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Ashleysue7

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Reply with quote  #1 
I was diagnosed with cvs about 4 to 6 months ago. My vomiting and episodes have lessened but not fully gone away. My Dr has put me on ***mg of Nortriptyline. Me and my fiance are trying to get pregnant and my Dr has told me that automatically puts me in a medium to high risk pregnancy. I was hoping to connect with some woman who hav been pregnant and had babies through cvs.
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ginny

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Reply with quote  #2 
I don't know about the nortripyline and pregnancy but if you search the message board you should be able to find messages in the archives.  Some did very well during pregnancy and some needed medication that was not too dangerous to the baby.  Good luck,  Let us know how things go for you.

Maybe wait for some time to see how you are doing, make a plan with the OB and hopefully all will go well.

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ginny CVSA Moderator
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Ashleysue7

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Reply with quote  #3 
Thank you so much. I will do that.
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wynnak

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Reply with quote  #4 
Definitely use the archives and search options. I have heard a wide range of responses to having CVS and being pregnant. The doctor may have you go off the nortriptyline. My doctor is always giving me worse case scenarios. Probably hoping to prepare you. Being careful with pregnancy is good. They would keep more of an eye on you. I don't consider that a bad thing. It's good that you are doing your own research. 
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Ashleysue7

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Reply with quote  #5 
My plan is to get off of my medication while pregnant so my baby can have the best chances. As soon as I get a positive test my Dr's are going to help me ween off my medication. I'm afraid I won't be able to hold stuff down for my baby to get the nutrition. Not looking sick people don't understand my real concern with it. Like I look healthy on the outside and I get guestioned with my choices. I told my little sister so she shows me a video of a baby born with major shakes from the mom on prescription drugs. I understand it's different but people don't look at is as different. Like I'm a bad person needing meds and wanting a baby and doing all I can tonly stay rested so I don't get sick......
Sorry about the rant lol
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wynnak

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Reply with quote  #6 
I think it is upsetting that people judge you. Unless they have been in that situation or something similar, they don't understand. My parents, who are just now starting to go through chronic illness stuff said very hurtful things to both my self and my son during some of his roughest periods with CVS. We tended to distance ourselves from them because of it.

Chronic people understand chronic people. If your family, or sister, don't understand, it is almost impossible to explain it to them. I reached the point that I stopped trying. It is exhausting trying to do that as well as care for yourself and others. The doctors will coach you through what is best. It is good that you have talked with them about your plans.

I hesitate to say that video is about prescription drugs. That is what I hate about the internet. Anyone can find a video and label it however they want. I tell my daughter that it isn't true because its on the internet. It's good that you're being cautious and are aware that things will be different because you suffer from CVS. But I always tell my CVSer.. don't let it hold you back. Be mindful and find what works for you. Don't let others affect your happiness and life choices. Especially since they aren't you. They don't know what you go through or what has shaped you as a person. 



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Blynda
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Ashleysue7

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Reply with quote  #7 
Thank you so much wynnak. That was the best thing and most encouraging thing I have read in a while. I should of got on this board earlier.
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wynnak

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Reply with quote  #8 
Glad you did. I found tremendous Support here. Usually when I needed it the most. It makes the biggest challenges easier knowing that there are others like you out there.. Going through the same struggles. You don't feel so alone. 

Keep us updated on your journey. 

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Blynda
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Ashleysue7

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Reply with quote  #9 
Yes I am very thankful I have found this page. My fiance knows how much I struggle at times but he still doesn't fully know. It's so hard when he asks what can I do to help. There is nothing he can really do to help its so frustrating.

I wake up every morning with such bad headaches I smoke Marijuana and it's helps a lot but I need to find something I can do while I'm pregnant. I have heard smoking isn't harmful to the baby just lower birth rate. So many people have such different oppinions. I'm thankfully I found you guys and have Dr's now who's on my side. My last Dr just key wanting to give me different pills that don't help just made it worse. Having a good dr sure makes a huge difference
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scooky1

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Reply with quote  #10 

Dear young lady

This is just so heartbreaking and I know you said you hoped to find a woman you may be or have been this kind of situation, the ladies who run this MB are very kind and I see they are as comforting as they can be and I love them and what they do for us! I hope it is ok that a male chimes in but that is what this MB is about
#1 do you really have CVS? do you have the written documents?
#2 and I ask this from a mans point of view, this illness is all new to you. I know/see you are young, in love and wanting to start a family and have your dream! you just found out you have an illness ther is no cure for.
I have lived with this for over 20 years and I keep hopeing they will tell me "here take this and it will never happen again" guess what, they naver tell me that and I don't expect I will hear that in my life time.
#3 perhaps you and your husband might hold off on starting your family until you get a handle on your illness, I know you do not want to hear this and please forgive me if this in anyway crosses any line, I do not mean anything but good to you.
#4 it is not easy as you have seen to get used to CVS, think about the stress of planing a wedding where you going to live etc. dealing with CVS by that time you may spend you honeymoon in the ER. (CVS humor)
#5 Stress is not good for CVS'ers and it sounds like you are setting your self up for alot of stress. perhaps you two want to slow down and get a handle on your health, one thing at a time. you sound young and in love,maybe one thing at a time. Good luck
                                                                                       Steven
PS: as I said this message is from a guy's point of view (a guy with CVS)

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ginny

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Reply with quote  #11 

Excellent points and well taken Steve.
 
It is so true about stress.  I was thinking more on the physical part of things.  

One of the former Message Board moderators waited to start her family.  She was able to wean off Nortriptyline and was taking the Supplements and doing very well.  Pregnancy went well and the child is healthy.  It is very hard to wait when you want that baby but the baby does bring a lot of challenges, as does pregnancy, and as you say, the excitement of a wedding, honeymoon should there be one, plus medical bills, and hoping for a healthy pregnancy.  

I don't know is AsheySue7 has the official diagnosis but great question!

It has been said CVS is for life.  Those who seem to have it go away, maybe did not have CVS or maybe in some cases it has gone away.  Plus who knows if the break from cycles will be a year or twenty years or forever.  

Valid points.  Thank you


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ginny CVSA Moderator
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Ashleysue7

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Reply with quote  #12 
Yes I have got the paper of the diagnosis that I have CVS. It took many years to get that answer and find relief. I am planning a wedding and a honeymoon. And this process hasn't been stressful it has actually been a lot of fun.

Thank you Steven for your thoughts. If I questioned my diagnosis I would not be on this page. This is for help and support. It is a sickness that a lot of people don't even know about and it is very difficult to live with which I'm sure you know that already. I wouldn't come on a board asking for advise and help if I wasn't sure of my diagnosis i wouldn't of reached out. I've gone through enough criticism loosing .you job, my insurance, and friends because they don't understand how hard cvs is at times.

My dream of being a mom has been there my whole life. I let my CVS run and ruin my life for many years. My Dr's and specialist think me having a baby now is perfect timing in my life since I finally have the Dr's that understand and want to help not just try and give me pills.

I appreciate the advice and words of wisdom. Thank you
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ginny

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Reply with quote  #13 
Let us know how you are doing AshleySue7!  It is good to hear you are not stressed planning a wedding.  Take care, trust your good doctors and I hope you are one of the ones who is feeling better during pregnancy.  
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ginny CVSA Moderator
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Ashleysue7

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Reply with quote  #14 
Thank you. My wedding is the least stressful thing going on in life right now so that's a good thing. I hope I am one of those woman also.
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