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EllenF

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Hello all. We are in the process of having my 10 year old daughter's illness diagnosed. It seems to me that her symptoms are in line with a CVS diagnosis. Her current GI says she has atypical symptoms. For several years she has had bouts of vomiting that would last about a week a few times a year. This school year she has had bouts in Dec, Feb, Mar, Apr. All occurring mid-month lasting a week or more. Last month wss 2 1/2 weeks. Right now we are at 2 weeks and she's still not better. Also new last month was severe stomach cramping. Constant nausea, vomiting throughout the day, especially after meals, lethargy. She is basically dibilatated during these episodes. (She has not started her period yet, but has definitely entered puberty. Maybe this is why it's happening monthly?)

To date she's had some blood work, xray, 2 ultrasound. Last month her xray showed constipation, but we have done 2 GI cleanouts. I do not believe this to be the root of her problem. She is scheduled for an endoscopy Wednesday. Wondering if we should do this. Looking for suggestions for any other tests we should do to expedite a firm diagnosis. I dont really care for her current Dr. He doesn't seem to appreciate how bad this has been for her, for all of us. He only wants to try the next thing when I push that she is still not better.

Shes currently taking cyprophetadine, ondanestron, ranitidine, and hyoscyamine. These are barely making a dent in her symptoms, but it's only been 1 week.

Any suggestions or tips to navigate this process are greatly appreciated. Thank you!


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Ellen Frierson
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wynnak

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Reply with quote  #2 
Ellen

I can not tell you ow many times that they blamed constipation as the reason for my son Vomiting.

I always suggest the testing. The symptoms of CVS are the same as many others. My son has been scoped and has had motility testing as well as an mri of the head and abdomen.
If it is CVS, the hormones could be involved.

I would suggest having the testing done and let us know. Keep checking and charting. It’s very helpful.

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Blynda
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sunnydeeelite

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Reply with quote  #3 
The children's hospital doctors have also blamed constipation on her episodes. It sounds like constipation is a common problem with CVS sufferers but I don't believe it is the CAUSE. I can't imagine TWO WEEKS of symptoms. Something needs to be done for her NOW. You are her advocate. Don't let one day go by that you aren't calling her doctor and demanding any tests that they haven't done yet. I believe the answer lies in the brain somewhere, not in their gut. It's also possible that in between episodes that they, like any child, are stricken by a virus, hence the cramping. The same exact thing just happened to us. We left the hospital, and 12 hours later we ALL, me, my daughter and my husband had a stomach virus with cramping. I do hope your daughter feels better.
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Lisa Dolce
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EllenF

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Reply with quote  #4 
Thank you so much for the replies. After having two GI doctors suspect CVS, her endoscopy came back today with gastritis. The doctor beleives h pylori is the culprit. Praying this is the end of the road for us! My thoughts are with all of you because the last 6 months have been awful for us, so i can imagine what youre going through. Hope I dont need to come back for help, but truly appreciate the support youve given me.
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Ellen Frierson
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Reply with quote  #5 
Ellen,

I am glad you have answers and can move on to treating. Feel free to keep us updated.


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