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ginny

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Reply with quote  #1 
I am reviewing posts in response to inactive members of the message board.

If the former active member has not deleted his or her profile, you can click on their user name and then be directed to their profile page.  On that page you should be able to email this person.  You can also send a private message (if that function has been enabled) but if the person is no longer reading the message board they will not see the private message.

The email address might be inactive as well.

I hope this helps the frustration of not getting response.

As to former or current researchers, a web search with the researchers name and the investigative medication or device will lead you to web pages that will include links to reach the researcher or research team.

One positive aspect about so many inactive message board members is that with better diagnosing and treatment of CVS, many of those former members are no longer in need of support.  We always appreciate an update from the who are doing well but also understand that every day life can prevent even those with the best of intentions from updating the message board members.



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ginny CVSA Moderator
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