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oleyeller_1013

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Reply with quote  #1 
Ya'll might remember me as the CBD advocate which I am. It's so good for so many ailments but it isn't a cure all for CVS.

It helped me get off Remeron, Xanax and multiple other awful drugs that were making it worse.  I was going good until I had a year with 22 episodes in 2016, acute kidney failure was the kicker that got me to Dr. V from dehydration. I was thinking I was near death.

Finally after being stubborn for 8 years, I flew to Wisconsin and work with Casey, Dr. V's assistant closely with Dr. V. 

She prescribed me the Emend kit, Meds made mainly for Chemo sickness or Aprepitant as injection form in hospital. She said once you start vomiting, it doesn't really work at that point from her experience. You take it at pro-drone stage when you feel it coming on and you know "that" feeling. 

3 pills in america cost a ridiculous $750 (Emend is a foreign country and USA's insurance is a little messed up now, coupons don't help too much at that price point, I found a pharmacy in BC Canada (they have universal health care and get access to meds made across the world, no fakes, the real deal)  

The early CVS symptoms can rear it's head at any time. If I feel reflux or watery mouth, yakky feeling, or bad bowel movement, I would take one pill, then in 30 minutes I'm completely human again.  It's truly remarkable. For me it's worked 100% and I rarely take it anymore bc my PTSD has gone down from the 350 hosp visits in 14 years. Another thing this helps, being mentally content.

Here is my gift of life to you. Get RX from any US Dr. Emend has zero side effects!! no benzos, no opiate, no anti-depressant, no more guinea pig anymore. This drug will change or save your life, hopefully like it has for me.  Knowing you have that in your arsenal really gives you peace of mind.   This is HUGE guys, Please PM me with any questions. I'm 160 now, used to be 135, working out, swimming, it literally saved me life.

America - 3 pills (1 packet) for $500-$800.00
Canada - has Merck made pills, this pharmacy does not sell benzos or bad stuff
               9 pills (3 packets)  $260.00 !! (they call it Tri-fold pack b/c it has 3 packets vs the 1)

(my american pharmacy's Emend was made in India if that tells you anything from Walgreens, it's not from China or ripoff type pharmacy)

This makes a huge difference and could ultimately save your life like it did with me after a 14 year battle.  Take photo of RX, email, pay and it takes 2 weeks to get from Germany- FYI, so always have that next order coming if you get low. The first pill usually always works and I never take the last 2 but I save them b/c they work just as good, just little less MG's.

Dr. V literally saved my life and got off the Ativan for good.

Thanks ya'll!  Ole yeller KC

drug type
Emend Tri-Fold Pack
Merck
Turkey
... mg/ ..mg / ..mg
3 Packets
$255.00


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CanadaPharmacyOnline.com
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7:00 am - 3:30 pm Weekends PST
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8322 130th Street Surrey,
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ginny

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Reply with quote  #2 
Wonderful news that you are doing so well and have a program that works for you when needed.

Please keep us updated.



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ginny CVSA Moderator
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oleyeller_1013

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Reply with quote  #3 
Thanks Ginny, it's been a Godsend along with Dr. V, more to add>

once you take it the nausea just goes away and disappears. It is designed to cut off the nausea and vomiting receptors in the brain.

It works 100% for me, you just need to take it before you get sick.
I have taken about 9 pills in a year. Aborted every episode and gave me my life and confidence back. 

 
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wynnak

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Reply with quote  #4 
I am glad you found a med that works. I am not going to promote the canadian importing.. But will suggest some alternatives that could be helpful for you to look at as well. 

First, have Dr V or Casey submit a prior authorization to your insurance provider to get the meds for the time and amount that they prescribe. If that is rejected, send a written appeal to the insurance company proving that it is more cost beneficial to THEM to provide you the meds that keep you out of the hospital. Providing them a cost effective solution will work in your favor. It is a little bit of a process and challenge, but helped us immensely. Kytril was just like this for us and we appealed the heck out of it. Now we pay $5 for a 30 day supply. Before the appeal it was $80 copay for two pills. It took us from 8-12 hospitalizations of 5 days or more down to he hasn't been inpatient for over 2 years we may be coming up on 3. So writing an appeal was a simple as letting them know that each 5 day hospitalization ran around 70k, plus he had infusion daily where he would get IV version anyway, Each day he was there was between 5-7k depending on how much fluid he received in addition to meds.. So pull your EOBs and send an appeal. You may be able to get it cheaper and easier by going through the process 

Another alternative.. and this is MASSIVE.. If your health insurance is through you or your spouses work, you can talk to the HR department so that they know what meds need to be added to the drug coverage list for the upcoming year. They have say in those negotiations for coverage when the enrollment occurs. 

