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erincanada

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I was reading some articles this week about a new Migraine medication (monoclonal antibodies) that are in final stages of clinical trails. I was curious if anyone knows if any CVS patients have been included in the studies and if this new injection could possibly aid in the treatment of CVS?
http://www.chicagotribune.com/lifestyles/health/sc-hlth-new-migraine-drugs-1213-story.html
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wynnak

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Reply with quote  #2 
I will tell you that I have been involved with Migraine research and trials. They have very strict criteria for participating. It could be a bit, after it hits that market, that it is used for what they call off-label. Probably even longer before that is able to be approved by insurance companies for those off-label uses. Trying it before can be costly to the patient.. I will give a example of an attempt: They did try to use the Cefaly Device for my son's CVS.. Not covered by insurance.. but being desperate for anything to help.. we paid $500+ out of pocket Plus extra pads to attached.. so close to $700.. for a paperweight. It did not work, and actually exacerbated my son's issues. I know I keep things like this on my radar.. My son has been a guinea pig for his doctor for a few off-label uses.. the latest is actually a med for Alzheimer's. Which scares me.. He's 19. But there are now "proven" off label treatments for migraines with the med. 

Off-Label means not using it for what it was meant for. The side effects of it being beneficial for another condition tend to develop after its released on the market.

SO the answer would be no. They would typically rule out people for participation due to a "separate" condition. They want specific forms of migraines (complex, hemipeligic, menstral, Chronic, NDPH, With or without aura, etc)  to participate.. but CVS is a variant and would not be included in the initial trials. But a doctor somewhere will attempt it after it is released to the market. 

I saw this yesterday and was super excited. That they are trying to pre-treat migraines. I have put it on my watch list of meds to keep an eye on progress and studies. Thank you for helping keep us all aware of possible options!


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wynnak

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Reply with quote  #3 
Hey Erin, did you see the write up in the Newsletter? The one that is mailed out to CVSA Members? They had an article addressing this. Wondered if you saw it.
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erincanada

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Reply with quote  #4 
Hi Bylnda,

No I didn't see the article [frown] Any chance you could email it to me or let me know the main thoughts from the article?

Thanks so much!

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wynnak

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Reply with quote  #5 
Hi Erin! I have been looking for where I put the article. I did reach out to Debbie in the CVSA office (cvsa@cvsaonline.org) regarding a copy of the newsletter. She may have an extra one that she can send out to you. Send her a contact and see if she can help you out. 

Thanks for your patience.



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ginny

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Reply with quote  #6 
Could this be the medication?

Anti-CGRP Monoclonal Antibodies: the Next Era of Migraine Prevention?

by AR Tso - ‎2017 - ‎
Jun 27, 2017 - Six small molecule CGRP receptor antagonists were shown to be effective for acute treatment of migraine; two were stopped for hepatotoxicity or one for formulation concern issues and one is now in phase III. Monoclonal antibodies against CGRP or the CGRP receptor have a longer duration of action and ...

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wynnak

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Reply with quote  #7 
Erin,

I finally found my newsletter. In case you didn't email the office for one.

 
Attached Files
jpeg Migraine treatments0001.jpg (741.54 KB, 5 views)
jpeg Migraine treatments0002.jpg (669.07 KB, 4 views)


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