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scooky1

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Posts: 132
Reply with quote  #1 
Hi Guy's

I was just thinking about the first time I had a CVS attack, I came home from work and ate beef steak for dinner. Later that night it hit me I wound up in the ER and almost died.
Years later I was in another Hospital and a young intern told me about abdominal migrane's and it took a couple more years to get a diagnosis.
That's when I found out what happens to people who go to the ER and say "I have CVS" and the nightmare began.
So I was wondering about you guy's and how or what started you off on your nightmare?

                                                           Uh-Oh I've been thinking again!
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coolbee

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Reply with quote  #2 

hi everyone! i'm new here. it's comforting knowing there are other adults who have to deal with CVS, although i'm very sorry that anyone else has to experience it.

i had my first attack in 2015 - exactly 4 years ago! it was my birthday, and i bought a veggie pizza to celebrate. i ate a few slices at my usual dinner time, then went to bed. the next day, i woke up and just felt a bit...off. i went to church (i go every day before work), but when Mass had ended i had begun to feel quite lousy, so i headed home and called in sick - something i hadn't done in ages. i initially assumed it was food poisoning, but things very quickly went downhill. i could barely drag myself out of bed to the bathroom and back, which seemed to be constantly, and it was really scary because i'd never been so sick. i was tempted to ask a friend to take me to the hospital, but i didn't want to be a burden and decided to just ride it out. it took 2.5 days before i started feeling normal again. 

a while later, i eventually deduced that it was the bell peppers on the pizza that did me in. nowadays, there's a 99% chance i'll have an attack after eating bell peppers.

i wasn't diagnosed until about 2 years after the first incident, after dealing with monthly episodes (sometimes several times in a month). i had an upper endoscopy, which was normal, but when considering all my symptoms, my gastroenterologist thought CVS fit the bill. that's when i had a hunch that bell peppers, as well as carrots, might have been contributing to my symptoms, and cutting them out has helped tremendously. and the few times i've tried eating a them, i got sick, so...no more for me [frown] they seem like such random triggers, but here we are! 

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scooky1

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Posts: 132
Reply with quote  #3 
Welcome to the board
Funny I have trouble with bell peppers as well and have avoided them for years but don't think they were ever a trigger just upset my stomach heart burn so bad that it was debilitating.
As you can see there is a lot of information here and the people who run this site are very informed and have much help to offer !
Do you still get sick or did cutting out the peppers do the trick and stop the attacks?
                                                                       Good Luck,Steve 

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coolbee

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Posts: 4
Reply with quote  #4 
thank you, steve! it's good to meet you 😉

i do still get sick, but not nearly as often (and usually not as severe). when it happens, it's usually the day after i eat a really, really big meal, but not always. and some random things do trigger it, like mint chocolate kind bars - but not the other flavors! and other mint things are fine. i'm grateful i figured out the big triggers, but at the same time, i'm afraid of eating a meal that's "too big" in case it leads to an attack. 

in general, my appetite has been completely thrown off, so there'll be times where i rarely feel hungry and get full quickly, and other times where i suddenly get very hungry. it seems silly, but i have a hard time regulating meals, eating when not hungry, etc. i'm sure many of you can relate, so i plan to browse around the forums for any advice on that.
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scooky1

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Posts: 132
Reply with quote  #5 
I have wound up in the ER from over eating/filling my stomach a few times, once right after I got out of the hospital I was so hungry and ate too much and right back in the ER I have found that eating/snacking all day and have found eating dinner early helps! maybe, who knows. every time you think you may have a handle on it you find out you don't I have heard of people who have stopped having attacks so I keep trying. don't have anything better to do.
                                                                                                                 Take care,Steve
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coolbee

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Posts: 4
Reply with quote  #6 
as i was reading older posts, i realized just how much worse things have been for you and others [frown] you've all been in my prayers. to be sure, i've had some bad times myself, but i'm relieved to be comparatively well (including fewer head migraines). i'm mostly experiencing the fatigue and brain fog currently. nevertheless, i've been trying to keep myself mentally prepared for things to shift for the worse at any time - but i also don't want to be unnecessarily anxious about it, since stress and poor sleep are definitely factors for me! i do want to start snacking/eating small meals throughout the day, though, to reduce the risk of overeating.

i wish you all the best, steve [wave]
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