Apps like Good RX are good for coupons and we have gotten several meds either free or significantly reduced for a year or more

or contact Merck directly for their patient programs that can help get it covered or give you a reduced rate for the medication. For emend (aprepitant) go to https://www.emend.com/

If you do not have insurance, there are places that can help with medication coverages, or even co-pays. I would contact the CVSA Office for information on these organizations.. 211.org, NORD has a patient financial assistance program.. there are quite a few. 



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Blynda
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ginny

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Reply with quote  #5 
CVSA used to have a link on the web page for the various programs to help with medication costs-- maybe we can put that back in place?
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ginny CVSA Moderator
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wynnak

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Reply with quote  #6 
The I ones that I looked at when I was reviewing the webpage no longer existed. The supplements have been up and I personally verified the offered discounts.
We have a couple that we are reviewing and getting ready go post like the ones mentioned. They will go back on the site after we have verified that CVS patients can receive assistance. The only one that was live, previously, refused CVS patients coverage.
Very few patient programs that arenโ€™t funded by the actual pharmaceutical company for certain medications. We have had several at one time.

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oleyeller_1013

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Reply with quote  #7 
My wife works for UHC for 19 years and we literally have the best plan on the planet and it brought it down maybe $1000 to $760.

I didn't find this medication, Dr. V found it for me and said this is the one people are having major success with and no ERs, no IVs, no long, miserable recovery. At this point and price, it can come from a lab in Mars if it saves my life. 

The Emend company working with Merck is in a private company in Europe so you will not have any other luck, anywhere else here in the USA. We tried all avenues. 

Price hike here with our terrible healthcare and we checked and called a million places until we found the Canadian pharmacy.  I have taken these pills made in Turkey and they work exactly like the pills from Walgreens made in India. 

There isn't another better deal on Emend on our planet and there is nothing wrong with pharmacies in most places unless they sell bogus opiates or benzos. Most people can't afford 3 pills for $760 so go ahead and get 9 for $260 at the place we found.

That's a life and death price difference, I can tell you that unless you have unlimited money.

Everyone on this board should take Dr. V, Dr' V's assistant Casey and my advice and try Emend. If you can't physically get to Wisconsin, get your regular Dr to prescribe the EMEND kit R/X

It could simply save your life!  It did mine, a true miracle drug designed for cancer patients' nausea after chemo.  CVS is killing people, I would probably listen to someone whose had it 300+ times and Dr V says it's working all across the country, I'm living proof.   Cheers and good health to all!  

Thx Ginny! (long time ๐Ÿ˜‰ ) and most especially thx Dr. V for getting me off Ativan and other drugs and keeping that darn ER/Hospital needle out of me!
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jenny

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Reply with quote  #8 
I am glad that you found Emend to be your miracle drug.

I am in Canada and have been trying to get Emend prescribed for over 6 months now. Hopefully with the new adult treatment guidelines my GI will consider it.

I have no issue with you getting Emend from Canada instead of the USA - the cost difference for you is huge.

I just need to mention that this isn't something that everyone in America who needs prescription meds should do though - if only 12% of Americans who need prescription meds bought from Canada that would be equal to more than doubling the entire population of Canada. Our drug system already has regular shortages just supplying within Canada. We would need to exponentially increase our manufacturing and importing to keep up.

Right now we have a shortage of cancer treatment drugs and in 2018 we had a shortage of epipens which was very scary.

Our drug costs are only lower because the pharmaceutical companies final prices here are somewhat regulated and overseen by the federal government.

Our healthcare system such as doctors, hospitals are the universal healthcare component is the free part and is actually controlled by each Province.

If only everyone with CVS who needed Emend did it it wouldn't be a problem, but if everyone who was sick bought their drugs in Canada very quickly there would be a supply crisis.
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oleyeller_1013

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Reply with quote  #9 
Dear lord I'm sorry!  You are IN Canada and can't get it??  OMG that's crazy I'm in Texas. 

Sorry to hear that. 

I was telling another lady the cancer community may have just saved an entire small but growing group of people with CVS. They probably had no idea until Dr. V dived into and found it. 

Also I only bought 2 boxes in America that were made in India from Walgreens. We spent $1200 for 6 pills which started the frantic search for an online pharmacy.  I'd say at least 3/4 of the ones I've taken were from the Canada pharmacy which thankfully doesn't sell benzos or bad stuff (red flags)

Healthcare....what a joke for meds (greed) and my wife has been with UHC for 18/19 years. If you have any questions, PM anytime.  She is like the Einstein of insurance, I'm real lucky and see and hear how bad it is!

Good health to all, I was blown away and still am every time my upcoming episode trigger just vanishes and I feel like a normal human very fast with minimal to zero side effects and the only one being a tiny bit tired. Nothing like from a benzo or opiate or anything for that matter I have ever taken.
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oleyeller_1013

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Reply with quote  #10 
Also I meant to add about the medicine shortage.  Our community is very small, would not make a dent vs the giant, cancer community and since I have 9 boxes now I feel very lucky and relieved. My arsenal is loaded. 

