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riaka

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Reply with quote  #1 
Hi all,

I was searching through the forums and surprised to see only a couple discussions about Alpha Lipoic Acid even though it is on the list of recommended supplements on Dr. Boles’ website. It reads:

“Alpha lipoic acid (“ALA”)
-Antioxidant.
-Common dose in adults and children over age 10 years: *** mg twice daily (*** mg per day).
Common dose in children under age 10 years: *** mg twice daily (*** mg per day), less under age 5 years.
-Side effects: Nausea occurs occasionally, so starting with one-half the dose for the first week is recommended. Some people can only tolerate one-half the dose.
-Caveats: There are many brands to choose from. ALA acts primarily as an antioxidant, whose main purpose is to prevent future deterioration. Thus, success may look like no changes.
-Blood testing: Probably not helpful.”
http://molecularmitomd.com/?page_id=141

I was wondering if anybody had experience with this supplement and if it improved anybody’s symptoms at all?

A couple months ago, I was in an episode and went to one of those walk-in IV places and they were out of what I usually would have gotten (just regular rehydration/lactated ringer). I instead got a IV infusion that included magnesium and alpha lipoid acid just because I knew they are supposed to help with mitochondrial function. That episode only lasted 3 days (instead of my usual 4).

Fast forward to this episode - I started taking alpha lipoic acid about a week ago when I sensed my symptoms were coming to the surface. The result is that I have not gotten physically sick yet - but have felt on the brink of it for a couple days now. So I don’t know which is better - being sick and getting it over with, or just being nauseas all the time. I am thinking I will eventually go into a full episode, it’s just a matter of time.

Has anybody else had an experience similar to this? I intend to continue taking alpha lipoic acid after I’m well to see if more long term use has a different effect.
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wynnak

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Reply with quote  #2 
We’ve meet with Dr Boles and ALA has not been mentioned in conjunction with treating CVS. I know he lists lots of antioxidants on his site. Antioxidants can be helpful in many conditions. I would rule out a supportive therapy to help boost the immune system. Antioxidants and vitamin C are supportive things that we encourage for my son since we consider him to have a sensitive immune system. If he gets sick, it can trigger an episode.

Let us know how it goes.. and I’m off to check Dr Boles Spectrum needs to review the content again,

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riaka

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Reply with quote  #3 
Thank you so much for your reply! I’m big into building up the immune system too, so even if this helps support it, it’s fine by me. I should have included the link to where I found the information in my initial post, I’ll see if I can edit it in: http://molecularmitomd.com/?page_id=141

It reads, “The following information is intended to assist your physician in terms of starting dosages for commonly-used nutritional supplements in CVS” so I would assume it’s used in some patients. Although knowing from you that it may not be common would explain why I couldn’t find much discussion. Thank you for your help!
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ginny

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Reply with quote  #4 
I do see the ALA in the Spectrum Needs as well as two forms of Magnesium.  Magnesium we have been suggesting and the chelated form has been thought to be better absorbed.  However my daughter doctor preferred the citrate. Mg has been thought to help some migraine headache patients.  I do not recall why we were using it in either chelated or citrate form.



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Ddirose

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Reply with quote  #5 
Hi Ginny,
Is there a link to the recommended supplements , besides q10, l carn, and b vitamins?
Thanks you!
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ginny

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Reply with quote  #6 
There is an anecdotal paper on the web page reviewing Ami and the supplements.  The supplements are the ones you mention plus one of the authors talks about magnesium.

I think for other information on supplements being used, you might try visiting Mito Action and Dr. Boles web site.  Dr. Boles sells a combo of many supplements called "Spectrum Needs" and he also has quite a bit of information on supplements on the web page as well.

Always check with your doctor and pharmacist before starting new supplements just in case there is a conflict with medication and/or supplements you are already taking.

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ginny CVSA Moderator
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