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scooky1

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Reply with quote  #1 
Hi Guy's

Yes it's been about 3 months and I am starting to get nervous because nothing bad has happened!

So I'm getting a bit jumpy at any sign of trouble I grab my bag of tricks and have at it.
I ran into the towns ambulance guys at the market the other day and they said "hey where you been?" we miss you.

So I am just waiting to see what happens and if this time off from the monster is because of anything I/we are doing with the medicine concoction or the monster is just sleeping.

They say the definition of insanity  is doing the same thing over and over and expecting a different outcome.

I forget how many times I have been here before, waiting to see if this is the ONE and the torture  was over just to find out it was just time out.

Are we all CRAZY?

I told my friend about the new meds I was trying and this that and the other thing, and she said "Do you know how many times you have said this to me?"

Really I forget how many times in twenty 29 years of this that I have said "THIS  IS IT!" but I guess that's the just way it's going to be.
 
Unless this time is it!
                              Well Guys, I wish you empty buckets! Steve



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ginny

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Reply with quote  #2 
If it helps, I think my daughters CVS lasted around 29 years.  She started quite young but it followed her until beyond age 30.

I think we are all like you, wondering, worrying, overthinking the next attack.  I did this.  For a time it seemed that if I said she was well, within 48 hours a cycle would hit.  I dont know how long it took before I would even say she was doing well.

I think the dread and fear are a learned response.  No sane person would forget about the cycle or not worry.  I do think the worry goes away but it will probably take time.

Maybe daily allow yourself designated period of time-- 15 minutes or 10 minutes-- to feel anxious and worried, then let it go.  Eventually maybe you can wean your worry time down to every few days then maybe not think about it. Or you could talk with a minister or social worker?

If it helps, I can understand.  I am pretty sure everyone who has lived with CVS understands, and far better than I do.



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ginny CVSA Moderator
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wynnak

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Reply with quote  #3 
The anticipation of the next attack!!!

You just made my stomach drop! 

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Blynda
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shayden

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Reply with quote  #4 
Continuing to keep you in thoughts and prayers Steve...and Wynnak and Ginny...and all other sufferers!!

Your fears and worries are natural, for sure, but figure out a way that they don’t take over - that worry in and of itself could be a trigger. Meditation, acupuncture, setting aside worry time as Ginny recommended...

Positive vibes from Texas!
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scooky1

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Reply with quote  #5 
Thanks
I know that is true, as I also know that I have worried myself right in to the emergency room more than once.
I remember when it happened and I was telling myself to stop! knowing what was going to happen and sure enough- BOOM!
I'm not freaking out! it's just about time something should happen, and /or is one of the meds we are trying working ?
                                                                 Thanks Shayden!

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robinlea

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Reply with quote  #6 
I posted this before but may be worth repeating.  This is strictly my experience and not a scientific medical study - so I started taking 5HTP which is a serotonin supplement to help me sleep.  Not sure how effective it was for sleeping but it cut my migraines by 2/3s  and I have gone 3 months without vomiting.  I was at a 26 day cycle w/ more incidents in between times.
Can't promise anything for anyone else but it is kinda of a any port in storm maybe worth trying.

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ginny

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Reply with quote  #7 
I actually ordered the5HTP, have not started it but I did some reading and thought it sounded like it might be a help.  Thank you for the suggestion. Please keep updating us.



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ginny CVSA Moderator
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wynnak

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Reply with quote  #8 
Have you read the Adult Guidelines? Medications like klonpin and and Ativan are 5htp.. or sedatives used in treating CVS . So stuff that is being looked at. Glad you have found something that works for you! That’s is wonderful!
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Blynda
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wynnak

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Reply with quote  #9 
Have you read the Adult Guidelines? Medications like klonpin and and Ativan are 5htp.. or sedatives used in treating CVS . So stuff that is being looked at. Glad you have found something that works for you! That’s is wonderful!
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Blynda
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wynnak

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Reply with quote  #10 
Have you read the Adult Guidelines? Medications like klonpin and and Ativan are 5htp.. or sedatives used in treating CVS . So stuff that is being looked at. Glad you have found something that works for you! That’s is wonderful!
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Blynda
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