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ChrisVicky

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Reply with quote  #1 

Does anyone have experience with Dr. Levinthal?  Our 19 year old just received diagnosis of potential CVS, much easier for us to drive to Pittsburg than fly to Wisconsin.   Any advice would be appreciated.   


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ginny

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Reply with quote  #2 
I don't know that name but the CVSA office might have him/her on their list of doctors.  You can reach the office at CVSA@cvsaonline.org

You might research his/her name for publications.  He could have participated in research on CVS.

Most doctors ---those willing to listen, research, and learn-- can handle CVS patients.  Many are not going to respect the suggested higher-than-the-norm dosages of medications that are thought to be needed to stop a cycle.  Getting in touch with a CVSA medical advisor can help another doctor to understand the dosing.

Good luck with this new doctor and please let us know how things go.



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wynnak

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Reply with quote  #3 
Dr. Levinthal was just added to the list of medical advisors for CVSA. There was an article in the Code V newsletter that was printed last. I have recently met him and would highly recommend seeing him.


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ChrisVicky

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Reply with quote  #4 
Thanks everyone for the responses!
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MiamiLargo

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Reply with quote  #5 
ChrisVicky,

Did you see Dr. Levinthal?   We just had a very bad initial phone call with Dr. V which took weeks to arrange and had good correspondence with Dr. Levinthal.  How are you doing/feeling?
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ChrisVicky

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Reply with quote  #6 
Hey guys, very sorry about the delay, I'm not checking the forum very often.   We did see Dr. Levinthal and liked him alot, however, his message and information was very similar to Dr. V. 

For our son, his CVS turned out to be CHS (cannabinoid hyperemesis syndrome).   Whether this is a distinct illness or a subset of CVS is unknown.   However, when Gus ceased using Marijuana his symptoms resolved themselves completely, and he has been event and symptom free since February.   The diagnosis and treatment from Dr. Levinthal and Dr. V were identical, and effective, but it was simply "stop ingesting THC and this will likely go away."   And they were right.

I'm sorry, likely this isn't much help.   I hope you and your family are getting through this.

Chris and Vicky

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wynnak

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Reply with quote  #7 
Glad you found answers. I would keep an eye on here anyway at least until the Adult Guidelines are released. There may be info on CHS that is addressed in the guidelines since it is similar to CVS and an issue with CVS patients getting treatment. 
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ginny

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Reply with quote  #8 
Excellent news.  Glad the episodes are resolved!  We are always happy to hear about someone getting better.
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