maverickbna
Registered: 11/01/09
Posts: 1
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Reply with quote | #1 |
I'm running out of ways to cope when the vomit monster shows.
I get many symptoms of a traditional migraine, but substitute N/V and abdominal pain for the head pain. I've tried cold packs, ibuprofen, Phenergan, and I've seen both GI and neurologists. I'm running out of ideas to try!
I had an attack last week, and had to go to the ER three times. I'm starting to look like a drug seeker, and I DON'T LIKE IT!
I've developed adverse reactions to DHE, Compazine, Thorazine, Toradol and Inapsine (droperidol). When I tell them that, the ER docs face usually loses its smile, and they don't like having to prescribe me narcotics.
One thing that I've noticed that helps a lot during these episodes is Stadol nasal spray. It's a C-IV controlled substance, and many doctors won't prescribe it anymore, including my neurologist because she believes that it's causing rebound headaches. What do I tell her when it's the only thing I've found that will help?
I've just made an appointment to see a chiropractor, and am pondering seeing a chronic pain specialist.
Is there anything else I should do? The closest CVS specialist is several states away, and I can't afford to travel.
Thanks!
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giz9
Registered: 07/11/09
Posts: 39
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Reply with quote | #2 |
When narcotics are a necessity how one presents their appearance affects a physician's willingness to prescribe narcotics (especially in ER). It may be difficult in an episode, but it is necessary to look clean, neat, clean shaved, etc. However wrong it may be, the more sick a person appears, the less likely they will be to prescribe necessary "hard drugs". I have learned that wearing jogging pants to ER is a definate no-no. In that circumstance I have been lucky to receive Valium. When I dress snappy for an episode I have even been offered hydromorphone for abdominal pain. It would appear that there is an unspoken discrimination against lower-class individuals among medical professionals. A rather odd trend when statistics show that hard drug use (stronger than pot) increases in higher income brackets.
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Life is a neverending purgatory interrupted by periods of intense agony.
If it’s true that our species is alone in the universe, then I’d have to say that the universe aimed rather low and settled for very little. --George Carlin |
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mahler1987
Lead Moderator
Registered: 04/16/05
Posts: 1,986
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Reply with quote | #3 |
The primary care of a CVS shouldn't be taking place in an ER. Despite how raunchy we feel, we need good compassionate physicians that are willing to learn or who are already knowledgable about CVS.
I found that once I had a written plan for daily and abortive treatment, I was taken more seriously. Ironically enough another break through was when I described CVS as being much like an abdominal migraine. Those they are familiar with. I also followed up with telling them the treatment was very similar.
If you cannot find someone locally willing to at least learn about CVS, then there really isn't much of a choice, except to see an adult CVS specialist, if you want your treatment and CVS symptoms to improve.
I have written before about how quickly physicians, especially ER physicians become jaded in so far as the drug seeking issues. Unfortunately they do not have crystal balls and have no real way of knowing based on the vague symptoms we have and nothing that shakes out on test results, who is or isn't drug seeking, at best it's an educated guess.
I suppose appearance would factor in a tiny bit. However, I have been known to head to the ER in my pajamas, sweats, fleece, anything thats easy to get on and off and above all is comfy. I don't think its discrimination based on economic status.
You could try a pain management physician, but I doubt they are going to prescribe stadol. Your neurologist is right in that staydol can produce rebound migraines. If they produce migraine headaches, whats saying that it doesn't produce rebound abdominal migraines as well.
Starting with a physician willing to work with you on the CVS, and possibly starting from square 1 is probably the only way your going to get continuity of care and a really good assessment of whats going to work and what won't.
Pattie
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I may have CVS but CVS is not me. |
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giz9
Registered: 07/11/09
Posts: 39
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Reply with quote | #4 |
Thank you for filling in the gaps that I left, Pattie, I have been feeling 'foggy' lately.
...Buy yes, the most important thing that I left out is that a good relationship with a primary care physician is paramount to treatment success and that ERs should be a sparingly used necessity.
__________________
Life is a neverending purgatory interrupted by periods of intense agony.
If it’s true that our species is alone in the universe, then I’d have to say that the universe aimed rather low and settled for very little. --George Carlin |
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