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viviana

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Reply with quote  #1 

Anyone knows if CVS is considered a disability? This will protect adults' jobs under ADA Law. What are your thoughts?

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klconner

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Reply with quote  #2 
Welcome Viviana,

That's the $65,000 question!!!!  I do have SSDI benefits, but I did not get them for CVS.  I was sick for 14 years before I was diagnosed, so of the diagnoses used to award me benefits fell in the psychological category.  There are other members who get benefits, but right off the top of my head I can't think of anyone who was awarded solely on the basis of CVS.  (I sure hope I'm wrong and that has changed)  I have had my case come up for review since I was diagnosed and have not had any problems (knock on wood).  If you do a search for SSDI you will find enough to read to keep you busy for the 6 months you have to wait to file.lol  If you would like I'll send you a PM describing the process.

As far as qualifying under the ADA, I have no idea.  The problem would be getting employers to say that the CVS is why you lost your job.  If someone wants to let you go it doesn't take long to drum up a reason.  I was just interviewed to get into a radiographer program at a university.  My GPA was 3.8 when I got my BS, and all my graduate work is 4.0, but the interview was a joke.  It was very clear I was given an interview so that they could tell SRS they looked at me, but they had absolutely no intent to let me attend while I am still being hospitalized.  (Personally I think twice in 9 months is excellent, but CVSers have a skewed view on hospitals).  The reason they gave was that I had no "current" work reference.  Hummm, I had to stop teaching because I was too sick to work, but I gave them references from people I used to work for. If I get a reference from an employer within the last 3 years I can reapply.  My adviser at SRS (I'm going through vocational rehab.) said we couldn't do anything unless they said outright that my disability is the reason I didn't get in.  At any rate they "filled" the program so even if I did challenge it I won't get in before '08 at the earliest now. If you can't get into school I have no idea how you would trying to work with an employer. Sorry, you didn't ask for all that, but I do feel better now.

kate




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ginny

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Reply with quote  #3 
Kate, I am so sorry to hear you were denied entrance to the program.  I had no idea.  I wish there was something that I could do to help. 

Have you given a thought to medical coding as an alternative to radiology?  You can progress through the various levels and earn a decent wage.  And if you work in a hospital setting, this gets your foot in the door so to speak.  Could open up other types of employment, many hospital jobs are first posted in-house.  Personally I think you would be a great patient advocate. 

If you are still hoping for the radiology program, you could do volunteer work at the local hospital and get yourself established.  They can use you on a regular basis so you would have a record of employment as a volunteer.



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ginny CVSA Moderator
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dowdd

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Reply with quote  #4 
Hello, My son James was let go from work last August because of CVS. I think they got by whatever the laws are by saying he was "released" and if he ever got well he could reapply for the job. He was there 10 years. The only job he ever had since college graduation. Also we will see how the CVS diagnosis is received as he has an appointment with SSI next week. He filled out a lot of paperwork. He will use CVS and generalized anxiety disorder.

Sincerely, Deborah

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klconner

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Reply with quote  #5 
Ginny,

I am going to "bulk up" my transcript by retaking some of the old math and science over the next year and reapply. I am taking summer classes from the same instructor I have now for A&P.  That way I'll have a current work reference of sorts.  I have tons of volunteer references and that wasn't good enough so I hope this plan works.  Next year I will apply to more schools.  They all fill their classes in spring for the next fall.  I am not good at "desk jobs" like transcription, I simply HATE paperwork.  School is my safe place to fall, so there must be a reason this didn't work out.  I'll just have to take it slower than I planned.   I love this program of study.  And sicne radiography of every kind was used to dx my CVS, I am really dedicated.  If it doesn't work out this time around I will have enough science credits to get a science endorsement on my teaching certificate and I'll go back to that.

