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jbottaro

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Posts: 3
Reply with quote  #1 
My 7yr old is being worked up for CVS, all roads seem to be pointing that direction. Her last test will be in two weeks where she will undergo a EGD. I find this a bit difficult to find the diagnosis by exclusion of everything else.
That being said there are many worse diagnosis to have. So since January and this is only when I really started looking into it she has vomitted every 2 weeks and has lost 3 pounds.
I have tried to make sense and have read some info about the natural supplements ,I would like some more info on this where can I find out more.
Or can others give me more information. The thought of an antidepressant or antiseizure medication scares me.
Thought?

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Jessica Bottaro
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dgolden

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Reply with quote  #2 
be careful when using antidepressants @ such a young age opinion only!
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donna golden
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ginny

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Reply with quote  #3 

There is quite a bit of information on this forum on the supplements but no dosages can be  quoted on the message board.

On the CVSA web page you will find additional information on the supplements as well as dosages.  Dr. Rick Boles has a web site, click on his information on the CVSA web page.  He has the dosages on the web site.

Additionally there is a lot of information on http://www.mitoaction.org on the supplements as well as hints to trying to get medical food & supplements covered by health insurance.

L Carnitine is available by prescription so if you have health insurance you would pay your deductible for this.

Epic4health and Healthy Origins both will discount the CoQ10 but you need to call and not just order from the web.  Healthy Origins has a suspension in Olive Oil, no Vitamin E, -E is often derived from soy in the USA and we have found many with CVS are soy sensitive.  I think Healthy Origins might also have a non soy based CoQ10.

Additionally, if you find you are adjusting the CoQ10, with your doctors approval, for added stress such as allergy season, birthday parties, illness, vacations, you would not want to adjust up if the CoQ10 contains something extra that would bring the dose of the additive (E or anything else) above a safe level.







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ginny CVSA Moderator
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jbottaro

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Reply with quote  #4 
This is definitely my concern. Thank you very much.
Quote:
Originally Posted by dgolden
be careful when using antidepressants @ such a young age opinion only!

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Jessica Bottaro
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jbottaro

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Reply with quote  #5 
Ginny,
Thank you very very much. I was directed to his facebook page but was unable to find the information you suggested. it is probably just I didnt look hard enough ,could you let me know where to look for it. Thank you again so much for the help it is much appreciated.
 
Quote:
Originally Posted by ginny

There is quite a bit of information on this forum on the supplements but no dosages can be  quoted on the message board.

On the CVSA web page you will find additional information on the supplements as well as dosages.  Dr. Rick Boles has a web site, click on his information on the CVSA web page.  He has the dosages on the web site.

Additionally there is a lot of information on http://www.mitoaction.org on the supplements as well as hints to trying to get medical food & supplements covered by health insurance.

L Carnitine is available by prescription so if you have health insurance you would pay your deductible for this.

Epic4health and Healthy Origins both will discount the CoQ10 but you need to call and not just order from the web.  Healthy Origins has a suspension in Olive Oil, no Vitamin E, -E is often derived from soy in the USA and we have found many with CVS are soy sensitive.  I think Healthy Origins might also have a non soy based CoQ10.

Additionally, if you find you are adjusting the CoQ10, with your doctors approval, for added stress such as allergy season, birthday parties, illness, vacations, you would not want to adjust up if the CoQ10 contains something extra that would bring the dose of the additive (E or anything else) above a safe level.







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Jessica Bottaro
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esoteric

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Posts: 299
Reply with quote  #6 
Jessica,
It is on this site, the CVSA main page, not the fb page.
I hope her episode is over.  Best Wishes. 

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Kim

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esoteric

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Posts: 299
Reply with quote  #7 
Go to the main page.  Hit Resources.  On this page you will see a green box on the left, Co Q10 a,d Ami article.
Also on the Resource page scroll down to Dr. Boles article and click where it says Read it here.  Hope that helps.

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Kim

CVSA Volunteer

the journey is the reward
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