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Reply with quote  #1 
Has anyone, who regularly uses marijuana, stopped using to see if the episodes stopped? My 19 year old son was diagnosed with CVS 5/05, he has had 7 episodes, 5 requiring hospitalization, in 20 months. I don't know how often CVS presents in adults who had no history of it as children, but I know for certain that the one constant in his life now which differs from his childhood is that he regularly smokes pot. Anyone know of any follow up studies, or any other info. on the subject? He is very very willing to stop as the meds that are generally prescribed really frighten him, and ANYTHING that suggests an end to this hell would be tolerable.
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myson

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Reply with quote  #2 

There are some CVS patients that use mj to relieve nausea and to get the appetite stimulated. There had been articles about a year ago of cannabis induced vomiting. You can check on previous posts and threads  You could google on the subject and see what comes up. I believe it was based out of Australia?  We discussed this one night at conference last year with a couple of doctors giving opinions. I don't believe that cvs is caused by mj use. I am not saying that cvs symptoms can not be brought on by mj use. My recommendation is to stop using mj and see if symptoms stop. This may be difficult to do but you will only know for sure once it is out of his system. Good luck and I pray that it will work for you. If it does not relieve it maybe marinol which can be prescribed would work for your son. Good luck and let us know how he is progressing. Nancy

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sallywoes

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Reply with quote  #3 

I was actually thinking that perhaps my son should try smoking pot.  I thought that it eased nausea and vomitting and increased the appetite in chemo patients and that's what the big fight on legalizing it was all based on.  Unfortunately or fortunately I won't encourage Paul trying it because he has asthma and because of the stigma attached to it.  I would definitely get over the stigma if his doctor could reassure me that he wouldn't be at risk of having an attack.  Anyways, I'm sure I didn't help but if you find the answer...please share.

Sally


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princessdi

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Reply with quote  #4 

As we all know we are all unique in this so I can only offer our experience.  My husband does indulge in mj to help with his nausea and it does help when he can handle the 'smoking' of it.  At times he just isn't up to even dealing with that.  When we saw Dr. Fleisher, naturally we were honest when asked about whether or not he indulged.  Dr. Fleisher told us that some feel that mj is the cause or part of the cause of CVS and that it is widely believe in Australia to be fact.  He himself has not found that to be true nor does he believe it to be fact.  Now my husband and I travelled to Europe for 25 days this past summer and did not carry or have access to mj during this time.  Of the 25 days we were gone my husband was in an episode for 15 of those 25 days and had 2 hospital stays.  We do not believe that mj brings him anything but relief when we can aquire it which isn't that often as it is hard to come by for us.  My husband has smoked mj for over 30 years recreationally (as well as I have with no CVS issues, THANK GOD), only had a 'nervous' stomach as a child, has been suffering from CVS for 15 years, diagnosed offically last October by Dr. Fleisher and CVS become very very intense for him as of 1/2005 with 6 hospital stays during 2005.  This has been our experience and I hope it helps.  Our thoughts and prayers are with each of you and your loved ones.  Be well and take care....... ~Diana~


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shny31

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Reply with quote  #5 

Everyone is different I always say.And things hit people differently.I too endulge in the use of mj.Started when I was 18.Stopped for 5 years and my first attack was while I was pregnant(no weed)I stopped smoking in 2000,started again after my attacks started.My attacks(CVS)stopped for about one year before they started again.The mj does help me for nausea and to eat,So does elevil.

Sharon

I believe the only difference between weed and alcohol is one is legal one isnt.One kills your liver,one kills your brain cells. 

I to am honest with my GI and he just asked'does it help?'


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This is one of the reasons we suffer-to be prepared to bring encouragement and comfort to others who come across our path enduring a similar situation Remember that!'For Those Who Hurt'
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Reply with quote  #6 

Hello Everyone,

 

My name is Dana Simmons and I am new to this listserve. I have had CVS for 9 yrs and I am 22 ys old.  I was wondering if any someone can help me clarify something with marijuana use and CVS.

 

I have never smoked mj until I noticed my illness getting worser, every other day, and nothing seemed to help and the only relief was going to the ER.  Then, when desperation set in, I smoked and when I did,  I noticed a dramatic relief, especially from the vomiting.

 

About the mj causing CVS, does it apply to those who were recreational users before they experienced any vomiting symptoms or did it perpectuate the problem after being used?

 

Dana

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Jay

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Reply with quote  #7 
I am a medical marijuana user, and I have an exemption from Health Canada and the government allowing me to possess marijuana in addition to having a licensed designated grower that I have.    Up to now, no conventional medicine has helped me with my nausea nor weight gain problems except for marijuana.  Otherwise I am sure that I would be immensely under weight and malnurished.  I would not be able to function at all.  I have difficulty eating and digesting, among other things.
I think the CVS and marijuana research article that was published is not sufficient or bares much evidence.  Typically marijuana research searches for negative outcomes, to promote the pharmaceuticals.  Even some experts I have spoken to pretty much ignore what is being published.
I have heard of plenty of adults using this medicine.  I wish it were more accessible to the US.  We have to remember that most research has gone into pain medication and treatments (the pharmaceutical canon is huge for pain - in the 1000's, but there is very little out there for nausea).
Marijuana helps me, I have not tried going without for fear of getting worse while my body appears to be getting better in the long term.  Transition takes time.  Perhaps I will try one day to take a break, but it would have to be during a well time.
I would fight with my life for this medicine!  It is my life-saver.


