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wynnak

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Reply with quote  #16 
My son is on a strictly regimented sleep pattern. He is supposed to get 9 hours of sleep. That started at age 13. It is part of our balancing and maintaining to help him avoid an episode.

I am not sure what ISTEP is (state testing maybe) But we have the option to opt out of the state testing. It was part of my son's 504. Anything we could do to minimize the stress, or help them feel more confident about an occurrence was and is addressed. 

Wait until we get to talk about driving tests [wink] 


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Blynda
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ginny

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Reply with quote  #17 
Sleep is major.  Try reviewing some migraine protocols, you will see a lot about sleep.  Not only getting to sleep on time but waking each day, even days off, at the same time.  There will be exceptions.

If she knows she can go to school later than the early start time (Blynda brought up a 504 plan and that should cover a later start) and not have as much make up work on her own schedule or testing not under time limitations, it might help get over this hurdle while standardized testing is taking place.  I think it is baby steps, one step at a time, a fall here and there and trying again.

The psychologist should be able to help with de-stressing.  One destress tip I just read about is to release the tongue from the roof of the mouth.  Relax the hands.  Have her do the deep breathing, slow and easy.  Her therapist will have other tips but we don't want to stress her out with too many things to think about.  Quick easy tips should be helpful.

Have you read the paper by Dr. Fiona McRonld and her experience with coalescing?   The paper is helpful and hopeful.  If the link does not work, google her with anticipatory nausea in CVS.

https://www.researchgate.net/.../7946285_Anticipatory_nausea_in_cyclical_vomiting



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Ddirose

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Reply with quote  #18 
Have you tried your daughter on the suggested suppliments??? I spent YEARS trying to figure things that would help her, and for whatever reason didn’t hit
on the suppliments. The most remarkable change in her is her sleep, energy, and attitude. She used to have to go to bed at 7 / 7:30 at night, and would sleep until 6 or 6:30 to get up for school. The change is amazing. She now is up until 10 or 11, and we have to tell her to go to bed, and she wakes up refreshed. She’s just all around happier. I would highly suggest giving them a try! 😊
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Vogel_Mom_3

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Reply with quote  #19 
I will ask the doctor about those supplements. I think allergy/cold symptoms are a trigger for her as well. The doctor said she could take benedryl to abort an episode, but that doesn't always stop it. Any suggestions for something to take for allergies as a preventative??
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Ddirose

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Reply with quote  #20 
Sorry for the late reply. We always just used the CVS brand of allergy pills for her when it was allergy season.
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wynnak

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Reply with quote  #21 
Here are the supplements that are being referred to..

http://cvsaonline.org/supplement-information-discounts/

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Blynda
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ginny

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Reply with quote  #22 
Healthy Origins also offers discounts for CVS patients.  

And Dr. Boles has a great powdered form that mixes with liquid, truly does taste good, Spectrum. Distributed by Neuro Needs, All US.  Neuroneeds.com. 



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ginny CVSA Moderator
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