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sheryl65

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Reply with quote  #16 

After my last episode,, here a month ago,, I could not stand the smell of cigs or mj, but finally I got over that, as I got better.. I very easily could of quit smoking both,, but i stuck with the mj,, and quit the cig's.!!  I am back smoking mj regularly,, but I really do wonder if I should be.  I   sure hope that's not why I have cvs!!  It's really is weird how I started my attacks/cycles,of cvs after I started smoking mj, on a  very often basis...........................................


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sheryl longley
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mahler1987

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Reply with quote  #17 

Well said forestwok,

I know I am to the point of asking to try marinol, since mj isnt legal here medical or otherwise.  I have to think of my hubbys job and the consevative are in which we live.

 

Nobody should be uncomfortable discussing this.. as I wouldnt think anyone would be passing judgement on another.  We're all in the same leaky boat here.

 

Is just like being labled bulemic because ur so nauseated for so long that ur looking for relief that u drink glasses and glasses of water to throw up... or even stick ur fingers or hand down ur throat just to get it over with.  Count me in on that one.  Im so sick of just feeling nasty... They wanna call it something its not.... I call it relief... and its not spelled ROLAIDS.  lol

 

Pattie


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I may have CVS but CVS is not me.
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Jay

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Reply with quote  #18 
I am a mj and marinol user because nothing else helps.  When I read about all these adults using this medicine (in one form or another), I can't help but wonder, why is Zofran not doing it's job???  I know it has been ineffective for me.  Makes me wonder how effective Zofran is for the kiddies?  Could it be the cocktail mixes that makes the kids think they are not nauseated?  I am just thinking out loud!  But I have my doubts about Zofran doing it's job.  And I hear that Maxeran is a placebo effect type anti-emetic.

I hate being nauseated!!  I think it is by far the most incapacitating condition to be in.  I wish there were more options for us!

Jodie


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jodie
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shny31

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Reply with quote  #19 

My body has a hard time taking in the effects of meds.It takes 3 hours before I fall asleep on Elevil and Klonapin.But the Zoran for me worked instantly on my nausea and right before my attack.I was able to abort one attack so far to avoid the ER.Every attack I have ends me up in the ER.Thats when i get that sooo SPECIAL mix of Thorazine/Benedryl.

Sharon 


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This is one of the reasons we suffer-to be prepared to bring encouragement and comfort to others who come across our path enduring a similar situation Remember that!'For Those Who Hurt'
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BDavis

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Reply with quote  #20 
In my case, I believe that Zofran is an effective medication.  I think it does what it was made to do.  That doesn't necessarily mean that it helps me all the time.  Our nausea is not caused directly by our stomachs, it is caused by our brains, which is why sometimes we have to be put into a deep sleep (sleep turns off all but 3 of the receptors *I think there are 11* that cause nausea) for our nausea and vomiting to go away.   So I guess what I'm saying is that I don't really think that there will ever be an anti-emetic that will always help with our CVS nausea.

-Britt


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"I can get sad, I can get frustrated, I can get scared, but I never get depressed - because there's joy in my life."
-Michael J. Fox
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mahler1987

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Reply with quote  #21 

You right Brit,

There are several pathways to the vomiting center, when one med doesnt shut it down another might, I was thinking there were 7 but i'm not sure on that either,  This is why I use more than one med.  Some times I end up taking 2 or 3.  Amazing isnt it?

Pattie


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I may have CVS but CVS is not me.
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mbancroft

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Reply with quote  #22 
This is my first post. I've been living with CVS for roughly 5 years at this point. It started just after my twentieth birthday, at first it was called a stomach virus every 2-3 months and quickly progressed to weekly ER visits.

Around my twenty-first birthday I tried mj for the first time since high school. It helped but was not a cure. I spent the last four years having a good week followed shortly by a miserable three to five days.

This week I aborted my first episode and it was very simple. Sativas and hybrids were not triggering but still hurting me. I switched to a pure indica, that with some benadryl got me back on my feet while I was in mid episode.

I fully believe that cannabis can help adults with CVS, but only if they avoid sativas and hybrids. Indica has given me more than any of pills I've been given for nausea or antidepressants.
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ginny

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Reply with quote  #23 
Thank you for the direct post.  Often our members keep trying different Cannabis products but give up in frustration.  And then there are others who seem to be worse with use.  It is confusing.
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ginny CVSA Moderator
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demoncleaner

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Reply with quote  #24 
only to you ginny, only to you
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demoncleaner

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Reply with quote  #25 
Perhaps if you had carried out that "cannabis study" you stated you were starting up some time ago, it would not be such a confusing topic of discussion for you Ginny.  But I suppose you would not know the first thing about running such a study, which was probably why you never carried it out.

I don't know how you could witness the VOLUME of discussion over cannabis on these boards and still call it confusing.  the only thing confusing to yall, is those of us who claim it helps, when all your doctors say it hurts.
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demoncleaner

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Reply with quote  #26 
BTW, I like how you say members try and give up in frustration, or get worse, but neglect to mention the % of us that reports it HELPS beyond what pharma offers.  the bias here is palpable Ginny, and disgusting.  This is about a select FEW persons views in the CVSA on marijuana and it is as transparent as it can be to those of us paying attention. 

