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wynnak

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On February 19th, the BOD held their Monthly call.

Discussed was where the Guidelines were in the process of being completed. This process is extremely long and exhaustive. We had our goals set high for the 3 year to completion when most that we have seen have been 5-6. Even pediatric Guidelines took 5 years. 

Conferences and outreach to spread CVS knowledge and awareness..

International Awareness Day and what is being done for that, contact has been ongoing with CVSA UK, CVSA Nordic and other international groups on working on the international aspects of IAD. 

Review of the requirements for partnering with NORD and Meeting Guidestar guidelines

B Li fund for,  Young Investigators Award with NASPHGAN and supporting on going funding of this opportunity.

increasing means of volunteers, outreach and support


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wynnak

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April BOD CAll: From Kristin Koch, Board of Director

1. Program Coordinator’s Report – Debbie

      a. International Day brought in over $7,800

      b. Working on list of conferences that members of the BOD will attend to increase awareness about Adult Guidelines and available resources for healthcare professionals and patients

      c. The office has been busy with physician referral requests as well as people just wanting information

      d. We continue to get more people interested in volunteering since we launched the new website

 2. BOD Committee Report

 

      a. Scientific Advisory

           i. Adult Guidelines Update – still on track for release this spring

 

      b. Development/Fundraising

           i. Kristin is forming a Development & Fundraising Committee with volunteers interested in helping with fundraising and development, more spots available for those interested.

 

      c. Communications/Marketing

 

           i. Post Card Mailing – Jen is working on postcard that will be distributed to physicians to make them aware of conferences the BOD will be attending to give them the opportunity to seek us out to find out more about CVS, CVSA, and the release of the Adult Guidelines

 

     d. Executive/Operations

         i. No updates at this time

 

     e. Finance –

         i. Accounting report – Jeff, this year’s revenue is close to this time last year

 

3. Additional Items:

         i. Volunteers – we have seen an increase in volunteer applications with the changes to the website which is very exciting and always have room for more. Jen is filtering through the applications as they come in and trying to find the perfect volunteering position for them.





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Chopinmrl

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Reply with quote  #3 
May BOD Meeting Report:

The BOD met on Tuesday night. We continue to be waiting on the publication of the Adult Guidelines. The good news is that the delay is due to the publisher, not due to any issue with the scientific content, approval by ANMS, or any other problem with the guidelines themselves. We are just waiting on the publisher/final proofs/etc.

CVSA will be attending the DDW meeting in San Diego this month. If you or anyone you know (like your physician) will be attending, please stop by our booth to say hello. We are excited to see old friends and are hoping to make many new ones as well as add more names to our referral list. We had hoped to be able to hand out copies of the adult guidelines, but we will be prepares with other resources since it looks like they will not be available in time.

The Bad also discussed outreach to physicians. CVSA will be attending a number of conferences this year and we just sent postcards to approximately 200 MDs sharing where we will be this year. If you know a physician who you think should receive a card inviting them to connect with us at one of these meetings, please let the office know.  We have a few of the postcards left. 

The board also discussed fundraising, finances, and the in person BOD meeting. 



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Mary Rachael
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