similar to morphine and allowing me extended sleep breaks. I am still suffering the migraine essentially when I wake back up, but the vomiting cycle is disrupted for the first time in 30 years pretty much.  this has been close to 2 weeks now....there is no way I could have held off the puke beast in the past that long, when the attack was this painful. I have just been screaming in pain in the shower with cramps, but no puking like normal.

I have been burning a LOONG time.  long I have said to myself, if only this was a biiit stronger, I think it would work.  My instincts, it seems, were correct.  this is average grade strength oil, nothing special, no CBD, just Cannabis oil from a good medicinal strain and super clean oil. 

usually, with a flare this painful, I would have reached for oxycodone or dilaudid at least once or twice by now.  no painkillers this time around.  usually I would be needing some type of antacid treatment to prevent damage to my eusoph from chain puking. non necessary with no chain puking. usually, I cannot sleep for days or weeks.  sleeping well every day and if I feel the need to "pass out" I can, but at the same point, I am not sedated to where I feel like I cannot keep my eyes open, I can simply choose to sleep if I want to, and that is a precious choice to have to make for us.  I am for the mostpart, calm and cool. I am usually a frayed nerve, like...do not approach, just too much pain and no breaks.

I have some CBD coming from a good source this next week, so I am curious how that will work on the bowel inflammation.

I know we have several patients that use cannabis as a tool on the board.  if you have never used a "dab" rig before, and you don't have insane concentrate laws in your state.... I would highly recommend this technique.  if you have found that mj has helped a great deal in the past, but just not strong enough to make a dent in a full flare, this may be your ticket.  I am finding it to be many many times more effective, like night and day essentially. I would put it right in there with morphine/benzos, the effect is very similar, without the crap side effects of either.  no weird zombie feelings or that spinny opiate feeling and of course the benefit of INSTANT onset that smoking/vaping produces. 

it totally helps quell that runaway panic sensation that impending vomiting elicits.  between the breathing and the panic, it feels like a strong benzo in a way, ..... it is allowing me to calm down to a level where everything is not "firing" at once. and at that point, you can get control again. and it has that Cannabis anti nausea thing going.  

gives me hope that with a really good medicinal strain, I may be able to find an oil that would be very successful at aborting my vomiting ritual. I mean, I can handle this...just pain? pffft. its the puking that KILLS you. I can ride the pain out. the vomiting destroys your body literally.

pm with any questions yall.
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han

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Reply with quote  #80 
I've been having similar results with the addition of amiltriptyline and I got a new job over the summer and have been able to afford oil again. I also have transdermal cbd patches that are amazing for me. I put on at the first sign of migraine or nausea and have kicked an episode multiple times. I am also waiting on a topical cbd gel or something from a friend who swears by it. I have butane oil that is high cbd, low thc and that is very effective for nausea and pain and am working on coming up with a theraputic cbd dose to try and lessen my episodes and severity of symptoms even more so maybe I can take less of the amitriptyline that really messes me up
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demoncleaner

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Reply with quote  #81 
heya Han,

where do you find the transdermal patches, could you pm deets?
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RobinD

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Reply with quote  #82 
Where is your cannabis oil from

I ordered the Epiq and it did seem to help a bit but wanted to see what kind you are using-
Thanks
Robin

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demoncleaner

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Reply with quote  #83 
If you're asking me Robin, I am in a med state, I make my own oil.
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RobinD

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Reply with quote  #84 
Hi - thats great.. Do you know what the ratio of thc and cbd is in your own grown?
Thanks-
Robin


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demoncleaner

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Reply with quote  #85 
no labs here yet Robin, still a year or 2 out before they get those in place in AK. that data is unquantifiable atm for me. 

just using well known medical strains.  The oil I was using last flare was from an Aurora Indica, a 50/50 cross of Northern Lights and a potent Afghani strain.   

Easier to buy legal CBD in concentrate than to grow it currently without lab testing, so I am just ordering my CBD oil.
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han

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Reply with quote  #86 
I'm in a med state and have tried dixie dew drops, mary's medicinal's, and many high cbd strains that are turned into butane hash oil. Mary's medicinals has cbd cbn and thc specific transdermal patches and topical creams which I am really also starting to like. Although when I'm in a full blown episode these cbd things don't help, every other time they have pulled me out of what could have been one.
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demoncleaner

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Reply with quote  #87 
ahhh, cool cool! I have looked at Mary's several times over the last year, good to hear they have quality products.  Wish I was still in WA.

Do you dab your oil Han or take orally?
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han

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Reply with quote  #88 
Demoncleaner
I have butane or co2 extracted hash oil that I dab but I do the cbd stuff transdermally and orally for the most part. I've had CBD dab oil and it doesn't reach the same effect as I have gotten with the cbd patches and topical creams. I stand behind Mary's fully as a patient and and just searching for something better/stronger/theraputic dose etc. I am really trying to be able to use cbd to treat cvs not just its symptoms

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Goes to show you don't ever know, watch each card you play and play it slow
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demoncleaner

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Reply with quote  #89 
interesting on the different methods with CBD intake.  One of my vendors carries a CBD dab concentrate I was going to grab some of, as it is cheap.  Waiting any day for my oral CBD oils to show up from Holland.

yes, same intention here Han, I am hoping the CBD will be effective for things like inflammatory issues with bowels, etc, all the inflammation that CVS helps with. Once I find a vendor I like, I will just be doing a daily regime with the CBD orally, and supplement that with my own oil.  Hoping it pays some dividends this next year.

the next year should be pretty exciting, many of the restrictions on US grown Hemp have been crushed in 2014, so 2015 will bring supplies of US hemp grown for CBD content, and the market should just explode in terms of legal CBD options, bringing the price down as well.  There are sooo many companies developing legal CBD products right now as well as legal full spectrum oils loaded with all the other Cannabinoids, Flavanoids and Terpenes.  Things should be pretty interesting as to what may be purchased legally in any state by this time next year.   
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bdlogan

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Reply with quote  #90 
I just got my trail of cbd oils. I have cibdex oil gold. A friend of mine represents them and she sent me a trial. I hope it works out for me. This stuff looks amazing also. Reminds me of some stuff I used to smoke and I hope it works!
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