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heatleyxalex

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Reply with quote  #1 
I have been suffering from CVS for over, gosh 10+ years. I am getting married at the end of April. I also suffer from endometriosis and have had one surgery already, that was to find it and as usual they found 5 lesions despite my perfect ultrasound...I also did the round of Lupron injections.  I am having the same issue again because they believe my endo is back... :/ I am looking at another surgery and another round of Lupron... bc I am getting married my OB who is amazing, is suggesting trying to get pregnant to help the endo. I am terrified of doing that bc what will my body do with the CVS and if I would hurt the baby? Im having a hard time justifying bringing an innocent into the world to help fix what broken parts of my body... What if I can't give it what it needs ? My brain is going crazy with all the what ifs... 

any insight would be greatly appreciated. 

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ginny

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Reply with quote  #2 
Please review the archives on the message board.  There are several threads regarding pregnancy and CVS. Some did well, others struggled.  

I hope you find your best answer.

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ginny CVSA Moderator
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wynnak

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Reply with quote  #3 
First, DO not beat yourself up over what your body is or could do. Your physician should be able to discuss nutrition options for you if you were to struggle. I assume that she knows about your CVS. 

I have never been sicker my self than when I was pregnant for my CVSer. The doctors did have to work with me on nutrition and meds for that. I do not have CVS. So I can not say from experience from having CVS, angle. But I can tell you that working with your doctor who is familiar with it should be very helpful. 

Otherwise, I would do as Ginny suggests and look through the archives for those types on conversations.  

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heatleyxalex

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Reply with quote  #4 
Thank for, I certainly feel very trapped and held hostage by the disorder. I was an LVN and my cvs presented itself right in the middle of nursing school. I didn't know what was wrong and now with the wedding coming up im just getting nervous, which of course doesn't help cvs...I called my OBGYN this morning to set up my surgery hopefully he won't make me wait the full three months. what is nice is my OBGYN and my primary care doctor know each other, & have also worked together, and i feel they have my best interest at heart. Just the stress and the not knowing I think is killing me. I certainly did not see this as my life and I go through periods of time of depression and some days its better. CVS is one heck of a roller coaster & this part of the ride is significantly difficult. 
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ginny

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Reply with quote  #5 

Alex, I don't know your age but my CVSer was able to get married, got through a ceremony, reception, honeymoon, quick trip to Europe, move to another state, pregnancies, and is a working mom.  Try to realize that you are in control.  No one can force you to do something you are not ready for.

If you are not ready to try to get pregnant then maybe your doc can prescribe for you so the Endo does not build up. 

Take your time, this is a marathon and not a sprint.  You control your world, your life, your choices.  Trust yourself.

I don't recall a bit of nausea when expecting my CVS child.  Most of the females in my family tend not to have nauseous pregnancies.  In fact I was out riding my bike the day labor started.  It can go smooth.  Maybe speak to your family about how they felt while pregnant.


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Monchhichi

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Reply with quote  #6 
During my last pregnancy (#3), my CVS was awful.  I started carrying a bucket with a plastic bag to keep in my car.  There were many days I sat at stoplights puking while people honked or drove around me.  It became so commonplace, my boss knew when I drew my blinds (I was pumping for my second daughter at the time), I was either pumping or puking.  He didn't even question it when he knocked and found me laying on the floor sleeping.


My daughter was fine as far as the CVS.  She had no lasting issues.  My OB knew about it and just recommended Zofran.  He thought it was morning sickness but he was ignorant to CVS.  It was not morning sickness.  I had the cycles every few days.


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david

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Reply with quote  #7 
Quote:
Alex, I don't know your age but my CVSer was able to get married, got through a ceremony, reception...


Ginny, did your CVSer need to take an special precautions on her wedding day to avoid an episode? 
I am getting married soon, and I am worried about an episode happening on my wedding day.
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ginny

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Reply with quote  #8 
She did not.  She was already ill with a sinus infection--maybe that misery somehow helped.

Maybe your doctor can prescribe something to help you get through the day?   I know how stressful weddings are.  Even as mother of the bride a few times, it stressed me out.  Everyone understands that things happen and if you get sick, it is not the end of the world.  If you did get a cycle, and you can function, hopefully you can make it through the ceremony.  Maybe abbreviate the ceremony or plan to have a short ceremony in case you don't feel well and a longer one if you are okay.

I don't know if this message helps or not but the gist is, try not to stress (as hard as it is to not stress).  I wish you well.  


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ginny CVSA Moderator
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david

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Reply with quote  #9 
Follow up: I made it through my wedding weekend without an episode!
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wynnak

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Reply with quote  #10 
David, that is WONDERFUL!! Congratulations. What did you do that you think helped?
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ginny

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Reply with quote  #11 
WOW!  Congratulations David!  Great news.  And many congrats on your marriage.
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ginny CVSA Moderator
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david

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Reply with quote  #12 
I think it may have been the low dose xanax I took in the mornings and before I left for the wedding venue in the afternoon. Maybe it was that I had too much to worry about to worry about an episode. 

I spoke a bit too soon, the day after I got back from our honeymoon I had an episode, but I'll take that one over one on my wedding day.
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ginny

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Reply with quote  #13 
I think the episodes after a major event might have to do with the adrenaline rush being over. Glad the Xanax helped get you through.
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ginny CVSA Moderator
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wynnak

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Reply with quote  #14 
I consider that a win for sure.. Both the Wedding and the honeymoon? WONDERFUL!! I would rather be sick after than during either of those. Congratulations!
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