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jodie
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myson

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Reply with quote  #8 

Dana my understanding on the report of mj causing CVS symptoms is that the symptoms started after using mj. As you can tell by the postings and reading the other stories many of CVS patients have not used mj prior to being diagnosed with CVS. Lots of babies and children have cvs with never having touched mj. Again I believe that if you belive it could be causing symptoms the only way to know for sure is to go cold turkey for a while and see what results you have. For those who mj brings relief it and had not used before having cvs symptoms then my belief is that it is not the cause. For many people it is the one jumpstart to their appetite and nausea control. Google for the article and see if they have any more current information on the subject. But I tend to agree many pharmaceutical companies would rather have it out of the picture since the cost is minimal compared to prescirption drugs. Sad but true. This is all my own opinion on the subject I do not have a medical degree just observations from reading many many articles and postings. Nancy

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Antsmom

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Reply with quote  #9 

My son also partakes in mj.  He did not have CVS before he started smoking.  At first I was real hard on him about it because he did it so often.  When he was diagnosed at the Mayo Clinic a few yrs back his Dr. said if he thought mj would help him he would tell him to go ahead.  But he gave his reasons why he should stop.  1. Mj slows down gastric emptying.  2. It slows down motivation. 3. Even though while high there is a lift in mood, inevitably it contributes to long term depression.  4. It provides a false hunger and if one is in cycle and gastric motility is very slow, if one eats it could feasibly start a cycle.

 

Fast forward to just seeing Dr. Fleisher last Dec. he said many if not most of the adult CVSers he treated used mj.  He did not see it as a contributing factor to CVS and said that some of his patients could not get through an episode without it.

 

I have vacillated from one end of the spectrum to the other on this subject as far as my son is concerned.  But one thing I know for sure is that at this point he believes it helps him and only he can decide for himself if he will ever give it up.  I do believe it provides an escape both physically and mentally for him from a disorder that I would only wish on Osama.  I don't know what it's like inside for him, and now stay out of his choice on this subject.


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sheryl65

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Reply with quote  #10 

yes i have been using,,mj on a regular basis for about 5 years.. And i have developed CVS about 4 years ago!!       HMNNN????????  I wonder about it..!!


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sheryl longley
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myson

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Reply with quote  #11 

Look for a pattern in your cycle and usage. When you are having an episode are you able to smoke? Or do you do without during the duration? If that is the case how long after your episode do you wait until you smoke again. Could it be that it is out of your system for awhile and then you smoke again and then it builds up and you cycle once a year and the pattern starts all over again? Not sure but it is def. worth looking at your patterns. Good luck and I hope that is the case and then you can make a decision based on what you find out. Nancy

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Reply with quote  #12 

All I know is my Doc gives me Marinol (for nausea and to control my drastic loss of weight) as one of my meds to treat my CVS...and if you don't know what Marinol is look it up! Can't keep a pill down very well when I am puking.

 

Um...I have said nuff'

 

Mark

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Jay

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Reply with quote  #13 
There is so much to say and explore with respect to this subject.  I have one story though...  After days of being ill, and ending up in the ER, I make sure that I leave with prepared joints.  As when I am in a cycle, it takes me forever to roll a joint (sometimes a few hours)  - I have to do the process in steps due to my conscious coma effect and unable to move and talk.  Typically I have someone come over and pre-roll for me.  I find smoking mj a bit like taking pills, where there are windows of opportunity to take it.

Anyhow, after hours of feeling like hell on earth at the ER and after tolerating so many hours of nausea (with no conventional meds to help me), I eventually roll myself outside with my IV machine, and find a semi discrete place for me to smoke nearby...  (My protocol letter says "permit patient to go outside as needed").  Then I go back to the ER... and eventually feel better.  It helps me to turn the corner, and get my appetite back... which permits me to eventually leave and go back home.

I also find that mj is a preventative medicine, much how people use gravol or ativan I suppose.  It also helps me to regulate my stomach, especially in the recovery process when my stomach has shrunk and it hurts to eat.  Finally, I did smoke before my CVS began, but I think that this coincidentally delayed the onset of my CVS!!  I think I gained a few years of my teenagehood because of it (without my knowing it).  I am not sure how researchers could approach or tackle this line of thought!

I probably have said enough for now!  Jodie

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jodie
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Reply with quote  #14 

In Oregon severe nausea is one of the prescribable conditions that allows for the medical use of marijuana. My fiance was given medical permission to use marijuana a couple of years ago before her diagnosis of CVS. She finds that her anxiety is reduced and therefore the occurrence of an episode is lessened but when she is in a full-blown episode the marijuana tends to aggravate the vomiting. During healthy times her appetite is improved with the use of marijuana. If you live in a state where the medical use of marijuana is not legal I would reccommend discussing the use of Marinol with your physician. As this is a capsule and not inhaled damage to the lungs is negated.

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shny31

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Reply with quote  #15 

Well I think I'm getting ready to quit smoking again.The Elevil does for me a little more than mj does as far as appitite and relaxing me,until its legal anyway!!lol

Sharon


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This is one of the reasons we suffer-to be prepared to bring encouragement and comfort to others who come across our path enduring a similar situation Remember that!'For Those Who Hurt'
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