It appears I have hijacked this thread.  Sorry 
kate

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viviana

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Reply with quote  #6 
Kate and others,

I think every word you've said makes sense. I'm thinking there are others with similar experiences, so, honestly, we should do something about it. I think that what we need to find out is why is CVS not considered a disability..what standards are they looking for? I understand because this is a fairly "new" diagnosis lots of education need to be done as well as advocate for support from the medical community.  Why, should CVS be any different from, say, epilepsy. I don't think CVS "survivors" -as i want to call you now- should be penalized at school, at work etc for something they do not have much control whatsoever.  I will start researching. Please PM me any information you will think could be of help. 
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viviana

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Reply with quote  #7 

I started reading regarding ADA, here is the link.
http://www.usdoj.gov/crt/ada/q%26aeng02.htm

(Deborah, I'm not sure this are the laws you meant? It seems that you could give them a call and see what happened.)

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sallywoes

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Reply with quote  #8 
Hi all!

My son has recently applied for SSI and has been denied.  I know it's a long process and from what I understand it takes a few denials before anything actually occurs.  He is applying with CVS as his only diagnosis and now that i'm reading the responses i'm not sure how well this will turn out.  If anyone comes up with a short cut to answers i'd appreciate it too! 

Sally

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Reply with quote  #9 
Sally,

Good luck to your son.  Try, try, try again.  
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katieholiday

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Posts: 11
Reply with quote  #10 
I have been approved for disability for CVS.  I was denied the first time.  Our state of Oklahoma has Senator Coburn (he is a MD) and I contact his office and spoke to the disability  liaison.  I was one of the first in our state to recieve disability for CVS.
 
My best advice to you is to contact your congressman.
 
Good luck
 
kat
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deannalee

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Posts: 40
Reply with quote  #11 
It is always said that you have to apply more than once when you are denied disability. My husband was fortunate (if you can call it that) to be approved first try but he is also severe diabetic and has episodes so frequently there is no way he will ever work again unless we find a cure. So he was deemed disabled for his diabetes complications and not CVS.
Good luck to you!

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Deanna
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mahler1987

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Reply with quote  #12 
I did get SSDI first time around, but with CVS, it usually takes another diagnosis put as primary to get it, usually a mental heath condition of some sort.  It is not uncommon to be refused the first time.  Many seek out the services of an attorney that specializes in SSDI cases.  These attorneys don't recieved anything out of monthly checks, but they get a portion of back payments.

Pattie

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I may have CVS but CVS is not me.
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klconner

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Reply with quote  #13 

bumping this up


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With perseverance, the snail made it on the ark.
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akl_0518

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Reply with quote  #14 
Just to let everyone know...YES it is possible to get SSI w/ the diagnosis being CVS.  I applied Feb of this year and was approved the very first time!!  I did NOT expect that to happen...I expected to be declined at least the first time.  So, I just wanted to give hope to some of y'all out there that it is possible to get SSI w/ CVS.  I think it really depends on the severity of it and how dibilitating it is to your life...unfortunately I have a severe case of it.  I would be happy to answer any questions people may have in regard to how I applied and was approved.  Just remember...don't give up hope...it CAN happen!

Kiley

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~~Adam K. Leach~~ "Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance." James 1:2-3..."Blessed is the man who perseveres under trial, because when he has stood the test, he will receive the crown of life that God has promised to those who love him." James 1:12
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seraphim_amon

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Posts: 82
Reply with quote  #15 
OMG, I am on year number 2 of waiting for my hearing. Where do you guys live that you are getting thru ssd so quick. I finally got an attorney and a doc to agree totake me for this condition. But my case just came up for review about a month ago.
WOW!!!
My ssd attorney says there is no problem getting ssd for CVS, since I also have fibromyalgia, chronic pain, neuropathy, CVS, abdominal migranes, PTSD, and anxiety.
They keep denying me because I am only 35. But I have hope the hearing will work out.
Of course I have also racked up over $100,000.00 worth of hospitilazations in the process so any back money they give me is gone.... ugh!!!!!!

seraphim_amon

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There is much suffering in the world - physical, material, mental. The suffering of some can be blamed on the greed of others. The material and physical suffering is suffering from hunger, from homelessness, from all kinds of diseases. But the greatest suffering is being lonely, feeling unloved, having no one. I have come more and more to realize that it is being unwanted that is the worst disease that any human being can ever experience.”

~ Mother Theresa
20th century humanitarian
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