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madison

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Hi! I am a 21 year old college student with CVS. After recording my episodes for the past few months I believe my main triggers are emotion, heat and lack of sleep. The vomiting of my episodes typically doesn't last longer than a few hours but I have been having them about twice a month and am usually nauseous and without appetite for a few days - week after. The nausea is usually so bad that I will barely eat for as I fear throwing up again. Lately it feels like anytime I have an emotion of stress/excitement/nervousness/sadness I will relapse into an episode. I was wondering if anyone has any advice for what they do when they feel an episode coming on or how to prevent these episodes so closely tied with emotions. Thank you!!
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wynnak

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Reply with quote  #2 
Hi Madison,

Have you been diagnosed with CVS? Who helps you treat it? I'm asking because if it is some one that is knowledgeable about CVS, they would go over options for treating based on your severity and triggers. 

My son is 20 and in college. We have learned to manage a lot of his stress with different coping strategies. He has a very strict sleep schedule. And we try to mediate the stress the best we can. For example, we did not talk about going back to school until the night before the first day of college. This helps him avoid the stress up to it. Makes me stress out like mad, because I don't know what my week holds  😉 But, yes, he has been upping his anti-nausea meds. We also did Cognitive Behavioral Therapy or CBT. 


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Blynda
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madison

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Hi Blynda,

Thanks for the reply. Originally my doctors thought something was wrong with the liver or gallbladder but after many tests that came back negative and no relief they now believe it is CVS. After reading though many of the symptoms and about the disease I strongly agree that this is correct. This summer I worked a job with odd hours that I think definitely brought on more episodes. I am hoping to find a doctor with more expertise so I can get more help with treating it if this is the case. Right now while I am home I have been going to acupuncture and taking B vitamins but have no real medication.
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wynnak

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I suggest that you contact the office at cvsa@cvsaonline.org to get a list of physicians near you. See if you can get someone to help your better manage them. There are also the supplements or “mito cocktail” that are on the webpage. Check with your doctor on possibly adding them as well.
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