If I can just save or change one life on this board from my posts, I've done my duty b/c my last episode I had acute renal failure after getting bounced from ER only to come back dehydrated 1 day later.  Yeah we've all been bounced before I imagine!

I say no more, I want to "live" > trip to Dr. V  > Emend probably saved my life after 300 kajillion times. I swim daily, tennis very active and feel 37 again. 

The PTSD has really gone down, pretty much away knowing I have Emend, it's thats good. 100% success rate so far so good. I owe my life to Dr. V.

Thanks!!  ๐Ÿ˜‰
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ginny

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Reply with quote  #11 
My understanding on US drug prices is that development of new meds is very costly and to have the great minds that dedicate to discovering pharmaceuticals commit, there has to be financial investment.  Otherwise these scientists would be use their skills in another field.  

I think the US new meds have a 17 year patent.  That also accounts for the length of time that the US does not have generic brands of new meds.  It took a long time for the Zofran patent to expire.

I dont recall when the Emend patent expires but until that time to price will be high.

As US healthcare becomes more nationalized I think we are going to find the going tougher and tougher not only on getting meds covered at an affordable copay but also have more tests and treatments denied. 

I am thrilled oleyeller_1013 that you are doing so very well.  


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ginny CVSA Moderator
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wynnak

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Reply with quote  #12 
Emend or Aprepitant, the Generic form, was released in Feb or May of this year. It will take another year or so for most insurance companies to adopt it on their covered medications list. If you have employer sponsored healthcare, contact your HR person for them to push for it to be added during open enrollment period. 

The same issues are happening with the new injectable migraine medications. There were programs that gave you a year or so many months of the medication free.. but not covered by insurance still and they are costing appro $800 per injectable. 

I have been through the appeals processes for medications for my son's CVS. Several times. We have also been able to get the patient programs to help support us during the processes that these medications go through. I encourage you to look into them while you have your stash. We stockpile too.  

I'm glad that you went to see Dr.V. She is a wonder!

Emend was presented at last years conference as a preferred medication by most of the physicians that presented. I encourage you to attend that if you haven't, and or sign up for e-newsletters or become a CVSA member to get our Newsletters that would have included a write up of the conference and the meds that were talked about. We have multiple ways to get the wonderful information you are sharing! 

Thank you for Sharing your experience and what works for you. I will share your enthusiasm with Dr.V. 



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Blynda
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oleyeller_1013

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Reply with quote  #13 
That's so great they are trying to roll it out. I don't think it could have gotten any worse for me after a brutal 14 years. Some good years, many bad.

Thank god for this little Emend pill.  I guess there is a reason Dr V and CVSA were so supportive of it, b/c it's just amazing. Ativan works but it's dangerous and burns your veins. That was all that ever worked for me in the ER to stop vomiting.

You feel like a normal, healthy human being again within 30 minutes with Emend, it's truly remarkable. I would imagine it would help others as sensitive and sick as I was in the past but I know everyone's body chemistry can be different.

As a major guinea pig of western meds the last 12 years trying to solve the CVS riddle, this dominates everything else as far as aborting cvs episodes and nausea and not having to recover for a week/weeks of misery. No IVs, no hospitals anymore.   PM me if you need more info and get well! ๐Ÿ˜‰
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shayden

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Reply with quote  #14 
I am also from Texas and have been traveling to see Dr. V since 2017, with my most recent trip being June 2019. I suffer from episodes that transition from chronic to acute, and have been in the hospital for 82 days this year over a period of three episodes - that does not take in to account all the episodes Iโ€™ve been able to abort in between.

Dr. V actually prescribed Emend as a daily prophylactic (yes - DAILY) and increased my dose of Nortriptyline - due to the outrageous cost, her office worked with my insurance company to get approval for a year supply, and my CVS Pharmacy special orders the Aprepitant generic for me. I imagine my case, with the cost of my medical care, was fairly easy for the insurance company to approve; however, I worry that others will not be so fortunate.

Iโ€™m about to start my second month of Emend, but have only been out of my latest chronic episode for about a week - can only hope and pray that it will be a miracle medication as it has been for you ole-yeller! Time will tell....
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wynnak

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Reply with quote  #15 

Oleyeller, I know where you are coming from. My son was literally a guinea pig. Technically it was called a case study. But, they experimented on him and the medications got more and more aggressive. 

The medication that he responds best to, could also kill him. Not a fun story.

Kytril was like that for us (also a med recommended by Dr Boles). Was the one anti-emetic that he responded to. He sometimes requires both Kytril and Emend. 


Shayden.. Do you try to schedule your appointment with Dr. V to attend the international CVSA Friends and Family conference? People do and it's a great time to aim for! 





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