Why not state, some of our members are able to ABORT with the aide of cannabis? hmmmmmm?  Some of our members are able to fall ASLEEP.  some of our members are able to begin EATING AGAIN.  Some of our members can give up OPIATES or ELEVIL.  no, all that gets left out, and what you falsely relay is that most members try and stop out of frustration or get worse.  You are WRONG, and you are wrong as a moderator of this board that has seen EVERY cannabis thread posted, to give such a half sided report of the picture to others as you did above.

Awesome, you segregate the forums and then YOU are the only one who could care enough to actually look ath the cannabis subsection and consequently, one of the LEAST informed members of this community on cannabis, yourself, is now answering questions for folks.  That is perfect.  this subforum is a joke.
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demoncleaner

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Reply with quote  #27 
Gotta luv the current moderation here.  Folks that don't have CVS telling those of us that do have CVS what does and does not work.  At least Pattie was in the trenches with us.  I miss her input on these boards DEARLY.
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ginny

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Reply with quote  #28 

Pattie has been moderating the Facebook CVSA page.  You can find her there.

The comment about frustration refers to not having enough knowledge. 

I am a volunteer and never claimed to be anything else.  I have been volunteering for CVSA since before the first message board was put up.

You clearly dislike me and blame me for that which I have no control over.  We are simply asked to respect each other and respect the carefully thought out and limited guidelines for the message board.


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ginny CVSA Moderator
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demoncleaner

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Reply with quote  #29 
Please Ginny, it is not that I don't like you.  I don't LIKE Ruth.  [smile]  once I spoke to Ruth, I understood that this does not stem from you altogether.  To be fair, it seems like the bulb lit up a bit for you over the last year or so with regard to opening up about cannabis.  What I got from Ruth was pretty much bigotry, plain and simple.   

I don't LIKE censorship.  I don't LIKE a board that will discuss any poisonous pharma out there, but will not allow the FREE discussion of Cannabis, a substance that many of us rely on, and a substance that is non toxic and natural, one that works with your bodies own endocannabinoid system.  I don't like being JUDGED by folks such as Ruth, that know nothing about me, nor what it is like to endure my illness firsthand. 

As you are the only acting mod here, you get to hear all the complaints as well. Don't like it, don't mod.  There is a difference between me being critical of the CVSA stance on cannabis , and being critical of YOU.  To be fair, I would say I  let up almost 100% on you the moment I spoke with Ruth and saw that this was not YOUR own personal bias on the topic more than a year ago now.

This has nothing to do with some vendetta against you Ginny.    Don't take it personally.  Like you stated, I know this is not a matter that you have "control" over.  This comes from Ruth as near as I can tell speaking with her.

But I cant resist pointing out the obvious that you/they/whomever, ... SHUT DOWN the discussion of cannabis on these boards for all intents and purposes, which was of course, the thinly veiled intention.

And please Ginny, YOU and I BOTH know, I know that Pattie mods the fb page, I don't know why you need to state the obvious.  I consider Pattie a friend and I correspond with her several times a year to this day. she GETS IT. she LIVES IT.

Hard to have enough knowledge when you DISCOURAGE THE DISCUSSION OF THE SUBJECT ALTOGETHER ON CVSA BOARDS!!! and alienate the folks that DO post about firsthand use of the plant.  Funny how that works.  which is my point precisely.  cannabis will be legal in the US by 2020 I daresay.  it is not going away or going to be less of a medicinal option.  it is a legit option for some of those for whom pharma fails, or are disgusted by the poison that is recommended by the "experts"".  And it is off limits for discussion at the CVSA message boards in an open manner. 

You have relayed your volunteer status to me at least a few dozen times in the last 5 years Ginny.  I GET IT by now, no need to restate it.

its funny to me Ginny, I go on at great lengths, raise points, questions, yadda yadda, and you always come back with the same canned lines pretty much and NEVER address the substance of my posts, EVER in your responses, questions raised, etc. 

anyway, no worries, I shant be around here. I got some random update from the CVSA last night and reminded me, I should check on the cannabis forum activity, out of curiosity.  I couldn't resist turning the knife, as it was dead as I expected it to be.  I don't care what yall do around here, but I was here for 5 years, so I have my observations.  And I feel strongly about this issue as you know.  Things are changing in this country because people are not accepting this bigotry in regard to cannabis anymore and accepting real facts and information instead from people using the substance instead of misinformation and propaganda from people that have never even used it in their lives and have no business speculating on the subject.  There is a microcosm of that expressed on these very boards, with the aging ludites wishing the topic would just go back into the shadows again.  it is bigotry, plain and simple, and I will speak out against that kind of thing always and loudly.
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demoncleaner

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Reply with quote  #30 
Bigotry = "In English the word "bigot" refers to a person whose habitual state of mind includes an obstinate, irrational, or unfair intolerance of ideas, opinions, or beliefs that differ from their own, and intolerance of the people who hold them"
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